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Rare Diseases Community

This patient support community is for discussions relating to rare diseases and disorders. Some example include: Aarskog syndrome, Acoustic Neuroma, Angelman Syndrome, Behcet Syndrome, Bell’s Palsy, Canavan Disease, Carbon Baby Syndrome, Charcot Marie Tooth Disease, Chromosome Monosomy Disorders, Chromosome Trisomy Disorders, Devic's Disease, Dystonia, Ewing’s Sarcoma, Fragile X Syndrome, Immune Thrombocytopenia, Kawasaki Syndrome,Maple Syrup Urine Disease, Mastocytosis, McCune Albright syndrome, Pachygyria, Polycystic Kidney Disease, Prader-Willi Syndrome, Reiter’s Syndrome, Sickle cell anemia, Sturge-Weber syndrome, Trisomy Disorders, Usher Syndrome, Xanthinuria, Zollinger-Ellison syndrome.
1 - 12 (of 3800) questions
Good Morning I wonder if someone can help and give me advice? I have been suffering for 20 years and approx 15/20 operations with a ana...
For many years, I’ve had a diagnosis of multiple sclerosis. But I have a new neurologist, who believes it may be something like Lewis-Su...
Hello, I am a 32 year old male who was perfectly healthy and active as a child and adolescent. When I was 22 and Iin college I had t...
A Week ago my aunt was complaining about hemorrhoids. She is a large lady & is a diabetic. Anyway she kept talking about how bad her he...
I have suffered from excess mucus which lodges in my throat for about 3+ years now. It causes me fatigue, and it interferes with daily l...
Hello, I am a young, fit 21 year old female & I am confused as to why i am having all these difficulties! The symptoms are almost cons...
July 2017 I was in a motorcycle accident. I was hit from behind. I was told I had a hematoma and was sent to the Lymphodema. I had severa...
Wherever I go within one minute I see a fly Or flies there. Even after a bath I can a tiny reddish fruitfly like fly past me. I am going...
My husband, 59 yrs., went in for a physical which led to a ct scan which showed multiple mixed lesions, predominantly lytic lesions on hi...
I have been having such a terrible time for so long with eye pain and terrible visual disturbances. Been to multiple specialists had an m...
I guess the story is long, but I'll shorten it as much as I can. I started noticing my accent was changing when I didn't mean it to or...
This is very embarrassing, but I'm very concerned. I am a 19 year old male. My girlfriend was performing oral sex on me while I was layin...
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