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1139187 tn?1355706647

new labs and WTF????

barb already saw this but i need yall to help me with this.

last month i was on 220 mcg t4 taken at night.  results below:

heres what i know.

last month  220 mcg

tsh 20.20   (range  .4-4.5)
ft3   2.6     (range 2.3-4.2)
ft4  1.1   (range 0.7-1.8)

this month  235 mcg

tsh 35.0  IT WENT UP!!
ft4  1.0   IT went down!!
ft3  -  didnt get it - but they told me it dropped

how is it that I'm on a higher dose of meds - i have no thyroid and im WORSE?

how encourging is this????

now im being bumped to 255 MCG t4 and the dr. told me if i hit 300, she will not see me anymore and that i will need to go back to and endocrine.  

thats all i know right now
31 Responses
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649848 tn?1534633700
COMMUNITY LEADER
Could be a couple of things, Bruce.  Number one, you just might be one of those, whose TSH is not going to go into the reference range.  

Second, you may not be converting adequately, and will need to *very* gradually add in some T3 med. Low FT3 can keep TSH elevated.

You may not be metabolizing the medication properly. You take your medication at night; are you sure your stomach is completely empty before you take it?  The time required to empty your stomach will depend on what you had to eat.
Helpful - 0
Avatar universal
Bruce,

Have you or your doc ruled out or looked at the possibility of a pituitary issue?

And I second what Barb is saying… I’ve learned to take my T4 in the middle of the night during my normal, get up and pee break…anywhere from 2-4am.  I eat dinner about 7pm and can tell you that with as slow as my metabolism can be, by the time I go to be at 10:30… I am still digesting that dinner (I sometimes have indigestion and can still taste what I ate 3 hrs later)… if I took my levo before I went to bed I can assure you it would not be on an empty stomach…

Just some thoughts!
Helpful - 0
1139187 tn?1355706647
no pituary issues.   I eat my last snack at 9 pm, take the meds at about midnight.    I took my first 255 mcg last night (up from 235)   i am flying all over the place today.
Helpful - 0
1671473 tn?1450592437
Do you have hypothyroid symptoms?
some how if my TSH gone up  and in balance ft4-ft3  i experience a hypo symptoms to that case.
i dont think if i am right maybe the medication you take still adjusting.
Helpful - 0
1139187 tn?1355706647
jesus i took the 255 last night and i have been bouncing off the walls today.
Helpful - 0
Avatar universal
I wished my T4 dosage changes worked that quick..

I have to wait the full 2-4 weeks to notice a change.
Helpful - 0
535882 tn?1396576685
255! wow  how much do you weigh? just wondering? kevin
Helpful - 0
1139187 tn?1355706647
I weigh 180.

Isnt life great?     Totie-  my TSH got WORSE when i increased my meds.  I cant get it under control.  

I had my numbers somewhat under control on armour but i felt really junkie.   I really think there is something they are missing but they cant figure out what.

Yesterday they did an MRI of my ears and brain (inner ear) to make sure i dont have a tear or a fistula which seems to be common with acute thyroiditis.   I have been very patient.  I take my meds for 5 weeks and then test.

This time i took the meds for only 4 weeks but i didnt feel well, so i tested only to find out my tsh got worse.  

The only thing i take with the thyroid meds is my ambien.   i space it apart by about 30 mins.

There has to be an answer somewhere.  All this ear ringing, wonkyness, I just some sort of relief.
Helpful - 0
535882 tn?1396576685
hang in there!!
Helpful - 0
Avatar universal
Funny you mention fistual...

I dealt with one for 3yrs....and NOT in the ear....or anywhere near my neck...

BOTTOM...
Helpful - 0
393685 tn?1425812522
Wilson's syndrome.
Helpful - 0
393685 tn?1425812522
Intestinal toxcity. You might find some relief and stability working on your intenstines and getting the GI track in order Bruce
Helpful - 0
1139187 tn?1355706647
It cant be wilsons - my labs are not normal.  Wilsons is when your labs are normal but you still have all the whackyness.

Helpful - 0
Avatar universal
Mr. Bruce, Ambian is known to cause tinnitus, not all users experience tinniutus after use, but studies show that people can develop tinnitus.  I know for a fact many users of psych meds/sleep aids develop tinnitus.  For some it took up to 5 yrs for the tinnitus to resolve, after completely stopping medication that caused it, there are many causes of tinnitus, first step would be to consult with ENT.  

As for T4 med, I am going in a completely opposite direction, I went from 200 > 225 > now down to 150,.  My FT4 jumped off the scale with .25mg increase.  I had TT too.  Wishing you well.  
Helpful - 0
215461 tn?1331862765
I just thought you'd like to know my ears have been ringing a week. It only lasts for a few seconds at a time but yeah, it's here.
Helpful - 0
1139187 tn?1355706647
dannie,  do you think you are hypo?

I stopped the ambien for about a month and got no relief.  And its not listed as one of the side effects :(
Helpful - 0
Avatar universal
Yes, tinnitus can really sux, I've had it for nearly 6 yrs, it began after my last dose of benzo, and it continues on with hormonal imbalance.  Guess one can say, I've learned to live with it, tune it out.  Cool thing is, levels went from roaring to mild/calm over the yrs.    

Accepting can bring comfort, help manage through.  Eventually our symptoms will no longer plague us :)  
Helpful - 0
215461 tn?1331862765
Supposedly I'm "normal". Others have said my free t3 is still too low in range. This is probably the most normal my labs have been for a long time though. I am feeling worse.
Helpful - 0
1139187 tn?1355706647
I just got back from walgreens and talked to my friend who is a pharmacist.  She says she has NO ONE that gets over 200 MCG t4 prescribed and was taken back that I am on 255 MCG with a tsh of 35.  
Helpful - 0
535882 tn?1396576685
sounds like a conversion problem. have you ever tried to cleans your liver. it might be liver damage from years of drug use. try a OTC product that helps your liver like milk thistle.
Helpful - 0
1139187 tn?1355706647
ON this 255 mcg t4,  i take it and then 4 hours later i feel like i have a jet engine in my body i have so much energy (too much)  as the day wears on, it wears off.  BY about 7-8 pm the ears start ringing and i crash.  There is no middle ground.  its either too much or too little

also i take my meds at night, and i test 11 hours later  (take at midnight, test at 1pm ) etc.  This should be okay, right?
Helpful - 0
535882 tn?1396576685
sounds like adrenal issues. do yopu drink alot of water?
Helpful - 0
535882 tn?1396576685
do a liver cleans. and adrenal support. help with benzo detox. and thyroid conversion.
Helpful - 0
Avatar universal
I don’t know how you take Ambien…I tried it two years ago when the insomnia started and it lit me up like a Christmas tree!  My eyes dilated to the size of dinner plates… I thought I was back in college! ;) My doctor called me back in and verified I had some type of neurological reaction to it…needed to say I cannot take it.

My neighbor sleep walks on that stuff too…
Helpful - 0
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