Rare Diseases Community

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.
1 - 6 (of 3803) questions
I have been having such a terrible time for so long with eye pain and terrible visual disturbances. Been to multiple specialists had an m...
Would beef produce a new variant of the disease? Has the disease been proved to be contagious from beef Is it possible to get a new var...
Recently,Do I get sick from smuggling beef,Will I get New variant CJD ?Has the disease been proved to be contagious from beef?
Subject had no prior history of knee pain or knee injuries. Subject is 66 year old man, 5' 11" 290lbs in good health. He stated has alwa...
I was diagnosed with blue rubber bleb nevus syndrome a few years ago (19 years old now). I haven't consumed THC for 3 and a half months ...
Periodically, my ears will begin to flush and burn. It then spreads to my face, neck, shoulders, elbows, knees and ankles. I literally fe...
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