Rare Diseases Community

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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1 - 6 (of 3804) questions

Foul Body Odour ...

Patient1010

One of my friend is suffering from a strange body odour problem.Doctors are saying that he is normal but the problem really exists. ...

2 answers

Dercums Disease

Misdiagnosed1224

Does anyone in here have Dercums Disease AKA Adiposis Dolorosa? I have painful lipomas all over my body and I wanted to know what pain me...

Need help with terrible eye pain and visual disturbances and more undiagnosed

aaronh819

I have been having such a terrible time for so long with eye pain and terrible visual disturbances. Been to multiple specialists had an m...

3 answers | 2 comments

Would beef produce a new variant of the disease?

Tim147258

Would beef produce a new variant of the disease? Has the disease been proved to be contagious from beef Is it possible to get a new var...

New variant CJD，Do I get sick from smuggling beef？

Tim147258

Recently,Do I get sick from smuggling beef，Will I get New variant CJD ？Has the disease been proved to be contagious from beef？

Sudden onset of pain in both knees--unexplained

scotty410

Subject had no prior history of knee pain or knee injuries. Subject is 66 year old man, 5' 11" 290lbs in good health. He stated has alwa...

3 answers | 2 comments

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Will refractive surgery such as LASIK keep me out of glasses all my life

John C Hagan III, MD, FACS, FAAO

Dec 31

VISUAL SNOW UPDATE: 2018

John C Hagan III, MD, FACS, FAAO

04/18

2018 General Information on Dry Eyes-Now known as Ocular Surface Disorder

John C Hagan III, MD, FACS, FAAO

03/18

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