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885099 tn?1243547005

Has anyone heard of a dislocated hyoid bone?????

Please, please give me some direction to head in with this!!!  My 17 yr. old son complained of pain in his neck a couple of months after he flipped over a car.  he had knee injuries as well.  the orthopedic took an xray of his neck and said he was ok.
About 10 months later my son complained that while at his bus stop something popped in his throat and he couldn't breath for a minute and was forced to place pressure on it to pop it back in.  I found it very odd and kind of brushed it off and said you're ok now so.  Then a couple of months later it happened again.  His pediatrician sent us to an Endoconologist.  He had no answer and told us to see an ENT.  We saw the ENT, he stuck a scope up through his nose and down to the throat and said he saw nothing.  He sent him for a cat scan, which came back negative, so he brushed it off.  We went to another ENT who also saw nothing and brushed it off as well.  
This past week my son had his 3rd popping incident and this time the condition became cronic.  Every time he turns his head this thing pops in his throat and it is very painful and scarry.  I rushed him in to the 2nd ENT.  This time the Dr, witnessed the popping for himself.  He believes the hyoid bone is dislocating and rubbing into the cartilige of the thyroid.  
We are waiting on an auth. for an MRI.  THE PROBLEM IS AND QUESTION:

THE ENT SAID HE NEVER SAW THIS BEFORE AND SAID HE DOES NOT KNOW WHAT TO DO ABOUT IT????
IN THE MEANTIME HE INSTRUCTED MY SON TO WEAR A NECKBRACE TO STOP HIM FROM TURNING HIS NECK!!!  
DOES ANYONE HAVE EXPERIENCE IN THIS AREA???
92 Responses
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Avatar universal
MEDICAL PROFESSIONAL
This is a very rare incident.
Hyoid bone as such does not dislocate and it may happen in accidents to jaw bone.The Hyoid bone is the only bone in the body that does not attach directly . When a bone is dislocated, its ligaments are often torn or overstretched and this may be the reason it is giving him that popping sound and pain.
The only way is not to make the bone stretch or dislocate so he was given a neck brace.
Here by doing this the clinician is preventing the hyoid bone to pop out.
Management of injuries to the larynx is based on the mechanisms and extent of the injury found during the initial assessment. The first priority is always to establish the airway. If the patient is breathing well and the injury does not require surgical care, the patient may be observed for some months or else surgery is the only option.
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1 Comments
   I remember having similar pain as a kid. Like electricity radiating down my neck from my head and had me black out for a second. In 2003 I was told by a Chiro that my Hyoid bone is MISSING> I had no idea what the heck that meant but the more I realize my neck is constantly in pain. It makes sense now.
885099 tn?1243547005
Thank you for educating me a bit.  I can understand that keeping his ligaments from moving may heal this problem or help it to some degree.

Do you think he should have this MRI?  He already had a catscan which showed nothing.
The Dr. suggested an MRI with contrast.  He has had so many MRI's on his knees already plus catscans and xrays over the past year. So much radiation can't be good for a kid his age.  I don't see how the MRI will show much more than the catscan, do you?

And also this Dr. said he has never seen this before and does not know how to treat it.
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1 Comments
I have the same problem! I have had it since my early 20's (40 + years). My family Dr at the time said he had never heard of this... years later, I finally asked the right Dr.  She said it is probably the hyoid bone... she had no solution too it. It has been chronic since then. I just shift it back over, often 3-6 time in a row. Worse when I lay down. I hope your son gets through this and it stops! It is an uncomfortable issue to deal with!
Avatar universal
MRI's show an incredible amount of detail...more than is possible w/ a CT. Also, MRI's function differently and are not actually considered to impart radiation like CT's do. It's certainly woth it for your son to get one. The Dr. will be able to see if ligaments are torn. If it's possible for your son to initiate the dislocation it would be very beneficial to have images in the MRI taken while his hyoid is dislocated, however he will likely need to remain in that position for at least 30 minutes. If he can breathe OK maybe pain meds can be administered to make getting those images possible.
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652360 tn?1264492519
What your son has may have something to do with the elongation of his superior cornu of the thyroid cartilage. This is one of the weakest structures in the neck so if he did sustain a neck injury this area could easily become bent or stretched and rub against his hyoid bone because it is elongated. That clicking noise may be the elongated cartilage coming into contact with his hyoid bone or cervical transverse process. 3D AXIAL CT SCAN is the best imaging study to check for this make sure you have an ENT who reads the below article and understands this condition. Also, visit the section on this site on hyoid bone problems, or read under my posts and their is a lot more information on thyroid cartilage abnormality. Your son may have something different though but I would check for this  since it is a possibility this could be causing the clicking.

