Rare Diseases Community

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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1 - 6 (of 3799) questions

Episodes of flushing of ears,face, neck,shoulders, elbows, knees, ankles w/ burning/tingling

M_Iddings

Periodically, my ears will begin to flush and burn. It then spreads to my face, neck, shoulders, elbows, knees and ankles. I literally fe...

11 answers | 7 comments

anal fistula

Stacey7705

Good Morning I wonder if someone can help and give me advice? I have been suffering for 20 years and approx 15/20 operations with a ana...

2 answers

Can anyone tell me more about Lewis-Sumner Syndrome (or even CIDP)?

pcosgrrl

For many years, I’ve had a diagnosis of multiple sclerosis. But I have a new neurologist, who believes it may be something like Lewis-Su...

1 answer | 1 comment

24/7 heart palpitations and feeling of something in my throat for past ten years! Please Help!

RyanPaul79

Hello, I am a 32 year old male who was perfectly healthy and active as a child and adolescent. When I was 22 and Iin college I had t...

10 answers | 1 comment

Cellulitis Buttocks SURGERY REMOVAL?? plz answer

fightingwithspoons

A Week ago my aunt was complaining about hemorrhoids. She is a large lady & is a diabetic. Anyway she kept talking about how bad her he...

7 answers

Excessive mucus in throat

Janice867

I have suffered from excess mucus which lodges in my throat for about 3+ years now. It causes me fatigue, and it interferes with daily l...

4 answers

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VISUAL SNOW UPDATE: 2018

John C Hagan III, MD, FACS, FAAO

04/18

2018 General Information on Dry Eyes-Now known as Ocular Surface Disorder

John C Hagan III, MD, FACS, FAAO

03/18

TMJ – What a Pain in the Neck! “Elegant Ecology”

Hamidreza Nassery , DMD, FICOI, FAGD, FICCMO

01/18

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