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687079 tn?1230948612

palpitations and rapid heart beat with hypothyroid?

hi, my tsh is low normal and my t4 is very low at .54 - i have been getting sudden onsets of a rapid heart beat and lots of palpitations - i am not hashis or graves, endo is still trying to figure out why i am hypo at all..... i am on synthroid 50mcg. these symptoms are not any worse than before i started the medicine so thats not it...i am wondering if anyone else has had these rapid heart rates and palpitations with hypo? also i get really crabby all of a sudden when i get this,  my heart checks out fine at the cardiologist and endo says hypo dont cause heart palps ...
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Avatar universal
I forgot to say as I increased my synthyroid dose my symptoms seemed to go away- I felt much better. Less heart palps,anxiety, tenderness neck area. Then I pushed endo to try armour.... big mistake for me.
  My heart rate went thru the roof, which was followed by bad anxiety. Endo made me stop thyroid meds for brief period ( ? hyper/T3) and I am titrating back up VERY slowly and am now back on heart meds...
  GRrrrrrrrrrrrrrrr.... stupid me!!! What works great for some does not for others!!!
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Avatar universal
I have had heart palps both hyper and hypo and like you, thought it was from being hyper as I was dx with Graves and Hyperthyroidism before RAI 7 months ago.
I now know that heart palps comes with BOTH lol.
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Avatar universal
smilerdeb,
I read your profile and saw how much better you are feeling since your RAI . I especially liked the part where you have sooo much more energy and can go out without anxiety.!Congrats  to you... we are all so happy for you!!!

The dr. says I am just borderline low.... but some days I feel SO bad... and then it gets allittle better... unfortunately the symptoms come back with a vengence. I get so tired of living this way...

If you have any tips on how to hang on.... pass them along to ALL on this post. This is SO frustrating... I want a RAI too or surgerically remove the remaining half of my thyroid... but end this "heck" ----please drs.!!!
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Avatar universal
I guess that when I was first diagnosed, I was as much in the dark as a lot of people are.
My Sister has Graves but I dont have anything to do with my family (long story) so what I learnt, I had to learn on my own back.
I alienated my kids, my friends with the 'Graves Rage' before RAI.
I went from Hyper to Hypo in 2 weeks flat from large doses of anti-thyroid meds and continuously lived off Xanax and Beta Blockers.
This contined for nearly a year after diagnosis and then one day (after 3 episodes of Atrial Fibrillation in 2 weeks) I decided that I had...had enough.
I stormed into the Doctors and told him that if he didnt get my thyroid taken out, I was going to get the Butcher to take it out.
I look back on it now and feel embarrassed by that statement to him, for the times I told him I had lost all faith in him and for all the times I was a complete b***ch.
It was then that I was told I couldnt have Surgery as it was too risky.
3 weeks prior to RAI, I also discovered my whole thyroid had cancer.
RAI was done end of June 2008 and boy was I scared.
I was scared of the unknown......
After 5 weeks I was Hypo.
I had a thyroidectomy done in September 2008 via keyhole where I was awake for the proceedure and it was done with 2 epidurals in my neck and a small injection to make me drousy. Full anaesetic was too risky for me as I was born with a heart murmur at birth which was 'innocent' until diagnosis of Graves Disease.
After the RAI and the Thyroidectomy, I was severely depressed from all that had happened prior to RAI that I decided that if I could learn all I could and manage my own condition and hopefully persuade my Doc to work with this irratic woman (me), then half my battle was won.

I didnt like the person I had become.I was angry, I always cried, I got frustrated because my kids didnt understand.
NOBODY understood (know the feeling?). I was sick on the inside yet on the outside I wasnt.
I was angry with myself for being Agoraphobic for 26 years and all the years I wasted (another story) and decided that I wanted my life back and the only person who could give me that...was Me.

So after numerous discussions with my Doctor (including telling him that if this was life, I didnt want it)...we started to work together.
He scoffed at info I took in every week that I collected off the net but eventually gave in to my demands and we worked together as a team.
After RAI I was determined NOT to crash Hypo bad so we agreed I would have weekly bloods until my TSH hit 6.0. This took 5 weeks post RAI.
I continued getting weekly bloods as I am super drug sensitive and Thyroxin works straight away for me (within 3 days).