The complaint of a clicking in the throat when swallowing or (turning the neck) is uncommon but very discomforting and painful for those who experience it. It is such an unusual complaint that symptoms may be dismissed as psychogenic because a cause for the problem may not be readily apparent. We present a series of 11 cases in which all patients had an audible clicking or popping noise in the throat associated with neck and throat pain when swallowing or turning the neck. The most helpful diagnostic procedure was careful examination and palpation of the neck while the patient swallowed to localize the side and source of the clicking. Laryngeal computed tomographic (CT) scans helped in some cases to demonstrate thyroid-cartilage and/or vertebral body asymmetry. Each case was treated with surgery of the neck and larynx to trim the portion of the thyroid cartilage causing the clicking. In most cases the superior cornu of the thyroid cartilage projected posteriorly and medially. Surgery was successful in all cases to eliminate the symptoms. Though an uncommon complaint, our experience suggests that the clicking throat is a surgically treatable problem.



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885099 tn?1243547005
Thank you for your information.  I did send my son for the MRI, which showed nothing because the hyoid was not dislocating at the time, of course once we got into the car heading home it popped out 3 times.  The imaging center told us to come back when it dislocates and they will do more testing.  The problem is that before it would pop and he would push it back in, now it just constantly pops and he feels sore and as if there is a golf ball in his throat.

I live on Long Island and every ENT I have taken him to or spoken with cannot even help him with this condition.  They say it is very rare. One ENT gave us a perscription to have a Barium Swallow test done (do you think this will be helpful with a diagnosis?)

I have an appointment next week with an ENT in NYC who says he has experience with this and can help, but I have to pay out of pocket.  I can afford the initial $250 visit, but I do not know what to do afterwards???  Do you have any suggesgtions?
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652360 tn?1264492519


The complaint of a clicking in the throat when swallowing is uncommon but very discomfortingand painful for those who experience it. It is such an unusual complaint
that symptoms may be dismissed as psychogenic because a cause for the problem may
not be readily apparent. We present a series of 11 cases in which all patients had an
audible clicking or popping noise in the throat associated with neck and throat pain when swallowing or turning the neck. The most helpful diagnostic procedure was careful examination and palpation of the neck while the patient swallowed to localize the side and source of the clicking.
Laryngeal computed tomographic (CT) scans helped in some cases to demonstrate thyroid cartilage
and/or vertebral body asymmetry. Each case was treated with surgery of the neck and
larynx to trim the portion of the thyroid cartilage causing the clicking. In most cases the superior
cornu of the thyroid cartilage projected posteriorly and medially. Surgery was successful in all cases
to eliminate the symptoms. Though an uncommon complaint, our experience suggests that the
clicking throat is a surgically treatable problem.
Arch Otolaryngol Head Neck Surg. 2001;127:1129-1131

Sex/Age, y Type of Symptoms (Duration, mo)
Location
of Symptoms
Prior Neck
Trauma Procedure Outcome
1/F/37 Clicking when swallowing, throat pain (5) R neck No R SCE Complete resolution
2/F/27 Clicking when swallowing, neck pain (9) Mid neck Yes Trim superior edge of the thyroid lamina Complete resolution
3/M/18 Clicking when swallowing, neck pain (24) L neck Yes L SCE Complete resolution
4/F/39 Clicking when swallowing, neck pain (12) Bilateral neck,
R.L
No Bilateral SCE, posterior edge thyroid
ala excision (staged)
Complete resolution
5/M/25 Clicking when swallowing, neck pain (12) Bilateral neck No Bilateral SCE Complete resolution
6/M/29 Throat pain when playing trumpet (12) R neck No R SCE Complete resolution
7/M/36 Odynophagia (6) L neck Yes L SCE Complete resolution
8/F/54 Throat pain, aphonia, odynophonia (8) R neck Yes R SCE Complete resolution
9/F/27 Throat, neck, facial pain (9) R neck Yes R SCE Complete resolution
10/F/51 Throat pain, clicking when swallowing (4) R neck Yes R SCE Complete resolution
11/F/15 Throat pain, clicking when swallowing (24) L neck Yes L SCE, L hyoid trim (staged) Complete resolution

