Hi all, I feel I should say a little about myself before continuing. I'm 37 oh yeah 37! (sorry I just can't believe I'm 37, ok I've got that out of my system for now, lol)and for the last coming up for 9 yrs now I've not been able to work, you should understand that it's got to be bad if I can't work.I hate it having no money and having to rely on others it really takes away some of your confidence, oh well that's life I supose. Anyway when I was well I was working away from home, having fun like you should while you can and then I started to feel severly dizzy, (no not ditzy, dizzy lol) faint and physically weak. I carried on for a long time over a year to be precise struggling to deal with it all.Infact the last year I was working I was off work more than I was there.I was lucky to have an understanding boss otherwise I would have had to finish a lot sooner. It's so like time as stood still but ofcourse it hasn't, It's my life that as paused and ofcourse everything around me keeps on moving foward people living "normal lifes", I'm sure there are other people who feel this way, do you?
The dizziness, I call it dizziness but it's more than that it comes at different levels and at it's worst it's unbelievable how bad I feel. It's as if I'm going to faint my limbs become next to useless so weak and they won't move properly feels like they are on springs (when I try to move them one way they go about a centermeter then spring back the other way) like I'm having some kind of fit or similar, as you can imagine this is really frustrating. Basically when it's bad like this I'm useless, my body is useless I can't do anything even getting to the toilet is impossible. With the help I get from people around me I cope with it but only just, it makes things difficult not being diagnosed even though I've had nearly 9yrs worth of tests as yet nothing as been found but I still have hope, well you have to don't you. Also at my worst I have been physically sick but this hasn't happened (the being sick)for years I think it as something to do with me having learnt over time how far I can push myself before I end up in bed for up to 2 wks as I have in the past, although I still end up ill in bed more often than I'd like, it doesn't last as long as it would have when I used to push myself too far.
Does anyone else have these symptoms or anything like them wether diagnosed or not? Can I just say the inner ear problem as been ruled out.Just had to mention that as many people have asked me to consider it, been there got the t-shirt and wore it out if you know what I mean.
Well this is my first question post on forums not to bad if I say so myself, lol yeah it's got to be better than my first two comment posts.
Well this is me closing for now. Ps.any positive feedback will be helpful thankyou