swollen legs, and petechiae

[ccgar]

I have been suffering for about 10 years with severe swollen legs that gets so painful with petechiae, that can get so red it looks like I have been burned.  At first many years ago I was diagnosed with Sjogrens disease.  I have extreme pain that hospitalized me. I had some of the symptoms, dry mouth, eyes, also thyroidism.  I was diagnosed by a long time rheumatologist with lupus, for with I was treated with steroids and methotrexate.  Neither really helped.  Now they have me taking  Rituxan infusions.  I recently was told by a medical student (This is what I deal with  my insurance), that I do not have lupus.  He said this as if I was a liar, I did not self diagnose, it was what I was told, and was in my records.  He said that my blood tests do not show that I have this.  This is awful for me, because it took a long time suffering to diagnose the lupus, and was a relief at least to know what it was.  And what about all the steroids, and medicine, chemo I took, if this is wrong?

[SassyLassie]

Hello~

If a medical student told me that, I would demand to see a graduated doctor and ask him what the heck is causing your issues. You know your body and the previous diagnosis, I do not think that the student had any right to insinuate you were lying.

Definitely see your regular GP if you have one, and try to get to the bottom of your suffering.