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Bizarre Symptoms With No Diagnosis/Cause. PLEASE HELP!
For over 6 months, I've experienced some bizarre symptoms which are probably related. There is no supposed cause, even after I've had a CT scan, an EEG and visits with two neurologists. They've found nothing wrong (ie No brain tumor, no meningitis, no poison, no neurological abnormalities). I know for a fact that all these things are real and have happened to me. Family and friends have seen my symptoms in action. I just need to know what I'm dealing with and how to make it better. This is beginning to affect my quality of life, and I know I could have it much worse, but I still don't want to feel like this. These are the symptoms I have and how they manifest in me.
Twitching/flailing/tics/possible partial seizures: This comes on without warning and can be made worse by anxiety and agitation. It's always painless. It's worse on the left side of my body, but may affect my whole body.They last from a few minutes all the way to several hours (but that's very rare). I often feel the need to slam myself onto my bed and flail my arms/legs, but that has yet to prove helpful in relieving this. What I mostly experience are moderate twitches and wobbly moments: much like I have vertigo, but had not been moving.
Staring/Spacing: I stare at random, and I see everything in front of me, but it doesn't register that I'm looking at anything. I was staring at a blanket and pillow on my bed a while ago, but they weren't a blanket and pillow- just a fuzzy pink thing, a smooth white thing with a greenish blue thing behind it (my wall).
Weakness/numbness/spark-like pain: This is worse on my left side especially in my lower arm/hand. My muscles feel abnormally weak: weak to the point where I don't want to pick anything up because I can't get a strong enough grip and can't judge the weight of the object. When I regain enough feeling, I get these little shooting pains starting from the inside of my elbow and ending at my fingertips. They feel similar to the little zap one gets from static electricity. Also happens on the left side of my neck, jaw and back.
Dizziness:I turn my head and I feel it a few seconds later. My head often feels heavy and is hard to hold up. At worst, my head seems to be drifting away from my body.
Left leg wobbles/jerks while walking: This doesn't throw off my coordination very much and isn't painful, but it's like I'm balancing on one of those exercise balls with a flat bottom. I have yet to fall, but I don't know when this will come on, how bad it will be, or when it will go away.
Forgetfulness/Short-Term memory loss and confusion: This could be a result of my ADHD, but I often forget what I was saying or doing right as it's happening. I may remember after a few seconds, a few minutes later, or just forget what I was doing and move on. I have a hard time communicating during this- I will say something totally off topic and/or have difficulty finding even simple words. I occasionally say things unrelated to the task "I need to find my kitchen" (said once when I was looking around my house for my cell phone).
Fatigue, even after activity for relief: I get hit with massive waves of fatigue, and despite stretching or sitting up, I need sleep. My eyelids drop, I fight to keep them open, but fail. During these "naps" I'll be out for an hour (often longer) and upon awakening am still fatigued.
Unusual headaches: These are not what most would think of as headaches. They're not so much sharp pain as they are squeezing pressure. I get a dull aching, (sometimes with a moderately sharp throbbing pain), primarily on the left side of my head (from my brow-bone to the base of my skull). It feels like my head's in a vice, but am only squeezed enough to feel pressure and not extreme pain. Often feels like my head is rushing/full of liquid, and it's about to burst. These ccasionally affect both sides of my head: I feel like a huge hand is wrapping around the back of my skull and squeezing forcefully.
Hypersensitivity: I have acute senses when compared to most people (my vision is the only exception). This will become far worse when I'm stricken with a headache. Example: Right now, I have one of these headache things, and the light of my computer isn't bothering me, but the sound of typing is horrifying.
Feeling the need to be squeezed/crushed: This one is fairly new: I have times where I will bind myself inside a blanket or bed sheet, and still feel like my body has no gravity to hold it together. I've asked my dad to give me bone-crushing (by regular definition) hugs/squeezes, and I feel no better. I would do anything for relief of this, even let my roughly 220 lb dad walk on my back.
Significant decrease in appetite: I wouldn't mind this so much, but I never want to eat anything anymore. I only eat when my stomach is clenching up into my throat, my tounge and fingertips feel tingly and I feel as though I'm going to faint. At the worst, I feel too nauseous to eat anything. That has become a "normal" thing for me recently.
Left side of mouth/lips seems to be loose, may droop: Another new-ish thing. I notice this only sometimes, but when I do, my lips feel like they fit more loosely on the left side of my face. I have taken pictures of this, and I look like I received Novocain and am still trying to regain feeling.
I am a 21 year old female who has been previously misdiagnosed with (and thus, uneffectively treated for) Bipolar Disorder and Borderline Personality disorder. I am now being treated for ADHD and related anxiety/depression.
Twitching/flailing/tics/possible partial seizures: This comes on without warning and can be made worse by anxiety and agitation. It's always painless. It's worse on the left side of my body, but may affect my whole body.They last from a few minutes all the way to several hours (but that's very rare). I often feel the need to slam myself onto my bed and flail my arms/legs, but that has yet to prove helpful in relieving this. What I mostly experience are moderate twitches and wobbly moments: much like I have vertigo, but had not been moving.
Staring/Spacing: I stare at random, and I see everything in front of me, but it doesn't register that I'm looking at anything. I was staring at a blanket and pillow on my bed a while ago, but they weren't a blanket and pillow- just a fuzzy pink thing, a smooth white thing with a greenish blue thing behind it (my wall).
