I had the same problem with my little man. Diagnosed with silent reflux and was given renitidine and I started him on thickened formula. But he still had trouble with breathing. Oxy machines revealed his level dropped to as low as 80 but they weren't concerned as it flicked back up pretty quick. But I wasn't happy as I knew there was something else going on there so pushed for more tests. They did an xray and it revealed his wind pipe was curved and narrow like something could be pushing against it. The doc suggested a vessel in the wrong place. So he's booked in for surgery in a week to have a look at what's going on.
If you think there's something wrong with your buns, push for tests to rule out other possibilities. Better to be safe then sorry. Now the docs actually believe me they've got him booked for an MRI the day after surgery to check his chest out.
The first doc I saw in ed, tried to brush me off saying hes just congested get a bulb syringe to suck out the snot. I quite promptly told him where to go and let me see a specialist. I stuck my guns and followed my instinct and finally now am getting somewhere!
My son is having this very same issue. Since he was born he has been in NICU and all tests docs have done tuned out fine. Docs now want to do a sleep study.
Was the issue ever found in your baby's case?
My son has had the same exact experience. He is now 5 months and has been home on oxygen (during sleep only) for about 3 months. They have done every test: chest x Ray, chest ct, ekg, eeg, spinal, blood work, and everything looks normal. Did you find any answers? Any advice would be appreciated! We just want answers as Im sure you all do too.
Hi ,
My son Aiden was born natural and everything seemed fine until he went to sleep and sounded like he slept with high pitched hiccups all night long. We eventually found out that he has layrngomalacia which is something he will grow out of by 2 or 3yrs old. Layrngomalacia causes his 02s to drop while in a deep sleep as well like 83+. So since how it would only happen during deep sleep when we went to ER where he would wake up everything was normal and they would not admit him or give oxygen for home use etc. So I found my own ways of helping his o2s. Repositioning your baby helps immensely. You can elevate the bed or straighten the neck alignment. My chiropractor also found his neck was out and his 02s improved by several points... The essential oils helped too. Never use only the pure oil make sure it is mixed with a base oil like almond oil or coconut oil.. I am no Dr and did not feel like I got much help from them so I tried to help him the best I could.. Alot of the meds are for long term use like the steroids given by neb can cause major problems or damage or zantac too.. They wanted to put him on all that and we had the sleep apnea and pulse ox too. I did not see a difference. He did better without the meds but remember every kid is different and each situation is different. All I am saying is you may find better more natural ways which are cost effective and safer for long term.. I hope this helps...
Thats good getting a diagnosis makes it easier, good to hear that she will outgrow it ..good luck
I'm sure that is very scary for you. I'm glad you have the equipment to moniter it easily and closely. I'm also glad to hear that it is a temporary situation. All the best to your little girl and you.
Thank you all for your suggestions. We got discharged from hospital, apparently doctors think the low oxygen level is due to reflux. So we are giving Zantac to manage it. We got the sleep apnea monitor and the pulse oximeter at home. We never had any alarm on the apnea monitor. But the pulse oximeter shows saturation at 86-90 while the baby is in deep sleep. Doctors are also saying she will outgrow this soon.
You are very welcome, let us know hos she is doing ...
Yes, look into sleep apnea. My friends with kids that have asthma find that when oxygen levels drop into the mid 80's that this is a medical emergency. And anything below 90 for an extended period of time is not good. 88 is obviously not good. They institute breathing treatments to help. But these are kids with asthma. So, I'd definately keep on top of this. You would hate for any brain damage to occur Your daughter's shoots back up if she moves which is good but what if she doesn't? Scary. I'm sure you are a nervous wreck monitering her. Hypoxemia is her diagnosis at this point?
Thank you Margypops. The doctors have suggested sleep study. It looks like it will be done tomorrow.
They have put her on Air 0.5 L, instead of Oxygen today and her O2 Level keeps going down below 88.
Would first like to tell you I am no Doctor, I do have some medical experience , however I think you may want to ask your Doctor for his input...here's what I do know and have looked up Do not get worried until if falls below 90 even 88 is ok. If it is below 88 she will need some oxygen. Some people freak out if it is less than 94 but 94 is still within the normal range.
If your baby has "gunk" in her airways which are small to begin with,she is going to wheeze. She probably would benefit from some inhaled steroid and bronchodilator from a nebulizer. This will help with the inflammation.
You want to watch the baby lips and mouth that they are not turning blue. Good luck