I agree that we don't have all of the facts. If this is a new diagnosis, I think the docs are right on target. A lot of times, they don't like to start ANY kind of treatment without the whole picture, and a treatment plan (especially if they are going to recommend surgery). I sincerely don't see this as a "politics" issue, just standard protocol, and there are some good reasons for it.
I DO think they absolutely could manage the OPs symptoms though.
Yeah,I guess typical medical protocol was followed
(for the mass anyway).
The adrenal insufficiency though should have been addressed.
What comes first? Protocol, procedure,policy,politics or patients?
Big question.
And again, we don't have all the facts for each case.
We just have our opinions.
Cheers!
Actually, I have to totally disgaree with the above advice. You were actually given very typical guidance as far as how to proceed with this mass. This is a very common approach to this diagnoses. The doctor is trying to assess the aggressiveness and other characteristics of this mass, and he can do that by re-evaluating it in 3 months (most would say 6 months). At that time, you will be again assessed, and then treatment options will be discussed. There are a few ways that this can be treated, one option being surgical removal of the mass, depending on its size, and other factors.
I totally feel for you, I'm sure the symptoms are rough to deal with. THAT is something your doctor could help you manage now, He/she can at least treat you symptomatically until the repeat CT is done. Some people have benign masses that never cause any problems, others may cause some problems at first, but then the symptoms subside. Most doctors are initially conservative in the treatment for this reason. It isn't always necessary to act immediately, which is why your doctor recommended what he did. Trust me, it is a common and totally acceptable approach.
If you aren't being seen by a specialist, you can request a referral to an Endocrinologist. He/she may have some recommendations on ways to help manage your symptoms while you are waiting to see what the plan will be. My guess is, you have probably already been seen by an Endocrinologist though.
I know it's tough, but hang in there. Most of us would give our eye's teeth to find out we had a TRUE, real, bonafide medical reason behind our anxiety, because it would mean a fairly straight forward apporach and "fix".
Definitely get in to see your doc to discuss symptom management. Wish you the best, please keep us updated.
Forgot to ask you the size of the mass-if you know.
It's probably benign and not clinically very significant at the present time, as nothing further was investigated, and no action was taken.
Hi and welcome to the forum.
I cannot believe what you were told!
With what you're going through, it's puzzling.
It is extremely unprofessional to say the least.
From what I read in your post there was nothing offered to you, other than wait and see for 3 months?? There are other simple tests available to verify
your Adrenal issues.
Please go to Dr. Lawrence Wilson's website for adrenal insufficiency
and arm yourself with some real knowledge.
You need not continue suffering like this.
If your own doctor and endo are not interested in your well-being , then consider going to holistic doctor for this issue. It is not rocket science.
This condition is treatable and you do not need drugs like cortisone or prednisone to further weaken the adrenals!!
Nutritional medicine best addresses this condition.
pm me if you need any details or just for support.
Wishing you well.
Niko