link between Tirosint and brain cyst/tumor

[TinaMarieCast]

I had a radiation treatment 2 summers ago to stop the function of my thyroid due to Grave's dis ease (HYPERTHYROIDISM). I went from brand name synthroidown to a generic version they was switched by my doctor to Tirosint in June 2014. I noticed mild dizziness only occasionally until about a month ago (Sept 2014). I woke up around 3 am with sever verigorous and extreme nausea. The emergency room doc said I had disengaged ear crystals and gave me some Internet printouts of the Dix Hall Pyke and Eply maneuvers to diagnose and to help move them to a place in my ear where they would no longer cause harm. It was suggested to go to an ENT if the symptoms didn't go away. I was prescribed Meclizine and Lorzepam.  They  monitored me after taking Meclizine and although it didn't take away the dizziness I wasn't as nauseous. Instead of waiting I went right to an ENt in front of the hospital. Hthat doctor also told me about the crystals and scheduled me with another ENT for a hearing and other test. That doc confirmed BPPV (positional vertigo). I made another appt with the first ENT doc bease I believed the positional vertigo wasn't a correct diagnosis. I asked again if he would please check my thyroid blood work to see if maybe I was having a problem with Tirosint which is the only relatively new drug I had changed in my life. He agred and also signed me up for an MRI tof rule out a brain tumor just in case. I got a call from his office soon after to come in to discuss my blood test results. I asked them to send them to my endo. My endo doc called me that night. HE told me to immediately stop taking the Tirosint and that my hyperthyroid is had returned. I went from 100 mcg of synthroid to 88 mcg on Tirosint. HE said let's get the drug out of your system for 2 weeks and we will check your blood again. I go on Oct 18 for the blood work. The following Monday after the MRI the expedited the results to the ENT and I went to see him for the results. HE showed me my T3 and T4 results and also revease I now had a brain cyst or tumor in my right temporal lobe. HE said I'm also diagnosing you with Menieres which is most likely due to the return of your hyperthyroidsim. HE said "I'm interested to know if the Meniere's will stop after your endo gets your thyroid back under control." He asked for me to return to him in a year and said that I should follow up with a neurologist in 6 months. The ringing is now in both ears. The vertigo is always with me. I feel unbalanced. I have diarrhea all the time, headaches, blurred vision. I know it's the Tirosint! Is there anyone else on here that develope brain cysts or tumors as a result of Tirosint? They said that can't rule out a low grade glioma. I'm a single mom of 3 children ages 11, 14, and 15. I'm a science teacher and have only taught about 5 years. This is ruining my life!

P.S. I read a post that describe some cystic acne around the jawline. I developed one cyst like pimple on your chin 2 months ago and it still hasn't gone away. It's like a marble. My last T3 count was 17.9 even though my thyroid and goiters are gone and I have hypothyroidism now!!!

[Barb135]

What levels are you referring to going from 3 to 19?  

What do you mean: "Graves was not stopped by the radiation?"

While they have the same symptoms, there's a difference between being "hyperthyroid" and being over medicated.

Just stop and think about it... you were on Synthroid, which contains levothyroxine, the same active ingredient in Tirosint.  The other ingredients are water, gelatin and glycerin which are ingredients that are found in products you most likely use every day... The only difference between Tirosint and Synthroid is that Tirosint is a gelcap and doesn't contain the fillers/binders/dyes that Synthroid contains.

[TinaMarieCast]

At my last check up in June my T3 was 3 and I was taking 100 mcg of synthroid. He switched me Tirosint 88 mcg and I asked the ENT to order a blood work up check on my thyroid. 17.9 last month which is why he told me to go off it because my hyper had returned. I had Graves since a child and it went dormant when I was 19. It reappeared when I was 39 and had trouble with my eyes, itching, and a great weight loss. That's why I ended up getting the radiation. I was fine on Snyder oil besides the weight gain. For my leves to go from 3 to 17.9 on a lower dose within 3 months in addition to all the other problems is not a coincidence. I've  had HYPOTHYROIDISM since the radiation and had none of these problems. I'm welooking acquainted with thyroid symptoms as I've dealt with them all of my life. These aRE new since the medicine. GRAVE'S was not stopped by the radiation and the thyroid was successfully destroyed. I didn't have these symptoms or a tumor before.

[Barb135]

You may have been over medicated, but there's nothing in Tirosint that could have caused anything like what you have.  The only ingredients it contains are the active ingredient Levothyroxine, (which is present in all synthetic thyroid hormones, including Synthroid), water, gelatin and glycerin.  I took Tirosint for 5 years and had no trouble at all with it; I only went off it, because  the price kept increasing and my insurance wouldn't cover it.

What were your actual thyroid hormone levels when you believe you were over medicated?  Please post them with reference range, which vary lab to lab and have to come from your own report.  

[Red_Star]

My grammar error on the last paragraph since I copied it from the book. :)

[Red_Star]

This info is from the book "Running On Empty" by Robyn Koumourou:

"Hypothyroidism can adversely affect all the major systems of the body, causing:

Poor oxygen and nutrient transport
Abnormal protein synthesis
Abnormal blood pressure
Elevated cholesterol
Heart function irregularities
Elevated muscle enzymes (indicates muscle damage)
Poor muscle/bone growth and repair
Elevated liver enzymes (indicates liver damage)
Elevated ESR, indicating inflammatory response
Abnormal fluid and mineral balance
Abnormal calcium metabolism, contributing to kidney stones and gallstones
Poor glucose-insulin regulation
Abnormal adrenal gland function
Imbalanced sex hormones
Inflammatory bowel conditions
Immune system dysfunction
Poor elimination of wastes
Poor cellular detoxification
Tissue hypoxia (oxygen deficiency)
Cyst, fibroid and tumour growth
Abnormal nervous system function
Alterations in brain chemistry

Diagnosing and treating and underactive thyroid condition early and appropriately is vital if a person is going to avoid further complications and ill health."