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Avatar universal

new thyroid patient-need support

Hi - so nice to see a site with so many people helping each other, I need some of that!  I'm a 49 year old stressed out single mom.  A couple of months ago I noticed a lump in my neck, had a FNA and came back as benign hemorrhagic degenerative cyst.  Then  I noticed another lump on the lower right of my thyroid (didn't even know much about the thyroid before this)(other lump is upper left) my doc. looked worried and said I needed a radioactive scan but I found a very good endocrinologist , got an ultrasound at his office and was told the cyst looked ok but the lower lump is solid and either one large or two lumps together about 3mm by about 1.5mm, plus another small nodule.  He said I had a multinodular goiter (isn't goiter a Yiddish swear word? :).That tech did a FNA with 3 needles.  

I'll get the results sometime next week but in the meantime I'm worried, it's all I can think about.  I know that the chances of really bad news are minimal - read lots of literature, but it's not like talking to real people who are also dealing with this.  The only person I have known who has had a thyroid problem was my sister's mom-in-law who last October was diagnosed with thyroid cancer and she died in November!  I know that it was a very rare form of cancer, but it scared me then and I didn't even know I had a lump then!

I have also had hip/leg problems that started about 10 years ago (after a very stressful year).  I thought it was sciatica, I had trouble walking but with chiropractic care got a lot better and I was walking fine until fall of 2006 when I had trouble getting from sitting to standing, with a lot of pain in left groin/hip. After being told I had a ganglion cyst in the acetabulum, possibly torn labrum in the hip joint and osteoarthritis I was told I needed hip replacement, another doc then said he could fix the problem with arthroscopic surgery and bone graft.  Had surgery Dec 2006 - not a great experience, could write a book titled 'never have surgery on Friday afternoon' but that's another story!  Have not been able to walk well since the surgery - lots of pain in both legs - upper thighs and groin and knees.  Also developed slight seperation in right AC joint (shoulder/clavicle) and pain in upper arm and hand at times.  

I have been to many lots of alternative therapy people.  An OMD (oriental MD) that I have seen said I had exhauted adrenals and we discovered that I had an infected tooth which I had removed in January, probably had been infected for at least 4 years when the crown was redone, original root canal done 20 years ago.  I have also, on the advice of my acupuncturist, had all my amalgam fillings removed in the last few weeks (9 big ones - been there many years).

So, I am wondering has anyone (who was able to get through this epic) had similar symptoms because I am thinking that all my 'stuff' might be connected.  And, has anyone related thyroid issues to dental infection/mercury toxicity?  And....is surgery or radioactive goop the only way to heal - neither sounds great.  

FYI: labs are:T4- 7.3, t-Uptake - 33.0, Free T4 - 1.0, Free thyroxine index 2.4, TSH - 1.29, Thyroglobulin Antibodies - <20, Thyroid Peroxidase Antibodies 33 (reference range on last one <35, new doc took another blood draw to test that one again, don't know result yet).

One more thing: the lower lump bothers me I feel it most of the time and esp. when I swallow or have to shout at my son, ha ha - true though! (He's 14 - has iPod, video games - you gotta shout sometimes, nice kid though).

Thanks sooooo much to anyone who managed to read through all of this, I appreciate your time.  Hope you are healthy - me too!
21 Responses
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393685 tn?1425812522
Wow -- bravo on your post. You are very smart and checking all your options. I commend you for being a single mother and going "outside" the box for help. Oriental medicine is very complex and insurance is not a bit helpful.

I have done some reading on the dental filling issues and from what I have researched - it does pose a hazard to our endocrine systems. I have have been tempted to start removing those old fillings too - but at this time I have serious thyroid related things I need to get fixed. Unbelievable on the infected crown for 4 yrs. I never knew something like that could not be a bother for so long.

As for your ranges on the thyroid - I only wish I was at your TSH. For the solid nodule - what did the doctor Dx this as?? Was there any mention of papillary carcimona? Not panic - it is just a question? WIth the goiter I heard (I never had one) that thyroid medications can shrink them. Was that told to you? I would assume since your TSH is great - meds may not be the way to go though.  Very complex.

I do not know the sciatica Dx - I would imagine a bone issue or joint due to chiro care.
HAs any levels of calcium been done?

Sorry if no help -  but your story is very interesting. i will watch this post and see what others think.

