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Can Anyone Give Me Some Suggestions On Cystectomy (Bladder Removal)
I'm scheduled to have my bladder removed on October 17. I have Multiple Sclerosis, which causes my bladder to not correctly work. I wear Depend underwear every single day, but they leak onto my pants. It's very frustrating, because I can go to the grocery store & I can get a sudden urgency that causes me to wet my Depend. I'm constantly concerned that my pants will become wet. 90% of the time, my pants will become wet. On my way to anywhere, I, 85% of the time, have to turn around to go back home due to wet pants. Needless to say, I have become somewhat home-bound, for fear of soaking my pants. I have to protect anything I seat on.
Also, I have chronic Urinary Tract Infections. Those are possibly due to the bladder holding urine, but when I have a post voidal ultra sound, it only shows a small amount of urine. I know everyone is different & wonder if even the small amount is just too much for me. Who knows? In my May 17 Uro-Dynamics/Cystogram, a Diverticulum was thought to be found. Today, the Dr. thought it may be where my sphincter stretches & has become a huge stretched area that is causing urine to sit. I'll add that they aren't for certain.
Anyway, I've known for a year that this Cystectomy was very possible. In speaking to my husband's family, they are not supportive at all. They say things like, "I wouldn't do that!", "Oh, you don't want to do that!", "You need to do everything you can to avoid that!" They have no idea the psychological affect this has had on my during the last 10 years. Just today, after scheduling the surgery, my husband has mentioned a small amount of support for me. I think his small amount of support is due to me talking with him. I've told him that only I am capable of making this decision, that no one (even though he sees what I go through) will ever understand what I go through. My Neurologist's Nurse Practitioner fully understands and agrees 100%, with what I am saying. I also read alot of things online. However, I need to hear from individuals who have gone through this.
If you have a Urostomy or Cystectomy, would you please let me know what to expect? Short or long-term effects? Surgery expectations? Anything? Thank you! I would be so appreciative!!! Also, what can I do to strengthen my system during the next 3 months? I am diabetic, so fruit smoothies may be not be a good idea. I've been on so many antibiotics for 5 years & am concerned any infection could be detrimental if I get a bad infection.
Thanks for any help you can offer me!!!!!
Also, I have chronic Urinary Tract Infections. Those are possibly due to the bladder holding urine, but when I have a post voidal ultra sound, it only shows a small amount of urine. I know everyone is different & wonder if even the small amount is just too much for me. Who knows? In my May 17 Uro-Dynamics/Cystogram, a Diverticulum was thought to be found. Today, the Dr. thought it may be where my sphincter stretches & has become a huge stretched area that is causing urine to sit. I'll add that they aren't for certain.
Anyway, I've known for a year that this Cystectomy was very possible. In speaking to my husband's family, they are not supportive at all. They say things like, "I wouldn't do that!", "Oh, you don't want to do that!", "You need to do everything you can to avoid that!" They have no idea the psychological affect this has had on my during the last 10 years. Just today, after scheduling the surgery, my husband has mentioned a small amount of support for me. I think his small amount of support is due to me talking with him. I've told him that only I am capable of making this decision, that no one (even though he sees what I go through) will ever understand what I go through. My Neurologist's Nurse Practitioner fully understands and agrees 100%, with what I am saying. I also read alot of things online. However, I need to hear from individuals who have gone through this.
If you have a Urostomy or Cystectomy, would you please let me know what to expect? Short or long-term effects? Surgery expectations? Anything? Thank you! I would be so appreciative!!! Also, what can I do to strengthen my system during the next 3 months? I am diabetic, so fruit smoothies may be not be a good idea. I've been on so many antibiotics for 5 years & am concerned any infection could be detrimental if I get a bad infection.
Thanks for any help you can offer me!!!!!
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