Results of imaging studies (CT
scans) were initially reported as “normal.”
After several such studies, a different
techniquewasperformedat the
University of Utah. If the clicking occurred
when turning the head, a spiral
CT scan was performed with the
patient in the neutral position. It was
then repeated with the patient’s head
turned and during a swallow. This
demonstratedtheunderlyingdynamic
cause of the sound (Figure2). Interpretation
of the CT images requires
knowledge of the abnormalities that
may cause the clicking sound. The 3
abnormalities that were identifiedon
CTscanninginourseriesincluded(1)
posteriorelongationofthethyroidcartilage
ala, (2) superior elongation of
the superior cornu of the thyroid cartilage,
and(3)anasymmetrically large
cervical vertebra transverse process


Clicking in the throat can be treated
surgically.Physicalexaminationisfundamentaltoidentifytheclickingsource
so that a treatment procedure can be
confidently recommended. Patients
canbereassuredthattheseuncommon
symptoms are not products of their
imagination or something seen only
inmovies;theyare realandcanbesuccessfully
treated. In our series, laryngeal
clicking when swallowing was a
bona fide symptom with an identifiable
cause. It often had associated
throat pain and dysphagia and was
frequently, but not necessarily, associated
with prior trauma to the neck
orintubation.Themostcommoncause
was an elongated or posteriorly orientedsuperiorcornuofthethyroidcartilage.
Based on our experience, we
conclude the following: (1) Physical
examination is needed, with careful
palpation of theneckduring swallowing
and reproduction ofsymptomsto
localize the source of the click. Attention
shouldbedirectedtowardthe superior
cornu of the thyroid cartilage
when symptoms are to the side of the
neck and toward overlapping structures
in the thyrohyoid space when
symptoms are in the anterior of the
neck. (2) Laryngoplasty isaneffective
treatment under local or general anesthesia
to trim the offending region
(s) of the thyroid cartilage and/or hyoid
bone responsible for the clicking.
Accepted for publicationMay17, 2001.
Supported by grant K08-
DC00132 from the National Institutes
of Health, National Institute on
Deafness and Other Communication
Disorders, Bethesda, Md.
Corresponding author: Marshall
E. Smith, MD, Division of Otolaryngology–
Head and Neck Surgery,
3C-120, University of Utah
School of Medicine, 50 N Medical Dr,
Salt Lake City, UT 84132 (e-mail:
marshall.***@****).
REFERENCES
1. Counter RT. A clicking larynx. J Laryngol Otol.
1978;92:629-31.
2. Makura ZGG, Nigam A. The clunking neck.J Laryngol
Otol. 1995;109:1217-1218.
3. Hilali AS, Saleh HA, Hickey SA. Clicking hyoid.
J R Soc Med. 1997;90:689-690.
(REPRINTED) ARCH OTOLARYNGOL HEAD NECK SURG/VOL 127, SEP 2001 WWW.ARCHOTO.COM
1131
©2001
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2 Comments
Wow! I thought I was the only one with this problem! 40 + years I have had this! I am a respiratory Therapist and have never found an answer for what was happening until primary doc I have now (she is a DO) said it was probably the hyoid bone... thanks for all the info!
Hi Shirleytvrdy, is the DO able to recommend anything to help you?
885099 tn?1243547005
Update on my son.  We saw a highly recommended ENT he did a scope video of Kurt's hyoid bone and it is definitely dislocated from the ligaments on the left side.  He seemed stumped on how to proceed with this injury.
He took his video and my copies of the CT and MRI (which were both negative according to the radiologist) and is bringing them to meet with his board at Cornell University this upcoming Thursday.
We are sitting impatiently awaiting his direction on what they can do to fix this.  It is extremely rare.
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Avatar universal
MEDICAL PROFESSIONAL
Good and great going and they will have to work out in giving a support to his hyoid bone so that it does not dislocate.
Every human being is special and different and the knowledge of anatomy will work here and a neat research procedure is what should be planned now.
Take care and support Kurt!
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1 Comments
Wow, I'm a senior Dr. Vinod but I must say I am so proud of you for stepping forward and commenting on this young mans throat dislocation issue. Very interesting information. I'm doing research for myself on my first surgery and nerve pain which has also been very interesting. God says we are fearfully and wonderfully made and our soul knows it very well. Indeed. Thank you.
Avatar universal
Hello,

