Aa
Aa
A
A
A
Close
Avatar universal

dizziness, nausea, fatigue, light sensitivity, headache, cold hands/feet, joint/muscle aches, weakness, What is it?

I am a 26 y-o- Female. For the past 3 months now I have been having strange symptoms like nausea, dizziness (extreme at times), headache behind the eye and sensitivity to light, joint/muscle aches and stiffness mostly in hands and feet but occassionally like a full body flu-type attack, weakness in wrists, cold feet and hands that feel like they are plunged in ice water whenever I take a hot bath/shower, constant feeling of cold so that I just can't get warm, occasional hot flashes and chills, exhaustion and sleepiness all day but hard to stay asleep, and memory problems/disorientation like a brain "fog", flashes and shadows out of the corner of my eyes, and some other symptoms not listed. I have a history of Graves Disease diagnosed at 12 years old and treated for several years with PTU. I had a relapse at the age of 18 and had radioactive ablation of the thyroid done. I have recently seen a rhuematologist due to a slightly elevated RH factor (14) and he drew more labs to detect Lupus and other autoimmune connective tissue disorders, all of which came out negative or normal including the CCP test for rheumatoid arthritis. Though my TSH levels have been hard to keep stable (recently miscarried at 8 weeks with a TSH of 40), this last test was normal (Currently taking thyroxin 100 mcgs and Cytomel 10 mcgs) including antibody and FT4 and FT3 levels. Blood count and lIver tests were also normal. Xrays of hands and chest were normal. Opthamologist visit reported normal eyes except for slight dryness. Other than these, I have a history of repeated low vit D levels, atypical PCOS as determined by cystic ovaries on ultrasound and borderline insulin resistence, but no androgenic factors. I go to neurology in a month's time and also back to rheumatology. I know there are autoimmune disorders of the nervous system that can cause some of these symptoms, but I have not noticed numbness or nerve-like pains or extreme muscle weakness that seem to be found in most of them. I know it is possible that I have the early stages of rhuematoid arthritis as I do have a family history of it, but some of these symptoms don't seem to fit. Any ideas about what could be going on with me and further testing I need to pursue? Thank you.
150 Responses
Sort by: Helpful Oldest Newest
434278 tn?1324706225
PlateletGal has not been on Medhelp in quite some time.  I looked back to see what you might be asking about, as this is a really old post.  Maybe CoQ10.  It is a supplement.  
Helpful - 0
Avatar universal
What would these mean o.O ?
Helpful - 0
667923 tn?1421462724
I want to be added to ur group. My comp. is acting up rigt now, but i have a lot to say,
I will be back to talk...my comp. is closing right now...so don't have a choice.
Thank u. :D
Helpful - 0
Avatar universal
I'm not sure you'll even get this .. I just stumbled across your post while looking for a related issue .. If the only way they're testing your thyroid is by TSH/T4, you won't get a full picture of how your thyroid is really functioning.  I was first Dx'd with thyroid issues when I was about 14 .. had Graves years later; things leveled out, then Dx-hypothyroid with Hashimoto's antibodies AND Graves antibodies. When I have blood work this is what I have run:  TSH, T3, T4, F(free) T3, F(free) T4 and TPO, TgAB and TSI to check for Hashi and Graves antibodies.  

Ceil
Helpful - 0
Avatar universal
I have so many of these symptoms and others.. I finally found a doctor who is actually figuring out what is going on but I have to admit the tests results are scaring the heck out of me.. For years I went from doctor to doctor and all the test results were normal or not too bad ... Since the first day I met with this doctor she automatically ordered up tests I had never heard of ... and  so many of them are coming back abnormal or really abnormal and it is very unsettling. Has anyone else had tests outside of the usual cbc blood draw or thyroid..  that has given them any insight into what may be going on with many of us? I'm hoping to talk with someone who has had a hla typing test or an MSH test... I'm really confused and pretty scared really and am hoping someone can help me understands all these results.  Its also nice to talk to people who understand how frustrating and scary all thes unkowns can be. Blessings and a restful night sleep to everyone :)
Helpful - 0
Avatar universal
I have to say I get a lot of these symptoms, nausea, brain fog, fibro pain/lumps, throat problems, rashes, muscle cramping, weakness, fatigue, joint pain, abdominal pain, etc and my symptoms improved a lot when I took iron.  I stopped taking it for a day or two and got worse again.  I also take small amounts of vitamin C with meals to help with iron absorption.
Helpful - 0
Have an Answer?

You are reading content posted in the Autoimmune Disorders Community

Top Autoimmune Diseases Answerers
1756321 tn?1547095325
Queensland, Australia
Learn About Top Answerers
Didn't find the answer you were looking for?
Ask a question
Popular Resources
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.