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Long term affects of thyroid

In 1999 i was finally diagnosed with a very over active Thyroid they treated me with Carbizamole for about 10 months
until it finally came back within normal levels, they said it probably wouldnt come back but, unfortunately for me
it did in 2004 as bad as the first time this time my thyroid was so large in my throat i lost my voice for 8 weeks. I thought i had cancer, it wasnt but they told me that they recommended Radioactive Iodine treatment as this would hopefully sort this out once and for all. After tests i was given the treatment and i thought i could go back to my normal life.
NO i have had the worst 4 years since, i balloned in weight gaining 2 stone in 6 weeks and swollen feet hands legs you name it to start, my hair started to fall out and i was covered in bruises, it turned out my blood tests went missing and that my thyroid levels were rock bottom i had gone in 3 months from top to bottom. I bring you to now, i am 37 feel tired all the time, am 4 stone heavier than i was before 2004 when my thyroid went over active, my doctor doesnt know why? its like talking to a brick wall, i do exercise and to lose weight i have to eat 1000 calories and exercise, i work fulltime and have two kids. I am tired so i try increase my calories to feel better and i gain weight and more besides.
I suffer constantly with bloating, constipation but to name a few symptoms my skin is different and my periods are horrendous but no one seems to care why!!!
I want answers as it all kicked off with me having the treatment THEY said was best! If i had my time again i think i would have opted for more tablets or even surgery. My level at present is 3.1 in the mid range so no change i take 150mcg per day and have done for just over two years as it took 2 years for it stablize.
Please over advice a to why i might feel like i do is my thyroid not really cured and does it need removing as other people who have had over active who had theirs removed dont suffer with weigth problems or anything else for that matter.

A fed up Thyroid sufferer
Steph
4 Responses
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314892 tn?1264623903
The first place to start is to get that TSH lower.

Although it appears you are not in the US, the ATA recommends a TSH between 0.5 and 2.0 when taking meds.

Here is the link:

http://www.thyroid.org/patients/brochures/Hypothyroidism%20_web_booklet.pdf



Helpful - 0
393685 tn?1425812522
Sorry about the spelling

Worked a long 11 hr day today.

I meant to say "similiar"
Helpful - 0
393685 tn?1425812522
I sound vey simpliar to you - almost to the tee.

I suffered 5 yrs - but who's counting - I have/had the same life as you with kids and full time jobs. and RAI and etc...etc..etc.

I am only basing this on my perosnal experience but I got tired of feeling like cr@p and no doctor knew why or even cared to explore.

I found through the internet that there was another med available for hypothyroid patients called Armour.

I went to my doctor then and asked about it and was told NO WAY would he give me a script for it.

Eventually I fired that doctor and found one that did give Armour to me.

Almost everything has returned to normal for me and I do feel much better.

Good Luck
Helpful - 0
213044 tn?1236527460
Your TSH level needs to be lower. Your doctor is holding you in a hypothyroid state.

You will not feel well until your TSH is closer to 1.0 give or take a little. Less than 2.0.
Helpful - 0
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