I am a 25 year-old male and have been suffering for about a year with what seems to be an identical problem. I will swallow, but it often feels as though the cartilage in my neck is dislodged and it becomes very uncomfortable and painful to the point that I get headaches if I leave it for any amount of time...so I am constantly "repositioning" the cartilage. The problem, though, is that as time has gone on I have become used to just "repositioning" it to the point that it just seems to be "floating" in my neck...repositioning it gives me comfort for one swallow, then it is dislocated again. And now whenever I walk and step with my left foot I hear and feel the clicking in my neck, almost like something is "broken" and shifting around. I have seen an ENT, and my doctor, and my chiropractor has also examined it...I've had a CT scan, an MRI, blood work, and an ultrasound, and all have come back unfounded. The chiropractor said it might be broken "strap" muscles; the ENT figured it was inflamed, and the MD isn't much help at all. This condition is extremely annoying and uncomfortable (not to mention scary), and I'm glad I found this thread so I know I'm not the only one and maybe there is a fix out there!! Thanks for any additional advice, and lulin4 good luck to your son.

Jason
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Avatar universal
I hate to say it but I am glad to know that I am not the only one with this problem.  My neck (hyoid bone I'm guessing) has a tendency to pop out/dislocate to the left when my head is turned to the left and I yawn.  This had been occuring for about the last 30 years and I long ago learned how to pop it back in.  I think I sustained an injury while playing football because when we would tackle each other - one particular player, I would always get hit in the throat.  I have been to numerous doctors and they have been unable to find anything wrong.  One even called the problem a "minor inconvienience"  which was an insult considering the pain involved when the bone is dislocated and one tries to swallow.  I have no suggestions other than to say that there is another person out there that has the same identical problem.  Good luck and if you find a treatment other than the neck brace, I would love to hear it.
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Avatar universal
Hello,

I have the same problem and consulted many ENTs: no diagnosis was ever established and at last I was told that I should 'be careful when I eat and not lie down while eating or risk suffocation'! I was told that if I were a singer I would qualify for surgery but otherwise to live with it. Everytime I train at the gym I feel this mass in my throat and I too push on it for a few seconds relief. I find the medical establishment disgusting for telling me to tough it and dismissing my concerns, for what I feel is a very serious condition and certainely a constant discomfort. I had to stop sports activities and this has affected my mood - and I find no joy in life, being constantly reminded of my problem each time I swallow. Hard to work as well feeling like that. After seeing so many docotrs in vain, I am contemplating taking my life, because this is too unberable. I know it sounds extreeme, but so is the condition that I have to endure every minutes of my life. I wish I could bring more to the discussion, but unfortunately I cannot see any concrete option. I can only wish you luck and hope that you will find a better way to deal with this problem.