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Avatar universal
i have wondered about the fillings too. i have 7 amalgams in my mouth for about 20 years now. what information have you foung out about regarding the mercury? i dont want to have to replace my fillings at the same time if they are contributing to my illness....i may need to reconsider.
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Avatar universal
You are an angel for reading and replying - just that made me feel good, thank you!  I have to wait to see the endo doc next week to get the biopsy results on the solid nodule - hopefully it's OK (prayers welcome).  I have have had a bone density test and that's fine.  Most of my blood work/cholesterol/blood pressure etc. comes back fine - I always thought I was so healthy!

As far as the dental stuff goes the infection in the tooth was low level but chronic - when the tooth was pulled the post was sticking out of the tooth and there was a black home where the infection waas draining into my body (hope you're not eating dinne). The OMD told me that it had caused digestive issues, swollen spleen etc. and that it was better after the tooth was out.  I would love to use only alternative therapies but recognize the need for MDs right now.  I think a blend of the two would be good.  You are right it's expensive though - the plastic cards are bearing the burden right now - hopefully I'll get super healthy and energized before too long and can pay them off before that gets me down!  If you research online mercury toxicity you will want to get that stuff out of your mouth.  I am lucky to be in San Diego, was able to go to Tijiana Mexico to get it done super cheap and with a lovely holistic dentist - which is hard to find here.  Don't know if I answered all your questions but once again thanks so much for your concern.

Are you on meds?  What are the sideaffects?  I am so scared of meds, I only noticed the choky feeling thst I now know is a lump after taking an anti-inflammatory for the leg pain (Voltaren) did research on that after and found a few issues with it.  Only take occaisional Motrin now - prefer no meds at all.

I shall send thoughts of wellness and perfect health for you!  Am reading Louise Hay - You can Heal Your Life, faciniating!  I do think thought/beliefs have an impact and am worried that stress and some depression influenced my biology along with the toxicity of the teeth etc.

Promise to not always be so long winded.  Just grateful for all of you!
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Avatar universal
Thank you for response.  Re: Dental Amalgam fillings - there is a book called 'The Great Dental Deception'  they have a website of the same name - very eye-opening.  Here's my theory:  mercury makes up approx. 50% of amalgam fillings and heat, friction from eating & brushing releases mercury vapor into the mouth this then is absorbed through the tissues and has the ability to cross the blood/brain barrier so I figure that it affects the pituitary gland and the hypothalmus which are in the brain and are responsible for issuing orders to the thyroid (via hormones and electrical impulses.  Basically mercury is supposed to be an excitotoxin meaning it can affect nerves - many have said it has a direct link to MS and Parkinson's - but if it gets into the brain who knows!

The good news is that if you get the fillings out (with proper precautions) you can then start to detox at least some of it - I'm waiting for my accupuncturist to get some stuff to help with this that is made from cilantro and chlorella in a form that can also cross the blood/brain barrier and escort the nasy mercury molecules out!  There have never been any scientific studies that have proved mercury to NOT be toxic, yet plenty to show it is.  Also if you have other metal in your mouth like braces or bridge (I have since the extraction in Jan) it creates a battery like effect releasing more mercury!  I started the filling removal before i really knew about the thyroid issues otherwise probably wouldn't have done right now (hours in the chair - no fun) but I'm glad I have them all out now.  Hope this was more helpful than scary!  Knowing perfect health for you!
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168348 tn?1379357075
SVETA is the screename of somebody on the board who had severe leg pain .. I'm not sure where's she's gone these days .. hmmmm ....

WELCOME to the board!!!!
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393685 tn?1425812522
Well I just posted about a 10 minute thread and it vanished. Yes I am on thyroid meds. I had the RAI in 2004 and have no thyroid. I am on the natural method of Armour not synthetic thyroid meds. I almost died on Synthryoid- I can't absorb the T4 into T3.

But I hate meds to. I always did. I am obsessed I suppose with the natural thing and have for sometime. More so now - than ever . But even on meds to keep me alive - you can still get healthy too. That took a while to penetrate this brain!! I fell of  the "natural" train for a while - but I am slowly riding that again. :) There is a cool site on BRT. It is using you Body Restoration Techniques to live well. Started that a while ago and find it facinating. and the health food store here knows me well.

Mexico to get those nasty fillings out?? Cool. I live in the Midwest so no saving dough here for that procedure.

