Aa
Care & Attention
Hi
My Fiancee' has been diagnosed with hepatitis C this year 2009 and has also bee diagnosed with Fibromyalgia.
Over the past few years her fibromyalgia symptoms were mainly burning pain in her hips while a sleep at night.
now her hepatitis has become affective after 23 years her fibromyalgia has become far more severe throughout different joints of her body. Would the hepatitis have any reaction on towards her fibromyalgia to increase the spread and severity of her pain?
I live in the UK and she lives in Texas, USA, i shall be travelling back and for to take care of her when possible, but i have to return home from time to time. But i am very concerned about the care and attention she should receive.
being diagnosed with Genotype 1a, Grade 3, Stage 2, From the symptoms of fatigue and the shot of
Peg interferon all she may require is to sleep it off for a few days but there is no one there to encourage her to take addittional treatment, even addittional shots to increase her White blood cells.
Is it safe for her to proceed through this course of treatment from time to time without Care and attention?
What year is the new Combination treatment available in United states?
What does the medication contain in the combination treat altogether?
Many Thanks
Cliff
This discussion is related to hep c test.
My Fiancee' has been diagnosed with hepatitis C this year 2009 and has also bee diagnosed with Fibromyalgia.
Over the past few years her fibromyalgia symptoms were mainly burning pain in her hips while a sleep at night.
now her hepatitis has become affective after 23 years her fibromyalgia has become far more severe throughout different joints of her body. Would the hepatitis have any reaction on towards her fibromyalgia to increase the spread and severity of her pain?
I live in the UK and she lives in Texas, USA, i shall be travelling back and for to take care of her when possible, but i have to return home from time to time. But i am very concerned about the care and attention she should receive.
being diagnosed with Genotype 1a, Grade 3, Stage 2, From the symptoms of fatigue and the shot of
Peg interferon all she may require is to sleep it off for a few days but there is no one there to encourage her to take addittional treatment, even addittional shots to increase her White blood cells.
Is it safe for her to proceed through this course of treatment from time to time without Care and attention?
What year is the new Combination treatment available in United states?
What does the medication contain in the combination treat altogether?
Many Thanks
Cliff
This discussion is related to hep c test.
I went thru treatment alone. I had good medical care and physically I was able to do what I had to do, but, I really felt the lack of emotional support. It sounds like you are very committed to doing what you can for her. That will be a great, great comfort, no doubt. Not sure what "non functional" would mean. Will she be able to attend to her basic personal needs? Food, water, bathing, taking meds on time and such. If not, someone will need to fill in for you. If there are no friends or family available, you may need to hire someone. There are in-home care services available. I used many delivery services and did a lot of internet shopping rather than having to go out. For me it seemed like every little thing was just harder to deal with. Even having to think about it was draining. Anything you can do to see that things are taken care of, when you're not able to be there, will take that burden off her. Your support, understanding and willingness to get her thru this is so admirable. Also, this forum in a great comfort. Just to know that one isn't alone in dealing with this disease and treatment is reassuring.
Hi Sail10,
Thankyou for your reply and support!
My Fiance' has not started her treatment yet but is due to start in january 2010.
My concern was her having the occassional 4 weeks alone unattended at home without care and attention, not going through the course of treatment without a doctor.
I intend to travel back and for from the United Kingdom to Texas for almost 90 days as that is the maximum time my visa lasts. Back home for 30 Days and back over to texas again for an addittional 90 days to take care of her during her course of 48 weeks of treatment.
Having heard from her Rheumatologist that with the Fibromyalgia on top of her course of treatment for hepatitis she will be Non "Functional"
This is why i showed my concern for her being left alone with no care and attention while i am back in the UK.
take care
cliff
Thankyou for your reply and support!
My Fiance' has not started her treatment yet but is due to start in january 2010.
My concern was her having the occassional 4 weeks alone unattended at home without care and attention, not going through the course of treatment without a doctor.
I intend to travel back and for from the United Kingdom to Texas for almost 90 days as that is the maximum time my visa lasts. Back home for 30 Days and back over to texas again for an addittional 90 days to take care of her during her course of 48 weeks of treatment.
Having heard from her Rheumatologist that with the Fibromyalgia on top of her course of treatment for hepatitis she will be Non "Functional"
This is why i showed my concern for her being left alone with no care and attention while i am back in the UK.
take care
cliff
From what i can tell your asking , What should you do to care for Her .
Do what you can to keep her on the Peg and Rib . The fibromyalgia is another story , a doctor needs help her with what meds to take as not to interfear with Hep c meds .
Everyone reacts somewhat different to the Hep C meds , but most people have simular reactions . Like muscle aches , hot flashes , unable to sleep , body rashes , low grade numbness to extremeties .
Drink water lots of it , eat right , get some exercise , she needs to be on this web site for positive inspiration .
But if your asking can she proceed with Peg and Ribivarian without Doctors care . It would seem to me NO unless she can get blood work on a regular basis and understand the Blood work completely , so she can self diagnose problems . Even then she needs a Doctor to prescribe Medicine to correct the problems .
As far as medicine to help with low blood cells , a doctor will prescribe for it when necessary . A desent Doctor should not let her proceed with treatment if her blood counts are Criticaly low .
New medicines are in trails , and she can apply for them , just type in trials for hep c in Texas on the internet .
The meds for Hep - C currently ( non - trail ) are Pg - Interferon and Ribivarian , really nothing else , some say this and that about Health food and supplements , but none have any proff against Hep -C itself . Now a lot can be done for Side Effects with health food and supplements .
Hope i helped some . sail10
Do what you can to keep her on the Peg and Rib . The fibromyalgia is another story , a doctor needs help her with what meds to take as not to interfear with Hep c meds .
Everyone reacts somewhat different to the Hep C meds , but most people have simular reactions . Like muscle aches , hot flashes , unable to sleep , body rashes , low grade numbness to extremeties .
Drink water lots of it , eat right , get some exercise , she needs to be on this web site for positive inspiration .
But if your asking can she proceed with Peg and Ribivarian without Doctors care . It would seem to me NO unless she can get blood work on a regular basis and understand the Blood work completely , so she can self diagnose problems . Even then she needs a Doctor to prescribe Medicine to correct the problems .
As far as medicine to help with low blood cells , a doctor will prescribe for it when necessary . A desent Doctor should not let her proceed with treatment if her blood counts are Criticaly low .
New medicines are in trails , and she can apply for them , just type in trials for hep c in Texas on the internet .
The meds for Hep - C currently ( non - trail ) are Pg - Interferon and Ribivarian , really nothing else , some say this and that about Health food and supplements , but none have any proff against Hep -C itself . Now a lot can be done for Side Effects with health food and supplements .
Hope i helped some . sail10
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