Rare Diseases Community

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.
1 - 6 (of 3799) questions
Periodically, my ears will begin to flush and burn. It then spreads to my face, neck, shoulders, elbows, knees and ankles. I literally fe...
Good Morning I wonder if someone can help and give me advice? I have been suffering for 20 years and approx 15/20 operations with a ana...
For many years, I’ve had a diagnosis of multiple sclerosis. But I have a new neurologist, who believes it may be something like Lewis-Su...
Hello, I am a 32 year old male who was perfectly healthy and active as a child and adolescent. When I was 22 and Iin college I had t...
A Week ago my aunt was complaining about hemorrhoids. She is a large lady & is a diabetic. Anyway she kept talking about how bad her he...
I have suffered from excess mucus which lodges in my throat for about 3+ years now. It causes me fatigue, and it interferes with daily l...
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