Keep me posted on your results. Take CAre
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Avatar universal
thank you for the info i will look into it for sure. i am in your neck of the woods - escondido....keep us posted with your results.
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Avatar universal
LOL !  Actually, I was thinking goiter was a gaelic word for, like 'you're a pain in my...you know what.'  But I like your definition better!  Oy.

Thanks for sharing.  Hope you find the help you seek.  
Helpful - 0
Avatar universal
Was going to ask some ?'s re: meds and thought I'd look at your info instead, posted a note on your journal.  You are a strong lady and I appreciate all you went through and the fact that you can share and help others.  

I have never heard of Body Restoration Techniques - but it sounds intriguing - will try to find the site, thanks.  Take care.
Helpful - 0
Avatar universal
Wow - Escondido almost a neighbour, I'm near UCSD and have a sister in Scripps Ranch.  If you ever need any info on TJ dentists I can help if you decide to do it - it cost only about 1/4 of the price for a holistic dentist here!  Worth the extra effort.   I'll also post the name of the detox stuff when I get it and keep this site posted on that issue.  I also red that 200mcg of selenium help - planning to go to whole Foods to get some of that tomorrow - anyone had any help with supplements?  I did read about coconut oil being beneficial and got some about a week ago, used it for cooking and on my toast and had 1 or 2 tblsps in a cup of hot water - guess what even with all that fat I lost a couple of pounds!  Tastes good too.  I read that because it's a medium chain fatty acid, even though it's saturated it is easily metabolised and creats energy, revs up the system a bit.  Also read that broccolli and cauliflower are not good for the thyroid raw (who likes 'em raw anyway)  but hopefully ok cooked.

Forgot to mention in my original post that after eating fish with cashews on it in a crust my lower lump seemed to really 'flare up' or be more bothersome - does that mean anything to anyone or is it just a coincidence?
Helpful - 0
374933 tn?1291081784
No ofense to anyone, but I don't buy the Amalgam fillings thing. My wife works for a dentist buddy of ours. He has never heard of a problem other than needing replaced because they were ugly or fell out. He's been a dentist for about 35 years.

He does warn about a tooth getting infected while your immune system is compromised.
Just my two cents. I'm sure that there is other evidence.
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Avatar universal
No offense taken - most dentists don't know much about mercury toxicity - where are they going to get the info from - not the ADA, they are afraid of lawsuits because they have said it's safe!  But, if they are using amalgam it would be in their interests to not put their heads in the sand and accept medical establishment afterall the 'establishment' once thought it was crazy to think that the earth was orbiting the sun not the the universe revolving around the Earth.  You might want to let your buddy know that autopsy results in Sweden showed the pituitary glands of dentists held 800 times more mercury than non-dentists.  Also in 1994 the University of Munich evaluated tissues of babies who died from SIDS and found their tissues correlated with the number of amalgams in their mother's mouths - yikes! Germany issued an advisary against all amalgams in women of childbearing age.There's a lot of scientific studies on this  - but there is not great access to the data unless you really look for it.  Also there is rarely any interchange between MD's and dentists - when is the last time you went to the Dr. for something and he asked about the health of your teeth?  They are in your mouth and a significant part of the GI tract -- food for thought (excuse pun).

BTW - What's this TGIF deal?  Did I just drop in on the right night?
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Avatar universal
Hope my last post didn't sound rude or 'preachy' to you - not my intention.
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374933 tn?1291081784
Yeah, Fridays. They've been like this lately.
Must be cabin fever for the cold weather climates!

No doubt about the studies. I'm the type that thinks no matter what you argue, there is always another side. We're all gonna die from something.....it'd suck if you obituary said you died from bad teeth!
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Avatar universal
That was funny -- maybe that's the reason we don't hear about it!!!
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427555 tn?1267553158
That is interesting about the fillings. A few years ago I changed dentists and he replaced several fillings.Nov.2005 he said I heeded a root canal.  I choked during the taking of impressions and literally thought I was dying.  Didn't know it at the time but I had 5 growths pushing on my esophagus, the largest was 4.8cm.Shortly after that episode I asked my GP to look in my throat to see if there was something there.This all led to xrays,ct scan etc. and thyroid cancer was diagnosed in Mar.2006.I was shocked because I never felt sick and blamed being tired on normal life being busy.It is just puzzling where this cancer came from and that's something else to think about.Good luck!
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425199 tn?1313068997
First, welcome!  This is a wonderful place for information and support, as you have clearly seen!

