dizziness, nausea, fatigue, light sensitivity, headache, cold hands/feet, joint/muscle aches, weakness, What is it?

[trixi138]

I am a 26 y-o- Female. For the past 3 months now I have been having strange symptoms like nausea, dizziness (extreme at times), headache behind the eye and sensitivity to light, joint/muscle aches and stiffness mostly in hands and feet but occassionally like a full body flu-type attack, weakness in wrists, cold feet and hands that feel like they are plunged in ice water whenever I take a hot bath/shower, constant feeling of cold so that I just can't get warm, occasional hot flashes and chills, exhaustion and sleepiness all day but hard to stay asleep, and memory problems/disorientation like a brain "fog", flashes and shadows out of the corner of my eyes, and some other symptoms not listed. I have a history of Graves Disease diagnosed at 12 years old and treated for several years with PTU. I had a relapse at the age of 18 and had radioactive ablation of the thyroid done. I have recently seen a rhuematologist due to a slightly elevated RH factor (14) and he drew more labs to detect Lupus and other autoimmune connective tissue disorders, all of which came out negative or normal including the CCP test for rheumatoid arthritis. Though my TSH levels have been hard to keep stable (recently miscarried at 8 weeks with a TSH of 40), this last test was normal (Currently taking thyroxin 100 mcgs and Cytomel 10 mcgs) including antibody and FT4 and FT3 levels. Blood count and lIver tests were also normal. Xrays of hands and chest were normal. Opthamologist visit reported normal eyes except for slight dryness. Other than these, I have a history of repeated low vit D levels, atypical PCOS as determined by cystic ovaries on ultrasound and borderline insulin resistence, but no androgenic factors. I go to neurology in a month's time and also back to rheumatology. I know there are autoimmune disorders of the nervous system that can cause some of these symptoms, but I have not noticed numbness or nerve-like pains or extreme muscle weakness that seem to be found in most of them. I know it is possible that I have the early stages of rhuematoid arthritis as I do have a family history of it, but some of these symptoms don't seem to fit. Any ideas about what could be going on with me and further testing I need to pursue? Thank you.

[gigi788]

I didnt know the Brown circle on my eye ball was called a eye freckle. Iv had it for yrs...this is the first I have heard someone else having one. have you gotn any more answers?? my eye dr has said nothing about it ....thx for your comment.

[gigi788]

I have been searching for yrs bc of all these dang related symptoms that has been on going an the new was deveopling this yr. keep me posted please! I have been to dr's ongoing all test are NEG and I know Im not crazy!! something bad is wrong!!! this is exhausting!! have you found ANYTHING as of what test to be done what teatments to be done etc...??? I have been scared bc I dont no what to think of these inner vibration shakes. this summer I had ALL LUPUS signs an symptoms. keep me posted please!!

[gigi788]

I thought I was reading my medical history...I have had symptoms for 20 plus yrs ld an new ones the past few yrs. this past yr has def had some major symptoms added. I truly believe we can have more then 1 dx of auto imunne diseases. I  have had b/w done out of the wazoo the past several wks and with all these symp you can not tell me NOTHING is going on an all b/w is NEG!!! huh uh...something is not right. I am almost at the point where I can careless abouta pinpointed dx's but on the other hand I need treatment bc these symptoms are serious. keep us updated on what you find...

[gigi788]

I have had tumors/masses removed the first one we thought it was a mass of breast cancer the surgeon was shocked that it wasnt it was a mass of calcium! the same surgeoun also found a huge tumor/mass on my back on the spine they werent painful just flat an big masses. he took it off it was a lymphoma fatty tumor. I have stage 3 kidney, food gets stuck in throat alot an so I have to drink alot when I eat. I have had a swollowing test last wk it cam back "with in normal" I hate it....every stinking test I have done has been NORMAL! there is no way something is wrong! i HAVE all OF THE SYMPTOMS ON THIS FORUM been to 3 rhumeys none of them have the same opinion. still all leads to lupus an connective tissue disease. but after reading several of these experiances I am also thinking it could be lyme disease! have had majority of symptoms since I was a kid an Im 50 this yr an getn worse. I am wore out from dr visits an the majprity looking at me an scratching their heads and pawning me off to the next dr...thank god I good ins for now so I am taking avantage of it while I can! I have also lived in the chemical indusrty all my life the x worked in the chemical plant that made PVC for plastics and washed them clothes for 20 yrs.something is NOT right!! I use vit D 2 and 3 mega doses and magnesium. I firmly believe these nutrients are screwing around with my b/w. I am not giving up! thank you all for sharing your journey miserable as it sounds I firmly believe we can help each other and find that one dr who will listen. I also had a gallblladder removes 23 yrs ago and hysterc 15 or so yrs ago.

[gigi788]

a yr ago my vit D was at "6"....ever since then I have been taking about 12,000iu's a day of D3 and 1 D2 at 50,000 wk, an magnesium and since then even with all flares and symptoms of lupus MCTD  fibro etc....all blood work has been compromised! either at "0" or none detected for all lupus markers...so aggrivating!!! I should have went to the E R when I was in Myrtle beach in aug, I had a flare like I have NEVER had before, red as a beat, eyes were killing me from the light, stiff as a board inflammation was out of the roof! thats when I should have went for b/w!! I will be prepared next summer!!!

[gigi788]

what is CFID?