Penis went numb 3 months ago and is made worse by random Orgasms

[SensationLoss]

3 months ago, I woke up with rectal pain and a nearly totally numb penis.  After a self check I found a rectal mass and immediately made a urologist and neurologist appt.  Im still waiting to see a neurologist after all this time.  Urology found a mass and set up a surgery to remove it, but wanted to wait a month to see if it went away.  Thankfully, after a month it vanished completely.  In that month, i had total ED.  I could not get aroused at all and could have get an erection.  I was leaking pre-ejaculate all day for 30 days and had pain in the penis area that came in waves and no improvement in numbness.  

After I started taking B12 and some other supplements, that ED went away.  I can get aroused and an erection normally, but am still very numb and desenitized.  It started at 95% loss, I could only just register something was touching me, even shower water was hardly felt.  After roughly 8 days it seems, I get some moderate sensitivity back and I'd say I bump to 50% normal sensation.  However, I end up having random orgasms that make me near totally numb again and I can't control it.

I will have them when I urinate and am flaccid, I will have one after 2+ weeks without any touching of the area and no orgasm and just sitting on a normal desk chair, or sitting down in the bathtub.  It seems some pressure put on the rectal area is enough to force an orgasm even when I am not erect.  When that happens, I lose my progress that I made with sensation after not touchign the area for a while.  

The longest I managed was just under one month without one and I had very slow progress to returning sensitivity.  50,maybe 55-60% returned at that point and then I had a random orgasm again and lost all of that progress.  About a week ago, I had one of those.  I went another week without and today, had another against my will and lost sensation again.  

I've had my prostate checked, its normal.  Many blood tests, not deficient in anything.  I have no clue what to do and neither do any other doctors that I've seen or spoken to.  I am at a total loss for words and need advice and help.  

[BonzoDog]

I see this was back in Feb 2018 - what happened? Did you see other Dr’s? Did it resolve on its own? Altho I have fairly decent knowledge of prostate issues, male sexual functioning, etc., I would not have had an answer for you. It sounded like some type of prostate issue to me, but then you said you had that checked & everything was fine.

Yours was one of the more unusual questions here on MedHelp & I’m very curious to know what this was. All of us - casual readers & advice-givers - can learn from others’ experiences, so please let us know what was found & how it all turned out...

[Numb_life]

Are you fine today??