I had my FNA done a month ago, and waiting for the results was maddening.  I lucked out - my surgeon called me 36 hours later with mine.  I'm betting that's a once-in-a-lifetime occurrence.   =)  

I wish you the best of luck, and keep us posted.  
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393685 tn?1425812522
I agree with you on the mercury fillings - CarMan - please I don't mean to be a pest - but I do see potential dangers after looking into that - it did have some mind blowing research on the dangers. It does go a bit overboard and some should maybe be taken lightly. I don't believe metal in anyform should be ingested - but the more processed foods and pollution we ingest  - the microwave injestion - floride water mixed with bleach - and excessive enviromental radiation- the more our bodies are rejecting and becoming ill.

If you are looking for supplements for a thyroid problem (and you have had NO RAI - surgery- or totally dependant on medication to function) there is assistance out there proven benificial. Cocoanut oil is very publicized but kelp pills - Black Cohash tea and honey are helpers too. It depends on your thyroid condition which will benefit you. You have to remember though - if you are taking a thyroid med and start dabbling with these natural supplements - you will change your levels and they are not easy to adjust as you know.

If you would like ( maybe you have seen it) try www.earthclinic.com. Lots of holistic therapies there. I can not stress enough though if you take these things into your own hands and try some things you could become more unbalanced and require longer treatment. You sound very sensitive with your symptoms - so watch for changes. and document what you do - how much and what you feel like each day.

Thanks for the vote of strength - I have fought a battle and a new one is beginning - but I have my buddies here if I get caught in a snag. :)

Everyone has a thyroid he// story here and each one brings many avenues to go down to help make a situation less difficult.

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Avatar universal
Thanks for the helpful advice.

You mentioned BRT yesterday so I looked up a practitioner here and went to see him today, quite amazing!  He does another therapy called B.E.S.T. which blew me away!  He is also checking my adrenal function (saliva test) since the adrenals have a major impact on the thyroid - I know they are exhausted anyway but we'll see how much and what to do about it.  He also recommended a gluten free diet and gave me some info. from a Dr. Berg about a thyroid/liver diet so I'll try that.  Giving up bread is not easy but a lot better than RAI/surgery etc. so I'm really hoping to avoid that - fingers crossed.  He also confirmed something I already knew - that stress is a major cause of all this imbalance.

Has anyone got better from all this thyroid stuff with alternate therapies, diet etc?

Thanks again for leading me to the guy today - never would have even known about him if not for you!  His name is Dr. Jason Kart - lovely guy, kind and very helpful.  He also was anti-amalgam - I think most natural based healers are.  I defintely think there are huge prices we pay for all the environmental toxins, drugs pushed down out throats, stressful lives etc.  There is more cancer today than ever, more brain/nerve issues (autism) - very scary.  I am trying to eat as much organic food as poss. and use healthy cleaning products.

Sending thoughts of health and healing to you.
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393685 tn?1425812522
So glad to give you the information -- it is awesome yeah??

BEST - hmmmm brief me some time.

Please....please though as much as it may sound like a miracle - the thyroid is a tricky y little thing and will snag you any chance it can. If you ignore the medical side and solely concentrate on the holistic side. It can jump back and bit you hard.

Blood levels and ranges are vital and get them checked regularly until you see a consistant pattern of normalness. (without meds)

Then I suppose call it remission, you should be in a position to maintain yourself in a different way. This should not be your only source of treatment until you are at a normal TSH for at least a year.

Good luck and see earthclinic.com
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Avatar universal
Points well taken, thanks.  I do have a good endo - lots of credentials and (most important) seems really caring, actually listened to me and didn't rush out the door asap!

Can't even remember what BEST stands for now, something like Body Emotional synchronise..(?) Testing -- basically measures which stressors/emotions are creating pathways in the body that are not healthy and then re-programming the body with a word and number that opposes the trigger and relieves the hold the other had -- sounds weird i know but whatever it does I came out of there much more relaxed at the least.  Plus it's got no bad side-effects!

If i have to take meds, have surgery etc. I will, just want to do whatever I can to avoid it if possible.  

I'm off to earthclinic now.

You are so helpful, thanks
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