Rare Diseases Community

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.

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1 - 12 (of 3800) questions

anal fistula

Stacey7705

Good Morning I wonder if someone can help and give me advice? I have been suffering for 20 years and approx 15/20 operations with a ana...

2 answers

Can anyone tell me more about Lewis-Sumner Syndrome (or even CIDP)?

pcosgrrl

For many years, I’ve had a diagnosis of multiple sclerosis. But I have a new neurologist, who believes it may be something like Lewis-Su...

1 answer | 1 comment

24/7 heart palpitations and feeling of something in my throat for past ten years! Please Help!

RyanPaul79

Hello, I am a 32 year old male who was perfectly healthy and active as a child and adolescent. When I was 22 and Iin college I had t...

10 answers | 1 comment

Cellulitis Buttocks SURGERY REMOVAL?? plz answer

fightingwithspoons

A Week ago my aunt was complaining about hemorrhoids. She is a large lady & is a diabetic. Anyway she kept talking about how bad her he...

7 answers

Excessive mucus in throat

Janice867

I have suffered from excess mucus which lodges in my throat for about 3+ years now. It causes me fatigue, and it interferes with daily l...

4 answers

SHORTNESS OF BREATH, HEAD PRESSURE, FATIGUE, DIFFICULTY YAWNING

Kaci_mxm

Hello, I am a young, fit 21 year old female & I am confused as to why i am having all these difficulties! The symptoms are almost cons...

25 answers | 2 comments

Morel-Lavallee’ Lesion

TMaschino

July 2017 I was in a motorcycle accident. I was hit from behind. I was told I had a hematoma and was sent to the Lymphodema. I had severa...

2 answers

Attracting tiny flies and flies

Fruitykem

Wherever I go within one minute I see a fly Or flies there. Even after a bath I can a tiny reddish fruitfly like fly past me. I am going...

3 answers | 1 comment

undiagnosis for multiple bone lesions

survivor0611

My husband, 59 yrs., went in for a physical which led to a ct scan which showed multiple mixed lesions, predominantly lytic lesions on hi...

5 answers

Need help with terrible eye pain and visual disturbances and more undiagnosed

aaronh819

I have been having such a terrible time for so long with eye pain and terrible visual disturbances. Been to multiple specialists had an m...

2 answers

I talk in a foreign accent without wanting to or knowing how to

NoMore2500

I guess the story is long, but I'll shorten it as much as I can. I started noticing my accent was changing when I didn't mean it to or...

1 answer

Body froze, tingled, couldn't move muscles at all during sex?

joshwaloveslotr

This is very embarrassing, but I'm very concerned. I am a 19 year old male. My girlfriend was performing oral sex on me while I was layin...

2 answers

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VISUAL SNOW UPDATE: 2018

John C Hagan III, MD, FACS, FAAO

04/18

2018 General Information on Dry Eyes-Now known as Ocular Surface Disorder

John C Hagan III, MD, FACS, FAAO

03/18

TMJ – What a Pain in the Neck! “Elegant Ecology”

Hamidreza Nassery , DMD, FICOI, FAGD, FICCMO

01/18

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