I have been living in pain for nearly three years now. I have extreme lower back and pelvic pain. Additionally, it hurts down either side of my tailbone. I also experiences periods of nausea and don't have much of an appetite. My pelvic floor is constantly spasming which has made the muscles surrounding the area and my hamstrings tighten due to the pain. Plus, I have gained a lot of weight in my stomach, face and neck. Lastly, I've been having a lot of hair loss. My hair started falling out in clumps and now you can start to see bald spots. It's all very overwhelming.
I've seen several doctors and had many tests done. So far I have had a lower lumbar MRI, an MRI of my tailbone, X-Ray of my tailbone, several digestive system tests including two colonoscopies, ultrasound, scoped for endometriosis, injections into my tailbone and pudendal nerve, six injections of steroids into my levitar ani muscles, a Botox injection into my levitar ani muscles, pelvic floor physical therapy and water therapy.
The only thing that gave me any relief was the Botox injection. It stopped the pelvic floor spasms which gave my muscles some time to relax although, I still had all of my other symptoms. However, it's been 8 months and the injection has worn off. I almost hate to go get another injection because I feel like it's just masking part of the problem, not actually treating it.