graves/hashimoto? confused

[alikat1205]

I was diagnosed hypo thyroid  with hashimoto's about 7 years ago and have done fine on synthroid 50 mg since that time.  About August of this year I noticed the sudden growth of my thyroid, huge and noticeable goiter where only the month before I had nothing, so I made an emergency appointment to my doctor.  She tested my tsh (only, no other thyroid tests) and got a reading of .02 and discontinued my synthroid.  I went in for a repeat TSH four weeks later and it was still .02.  I went four weeks later and it is .02.  My doctors says she suspects Graves AND Hashimotos.  How is this even possible?  She called today and recommended repeat testing in 6 weeks.  

I am uncomfortable with this plan.  First off, the huge goiter appeared nearly overnight, and that doesn't sound good.  Second, nothing is changing, so what exactly is she waiting to find out?  She hasn't answered these questions, just ignores me.  Can the goiter shrink?  If not, what are my options to get rid of it?  I don't like it or want to keep it.  Is there a possibility it is more serious?  Is doing the TSH only acceptable?  I mean, if it not changing, it seems like maybe more information is something to think about, but she doesn't think I need anything by TSH test.  Should I just keep on going for another 6 weeks (which is really more like 8 because of the holidays) and not treat this very low number?

[alikat1205]

I am going to go back and pull my test results, but you really confirmed what I was thinking anyway.  With a retest, she gave no explanation as to what to expect or what would indicate making a change, and no testing done beyond the TSH.  Time to hunt for a new doc.  Thanks.

[alikat1205]

These are my most recent results.  When I see that my thyroid was so low over a year ago, I question why I continued treating as hypothyroid.


7/12  TSH .02 continue Synthroid 50mcg
7/13  TPOab  900  confirmation of Hashimoto
7/13  TSI  4.6  you may well have both disorders
7/13 TSH .02 retest in 4-6 week discontinue synthroid
7/13 ultrasound - thyroid unchanged

Goiter was huge and discoved in August, so I notified her, and she just said to continue with retest.

9/13   TSH .02  retest in 4-6 weeks
11/13  TSH 02  retest in 4-6 weeks

[alikat1205]

The 7/13 extra testing was done only because I insisted something else be tested, or it would have only been TSH.

[goolarra]

What's the range on your TSI?

[alikat1205]

.3-3.0 is normal

[alikat1205]

and I am in beginning stages of TED as per my last appointment but she says there is no way of treating that. :(