Take care.
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Avatar universal
I have had this exact problem for years.  My MD husband (a primary care doctor) simply pops it back into place for me, or I do it myself.  He says it is a dislocation of the hyoid bone, and has had it happen to him, which is why he knew exactly what it was and what to when I had a particularly painful episode.  Once it is popped back into place, all symptoms immediately clear, save for minor residual soreness.  Therefore he would disagree with Dr. Vinod that there is no such thing. He says he doesn't know what causes it, but suggests that stress doesn't help.
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Avatar universal
I have had this exact problem for years.  My MD husband (a primary care doctor) simply pops it back into place for me, or I do it myself.  He says it is a dislocation of the hyoid bone, and has had it happen to him, which is why he knew exactly what it was and what to when I had a particularly painful episode.  Once it is popped back into place, all symptoms immediately clear, save for minor residual soreness.  Therefore he would disagree with Dr. Vinod that there is no such thing. He says he doesn't know what causes it, but suggests that stress doesn't help.
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Avatar universal
Sorry to hear about your sons throat problems. I have suffered exacatly the same over the last thirty years, mainly if I yawn with my head turned in any direction. when it happens the first thing that comes into your mind is "oh no not again, followed by panic and pain. I have learnt how to push it back in now which is some comfort but have recently had an abcise and swelling on my jaw which wont go even with major amounts of antibiotics. When I asked my gp both he and the nurse said that there were no bones in the throat and they had never heard of anything like this. They dismissed my question like I was a child. Since seeing this forum I can see that I am not the only one suffering from this nasty condition. Please update me on your sons progress if you have the time  
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Avatar universal

Due to constant sore throats, my friend had her hyoid bone surgically removed back in the 1960s, in the New Haven, CT area. They went in through the throat. It was a rare condition at the time but there were recorded cases available to her MD. She has never had any problems and it cured her sore throats.
kevmom
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Avatar universal
oh my goodness, I've been thinking I was a freak since I was a teenager because something like this has happened to me periodically for 25 years. Today was the worst ever which is why I started looking on the internet to see if I could find an answer. Something in my throat sometimes gets "stuck" when I twist my neck, or yawn, of lie with my head turned etc. It is extremely difficult and painful to swallow when this happens. I panic. I used to ask someone to thump me hard on the back because that would maybe dislodge the feeling. There's nothing actually there, but it feels like something is caught up in the wrong place. Sometimes it is mild and just pops back by itself. Sometimes I have to stretch and twist my neck and eventually it pops back. Once it pops back its fine again. A sore throat for a while but at least I can swallow. Today I tried everything and what eventually worked was my husband firmly holding my whole skull and pulling upwards, elongating my neck. People have said here that it is possible to manually click things back into place please please please can someone explain how?? I'm terrified everytime this happens that my throat is going to swell shut and I'll die. I also suffer from occasional laryngeal spasms which completely cut off my breathing momentarily but these have only happened in the last 2 years since a very nasty bacterial throat infection. Even saliva can trigger them. Please help me.
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Avatar universal
This is amazing...I finally decided to search this topic and found this thread.
I to have suffered from this for about 15 years or so. I am now 43 years old.
It has only happened  to me about 4 times and it was in a short span like I said about 15 years ago. I can describe it as the same as others "popping out" when I turned my neck and streched. I too was terrified but not because I could not breath, it was because I knew it was going to hurt like hell when it popped back in place so I therefore voluntarily did not breath for a minute or so and then ouch!!!
So anyway I describe it like a pop can that you push a small dent in it and then pinch the sides of the pop can until the dent pops back out.
For years I could not yawn productively because I was afraid a big yawn would make it happen again!! I noticed that my hyoid bone was setting at an angle in my neck and still is to this day! There is a much bigger gap in my right side of my neck than in the left side. To the point that the furthest point of the hyoid bone is pushing and agitating my lymphnodes on my right side of my throat. This has been going on for years. Whe I push my chin to my chest it causes me to cough and it hurts to some degree. I brought this "whole" thing up to my ENT and he dismissed the hyoid being crooked (not horizontal) in my throat. I told him it hurt when I positioned my chin to my chest and guess what he said? Me..."It hurts when I do this!"  Him..."then dont do that!"   serious no lie and then he laughed.
Anyway he was sure quick to cut my tonsils out and take that money. I gues this was just too challanging for him. But guess what? This thread will be shared with him!!!!!
Not happy "I am"
It is just amazing, as like others, I thought I was some kind of hypocondriac freak.
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Avatar universal
WOW!  I thought I was the only person that ever had this problem.  I cannot yawn and tilt my head back at the same time or mine pops out. I cannot stretch back at all.  I cannot hear the it pop our and it doesn't click but God can I feel it. Feels like a bone is cutting into my airway and it is SO painful to swallow and even when I move my neck. The last time this happened it went on for like 3 days.  Then it finally stopped. When I feel it start to pop out I push up on the left side of my neck just a little then I get instant relief.  I thought I was just going crazy. I have been to several ENT's and even the ER several times with this and they look at me like I'm an idiot.
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Avatar universal
I too developed a clicking in my throat, on the left side after I kept pushing my larynx from left to right to feel this lymph node, don't ask, I was being a hypochondriac.  After reading and researching, it was quite clear it was the larynx that was clicking.  Luckily for me, after I deeply pushed my larynx from the right hand side toward the left, it had now disappeared.  I think I had somehow dislocated the hyoid bone, teaches me to mess with my neck again!  But from that one article that was found by Google, they can operate on the larynx to make it go away.  The link is:  http://archotol.ama-assn.org/cgi/content/abstract/127/9/1129  Good luck with yours.  
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Avatar universal
I have been diagnosed with a dislocated hyoid bone.  It has gone from popping or clicking to now just slightly protruding.  No pain at the moment, some clicking it if moves out of place.  Any information would be helpful.  Any suggested doctors?  I visited an ENT and he said if no pain is being experienced, no mdical reason to correct it.  I am not sure I am comfortabe "living" with this.  Thanks
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1346802 tn?1285777947
Hi, I have been suffering for the last 5 months w the sore throat and a popping on the left side of my throat. I can't take this pain no more. Went to 2 ENT's saw nothing had a cat scan saw nothing...I am running out of patients and I really want to be able to swallow normal again. This is so depressing...can someone help me please???
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652360 tn?1264492519
I have had surgery at UCLA for what seems to be the condition discussed on this site in my strong opinion the popping and clicking occurs when the tendon (intermediate tendon of the diagastric) that anchors the hyoid becomes stretched out causing the hyoid bone to be hypermobile and start clicking on nearby structures. There are other things that can cause a click but the fact that everyone shares such a disturbing symptom in common makes me think the simplest explanation would be that the tendons or muscle (stylohoid) anchoring this bone has been weakened. The doctor I have found in the US who has the most experience with this painful condition "hyoid bone dislocation" is the Chief of Head and Neck Surgery at UCLA. Dr. Gerald Berke, he is probably your best chance for some form of relief. He greatly reduced the clicking my and other patients hyoids.
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652360 tn?1264492519
Hi tell me more about your problem AND message me I am trying to compile research on a group of patients who have this condition.