I started at 50mcg then 2 weeks later, 62.5mcg, then 2 weeks after that 75mcg.
Slowly the thyroxin started to kick in and I found I didnt need as much.
I would 'log' all my symptoms everyday and what dosage I was on.
So when 75mcg was too high , we took it back down to 62.5mcg.
When that sent me to the top of the ref range, we took it down to 50mcg again then started again but instead of the same dosage everyday...I took 62.5mcg Mon/Wed/Fri and 50mcg the other 4 days of the week.
Since October we have been juggling my meds and have now come to a stage where I know what I am ..either heading heading hypo or hyper.
I went a little high (not out of range though) a few weeks ago and knew to cut down the meds and now 2 weeks later, I am increasing again SLOWLY.
In order to get everything right and levels stable to where I FEEL good, baby steps are needed and a LOT of PATIENCE.

I have since come off the Xanax and in October 2008, I started  fulltime studying course and went to an Aged Care Facility to do my 'placement'.
As it turned out, I was offered the position of Medical Administrator 3 weeks ago and although I was scared, I accepted the job.I am still doing my 'distance course' in Aged Care Acute Dementia and I thoroughly love my job.
My boss knows about my past with Agoraphobia and Anxiety, about my thyroid (or lack of it) and today I went for bloods whilst in work hours with her approval.

Dont ever give up as I have always said that there IS light at the end of the tunnel and yes, my journey is nearly over.
I am not a strong person...inside me is a very frightened little girl but deep down inside I wanted my life back.
I found myself not being able to go even an hour without mentioning the word THYROID.
I dont do that now.
I 'forget' I have no thyroid until I may get an odd ache or pain and then I think...'ok, my levels must be off' and then I follow up on them.
It has taken a lot of hard work, a lot of frustration, a lot of anger, a lot of tears, a lot of feelings of despair....but......

I am happier now than I have been in years.
My kids are happier and one even said to me..'Mum, its nice to have a conversation with you without you biting our heads off'.
It wasnt until my eldest said that...that I realised just how desperate I mustve been.

I wont lie to you....yes things have been hard, times been tough and times where I felt I wasnt going to get through it all.
But I did and so can so many of you guys.
My mentor here is AR-10, he gave me a lot of hope when I couldnt see hope and I hope one day to repay that kindness.

The secret to recovery is.......Baby Steps and be kind to yourself.
Start saying No to people who demand your attention.
Start doing things for YOU.
If you cant do something one day...then dont do it.
Dont push yourself too hard.
There were many times I stayed in my pj's all day and you know what?
I didnt care what people thought.
But most of all remember that we are all only human and yes, we do make mistakes but it the mistakes that make us a stronger person.

Sorry...didnt mean to write a book lol (I have a habit of doing that lol )

My advice is.....research, research , research until it becomes an obsession like it did for me. Dont take everything as Gospel as everyone is different but 'take in' the important info.
Elliminate symptoms and strategies one by one ....slowly with baby steps.




Helpful - 0
Avatar universal
Hi all!! Wish me luck, I started toperol XL ( just 12.5 mg) for tachycardia, svt, heart palps. It seems to be helping. Woke up last night and took my pulse... only 75, which I have not seen for over 2 years. Usually 95-110 resting. It almost felt a wierd scarey to be slow but I have to readjust my thinking. Also laying down no major heart thumping.. wierd too... but a good wierd.
   I hope this helps someone else out there.
Helpful - 0
Avatar universal
Is that a slow release beta blocker...sounds like it?
Just make sure you dont cut the tablet as it is designed to be slow releasing.
It is heaven when that heartrate slows down, isnt it?
I know I felt strange when my tachycardia went.....almost as if I didnt have one.
But I was on Inderal and at one stage 80mg a day.
Beta blockers can make you a little dizzy as they lower not just your heartrate but blood pressure too so take it easy and dont stand up too quick.
Great to hear you have some relief from the fast heartrate.
Keep in touch.
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