Weakness/numbness/spark-like pain: This is worse on my left side especially in my lower arm/hand. My muscles feel abnormally weak: weak to the point where I don't want to pick anything up because I can't get a strong enough grip and can't judge the weight of the object. When I regain enough feeling, I get these little shooting pains starting from the inside of my elbow and ending at my fingertips. They feel similar to the little zap one gets from static electricity. Also happens on the left side of my neck, jaw and back.
Dizziness:I turn my head and I feel it a few seconds later. My head often feels heavy and is hard to hold up. At worst, my head seems to be drifting away from my body.
Left leg wobbles/jerks while walking: This doesn't throw off my coordination very much and isn't painful, but it's like I'm balancing on one of those exercise balls with a flat bottom. I have yet to fall, but I don't know when this will come on, how bad it will be, or when it will go away.
Forgetfulness/Short-Term memory loss and confusion: This could be a result of my ADHD, but I often forget what I was saying or doing right as it's happening. I may remember after a few seconds, a few minutes later, or just forget what I was doing and move on. I have a hard time communicating during this- I will say something totally off topic and/or have difficulty finding even simple words. I occasionally say things unrelated to the task "I need to find my kitchen" (said once when I was looking around my house for my cell phone).
Fatigue, even after activity for relief: I get hit with massive waves of fatigue, and despite stretching or sitting up, I need sleep. My eyelids drop, I fight to keep them open, but fail. During these "naps" I'll be out for an hour (often longer) and upon awakening am still fatigued.
Unusual headaches: These are not what most would think of as headaches. They're not so much sharp pain as they are squeezing pressure. I get a dull aching, (sometimes with a moderately sharp throbbing pain), primarily on the left side of my head (from my brow-bone to the base of my skull). It feels like my head's in a vice, but am only squeezed enough to feel pressure and not extreme pain. Often feels like my head is rushing/full of liquid, and it's about to burst. These ccasionally affect both sides of my head: I feel like a huge hand is wrapping around the back of my skull and squeezing forcefully.
Hypersensitivity: I have acute senses when compared to most people (my vision is the only exception). This will become far worse when I'm stricken with a headache. Example: Right now, I have one of these headache things, and the light of my computer isn't bothering me, but the sound of typing is horrifying.
Feeling the need to be squeezed/crushed: This one is fairly new: I have times where I will bind myself inside a blanket or bed sheet, and still feel like my body has no gravity to hold it together. I've asked my dad to give me bone-crushing (by regular definition) hugs/squeezes, and I feel no better. I would do anything for relief of this, even let my roughly 220 lb dad walk on my back.
Significant decrease in appetite: I wouldn't mind this so much, but I never want to eat anything anymore. I only eat when my stomach is clenching up into my throat, my tounge and fingertips feel tingly and I feel as though I'm going to faint. At the worst, I feel too nauseous to eat anything. That has become a "normal" thing for me recently.
Left side of mouth/lips seems to be loose, may droop: Another new-ish thing. I notice this only sometimes, but when I do, my lips feel like they fit more loosely on the left side of my face. I have taken pictures of this, and I look like I received Novocain and am still trying to regain feeling.
I am a 21 year old female who has been previously misdiagnosed with (and thus, uneffectively treated for) Bipolar Disorder and Borderline Personality disorder. I am now being treated for ADHD and related anxiety/depression.
im not a doctor, but it def sounds neurological. Have they checked for M.s? if so , did they do several diff methods to check for it? tests for it sometimes produce a false negitive result. also, did you notice a change in symptoms after your add meds? some people are extreamly sensitive to certain meds, and geti unpredictable effects. How is your diet? if it is nervous system related, in addition to a better neurologist, you might want to add more vitimen b to your diet. especially fish(salmon) and kale. I have epilepsy, w/ full blown tonic clonic seizures, and my first doctor tried to say my seizures were psychosomatic . . . .so always get a second opinion, because some doctors are idiots.
No doctor has checked me for MS yet. There were no negative changes after I started Concerta, but no help for my symptoms either. I have gone off it, and still feel awful. I am a big fan of omega 3 infused food and leafy greens, but I still feel like whatever I eat, I feel no different.
MEDICAL PROFESSIONAL
Hi
Welcome to the MedHelp forum!
suffering from ‘benign intracranial hypertension’(BIH). This happens due to impaired CSF absorption. A generalized throbbing headache worst felt in the morning and last thing at night is the most common symptom but may not always be present. This headache is generally relieved on standing (consistent with raised intracranial pressure). It is aggravated by straining, coughing or a change in position. You have a similar headache. This headache is accompanied by various neurological symptoms such as dizziness, numbness, loss of vision, loss of hearing etc, all of which are temporary. Hypothyroidism, hypoparathyroidism, adrenal insufficiency are a few things I would recommend you get investigated for. These can precipitate BIH. A spinal tap is a must both to diagnose the condition and to treat it.
Other than this it can be temporal lobe epilepsy. Please discuss with your treating doctor. Take care!
Welcome to the MedHelp forum!
suffering from ‘benign intracranial hypertension’(BIH). This happens due to impaired CSF absorption. A generalized throbbing headache worst felt in the morning and last thing at night is the most common symptom but may not always be present. This headache is generally relieved on standing (consistent with raised intracranial pressure). It is aggravated by straining, coughing or a change in position. You have a similar headache. This headache is accompanied by various neurological symptoms such as dizziness, numbness, loss of vision, loss of hearing etc, all of which are temporary. Hypothyroidism, hypoparathyroidism, adrenal insufficiency are a few things I would recommend you get investigated for. These can precipitate BIH. A spinal tap is a must both to diagnose the condition and to treat it.
Other than this it can be temporal lobe epilepsy. Please discuss with your treating doctor. Take care!
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