What are all your symptoms?

What triggered the onset of your symptoms?

Where is the point of maximum discomfort in your neck/throat?

What helps your condition?

What makes your condition worse?

Can you recreate the click by palpating your throat?
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Avatar universal
I am glad I found these posts.   Like most people with neck and throat symptoms who cannot seem to get a straight answer from a medical professional, I have reluctantly resorted to searching the internet.  It is nice to know that others out there have similar symptoms and have had difficulty in trying to obtain a diagnosis. I have to mention that I am a veterinarian who specializes in diagnostic pathology, so my medical training and knowledge is very keen.

My throat/neck symptoms began about 4 months ago, out of the blue. It began with a strange mild pressure sensation in my right submandibular region.  I thought at first it might have been my submandibular salivary gland but I experienced no visibly obvious swelling or pain associated with the gland.  About 2 weeks after the initial symptoms, in addition to the pressure sensation, I developed the persistent and annoying globus sensation (foreign body in the throat sensation), which is limited to the right side of my throat. I also developed an intermittent popping on the right side of my throat when I swallow.  This popping can actually be felt when I place my fingers under the right side of my jaw when I swallow, and it is  often more noticeable if I turn my neck to the left. At times the pressure sensation in my neck extends all the way down to the region of my right collarbone and upper chest.  Occasionally, I have very mild pain in my right deep inner ear and submandibular region, but I have experienced no throat pain or tenderness.  I do notice mild twinges of pain in my neck muscles sometimes when I am talking, which is really strange. At times, I feel my voice is straining when I talk and sometimes it just “fades out” while I am talking. My symptoms vary in intensity from day to day, but never completely go away.

About a month after initial onset, the symptoms became pretty consistent, and while not affecting my ability to eat or breathe, had become quite uncomfortable. So, I made an appointment to see my GP.  She palpated my neck, looked in my throat, said that she didn’t see or feel anything definite and it didn’t look like anything bad (such as cancer). She suggested that it may be “something like Eagle’s syndrome”, although I have no history of tonsillectomy. She then referred me to an ENT. I waited almost 6 weeks to see this ENT, and all he did was palpate my neck and look at back of my throat with a dental mirror for all of about 10 seconds. He told me he saw similar cases all of the time, and never could really figure out what it was. He told me the popping when I swallow “could be tendonitis” but that he never saw any appreciable calcification on x-rays. He basically told me to just “live with it” because it was nothing bad, and sent me on my way.  I could not believe how dismissive he was.  He did not elaborate on the “tendonitis” theory, nor did he suggest anything to alleviate the symptoms. Perhaps he was acknowledging that it may be tendonitis of my digastric muscle, but never even mentioned the possibility of hyoid syndrome.

Disillusioned with this ENT experience and still seeking an answer, I decided to go to a chiropractor. I went there thinking maybe this was something related to a pinched nerve in my neck or possibly something related to my head and neck posture, as I easily spend 8-10 hours a day looking in a microscope. He listened to me explain my symptoms, told me that he thought my problems were TMJ related, and suggested I go to an orthodontist.  I have had clicking in my TMJ since I can remember (15+years), but have never had any type of globus sensation or pressure sensation in my neck or throat associated with it and have never had popping in my throat when I swallow before this.  Nor do I have any of the typical jaw pain/soreness, headache or facial pain that is often described with TMJ disorders.  While I considered and appreciated the chiropractor’s opinion, I felt like no one had really done anything to rule out the possibility that there was something IN my neck or throat causing these symptoms.  I wanted to do that before going to an orthodontist or oral surgeon and pursuing the TMJ route.  On top of that, neither my insurance nor my husband’s insurance will cover treatment for TMJ disorders (go figure).

As my frustrated internet searches began, I started to wonder if my symptoms could be associated with atypical GERD.  I took a 2 week trial of Prilosec OTC for the heck of it and took antacids 2-3 times a day, but it didn’t alleviate the symptoms. So I returned to my GP, who thought that it still could be atypical GERD and she then referred me to a gastroenterologist. The visit to the gastroenterologist led to an endoscopy, and he said I had a small hiatal hernia, a few gastric polyps (incidental finding), and he “thought” I had GERD. He did not say that he saw definitive esophageal erosion or damage. He told me to try omeprazole 20mg (same drug as Prilosec OTC) for 90 days and to return in 6 weeks for a follow up appointment. It has been several weeks, and I am frustrated to say that the same symptoms are still present with no change.  

To this point, not one physician has done any diagnostic imaging of my neck, not even a simple x-ray. As a veterinarian, this really baffles me. While I understand that imaging may not provide all or any of the answers, it seems to me like it could definitely rule out a few things, if nothing else.

I have had a few people suggest that my symptoms are probably just due to “anxiety” and I am sure some of you out there have had a physician tell you the same thing. It is my thought that a diagnosis of “anxiety” is a diagnosis of exclusion only. Until all the appropriate diagnostic tests are performed, and it is proven without a doubt that there is nothing physically causing a symptom, then a diagnosis of “anxiety” should be considered unacceptable.

GERD?  TMJ?  Tendonitis?  Anxiety? Which is it?

So now I have found the information on hyoid syndrome and really wonder if this is not something I should pursue with a different ENT, because the symptoms seem so similar. It sounds to me like this hyoid syndrome is such an obscure, uncommon thing that if you can't find an ENT who has experience or knowedge about it, it is wasted time and money. It is no wonder so many people just give up. The thought of having to "live with" this dicomfort for the rest of my life is just downright discouraging....
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