dizziness, nausea, fatigue, light sensitivity, headache, cold hands/feet, joint/muscle aches, weakness, What is it?

[trixi138]

I am a 26 y-o- Female. For the past 3 months now I have been having strange symptoms like nausea, dizziness (extreme at times), headache behind the eye and sensitivity to light, joint/muscle aches and stiffness mostly in hands and feet but occassionally like a full body flu-type attack, weakness in wrists, cold feet and hands that feel like they are plunged in ice water whenever I take a hot bath/shower, constant feeling of cold so that I just can't get warm, occasional hot flashes and chills, exhaustion and sleepiness all day but hard to stay asleep, and memory problems/disorientation like a brain "fog", flashes and shadows out of the corner of my eyes, and some other symptoms not listed. I have a history of Graves Disease diagnosed at 12 years old and treated for several years with PTU. I had a relapse at the age of 18 and had radioactive ablation of the thyroid done. I have recently seen a rhuematologist due to a slightly elevated RH factor (14) and he drew more labs to detect Lupus and other autoimmune connective tissue disorders, all of which came out negative or normal including the CCP test for rheumatoid arthritis. Though my TSH levels have been hard to keep stable (recently miscarried at 8 weeks with a TSH of 40), this last test was normal (Currently taking thyroxin 100 mcgs and Cytomel 10 mcgs) including antibody and FT4 and FT3 levels. Blood count and lIver tests were also normal. Xrays of hands and chest were normal. Opthamologist visit reported normal eyes except for slight dryness. Other than these, I have a history of repeated low vit D levels, atypical PCOS as determined by cystic ovaries on ultrasound and borderline insulin resistence, but no androgenic factors. I go to neurology in a month's time and also back to rheumatology. I know there are autoimmune disorders of the nervous system that can cause some of these symptoms, but I have not noticed numbness or nerve-like pains or extreme muscle weakness that seem to be found in most of them. I know it is possible that I have the early stages of rhuematoid arthritis as I do have a family history of it, but some of these symptoms don't seem to fit. Any ideas about what could be going on with me and further testing I need to pursue? Thank you.

[dellafus]

trixi; I hate to say this, but you cannot attribute all your symptoms to a disease process.  It sounds to me like you are obsessing over your illness.  Some things you just have to learn to live with, because your body is not perfect.  God gives us the ability to choose how we will treat our bodies;  I think you need a doctor to tell you to what you should do about all the worrying you are doing over things not quite so important as you may think.  Good luck, and I hope you can find the balance you need to live a more productive life.  You are way too young for this kind of worrying about your health.  I am 2 1/2 times your age, and have learned the hard way.  

[IvaNoel]

Just because you must have issues with hypochondria.... Doesn't mean others too. This person is truly suffering.... Don't tell someone you don't know to dismiss their daily walk with pain.... Unless you have intimate knowledge of this persons life....back off!

[Rayro]

Dellafus-
I really hope you find the light of God and He may finally give you the gift of understanding and compassion. It must be frustrating being in the winter of one's life and also being so naive and lacking of God's love. I hope you find a doctor who can help you (and a good pastor for that matter - hell is not going to be fun for you if you're already in agony on earth!)

[dellafus]

Rheumatologist is the only expert in care of Fibromyalgia, CFS, arthritis.  But, because the range of symptoms is all over the place, your rheumatologist will often suggest you have lots of tests, see other specialists such as allergist, orthopedist, physical therapist, nutritionist, etc.  So many bodily functions can go wrong (as you have described, and I have additional ones), and all the different entities should collaborate on your care.  It is difficult to get them all to agree, since each is convinced he/she can be your savior, but it just won't happen that way.  Let your rheumatologist  be the main choice.

[dellafus]

first of all, a BP of 135/100 is really not high.  The diastolic (the lower number} is a little higher than it should be, but considering all your other problems, do not consider your BP any problem.  The disease you mentioned, you called Reynolds is Reynaud's disease and causes a lot of the hot/cold/pain/swelling/skin-mottling, often pain on walking and using hands.  Smokers also have a higher rate of this disease. due to its effect of decreasing circulation.  
I have several of the conditions you have, and have fluctuating levels of almost all of the things you have named, and some you haven't.  Note, the complaint of dry mouth/hence dry skin/ can be caused by any number of pain meds, antacids, stomach meds/ and is called Sjogrens
disease.  Can be treated with biotene, but still a problem.  
Most importantly, write down your symptoms, when they occur, what you were doing at the time; if you took any meds, did they help?  Talk to your doctor.  You may be a medical mystery to him/her, but the Rheumatologist is your best bet.  They handle more of these conglomerations of illnesses than anybody else.  What is very clear is that you have an autoimmune disease; hard to diagnose and hard to treat; therefore, treat the symptoms, and narrow down the possible specific disease.  That is very hard to do, and takes commitment and perseverance by you and your doc.  Good luck; we all need it!

[busybusybee]

On last thought get checked for candida overgrowth. Good luck and be well.

[busybusybee]

BLACK MOLD test is only done by a specialized doctor look up Dr Shoemaker had trained some doctor in this area most Medical doctor would  have no idea how to check for mycotoxin mycoplasma. We have a science of  enviromental  medicine doctor here so he is well aware of enviromental illness  

[busybusybee]

This are few ideas that I have Consider getting checked for Lyme, though IGENEX labs they are the most accuarate lab . If the test comes back positive find an LLMD that is a Lyme literate  medical doctor they are educated and skilled in this area. Get checked for  Epstein Barr virus , Get your hormones checked, See an infectious Disease doctor. Get an STD check. Get SIBO small intestinal bacterial overgrowth check, it is a blow test.   Also get checked for parasites I read you need to have 10 parasite checks to get 100% accuaracy or just go on a long gentle parasite cleanse. Get your teeth checked, it could be a jaw bone infections or an infected tooth. Or wisdom tooth site is infected.  Do you have root canals? Consider  reading  Root Canal Cover up. Some people end up with CFS due to dental issues, and once the issue is addressed the CFS clears up. Go on food elimination diet, stop all soy,  dairy,  sugar, wheat, corn . As for  gluten it can cause  dizziness, nausea loss of memory  and  make you ;super sick so I would just stop it for a few months to see, the key is to not have gluten for few months .You can look up the diet on the web. Have you been or are you around black mold . Black mold could be hidden in your house, car or work it can make you very sick and they symptoms you mentioned all can caused from Black mold . Find a doctor that is a Diagnotist Expert that is the key when you have something no one can figure out the cause. Also check out the new illness EMS Electro magnetic frequency sensitivity. Now people are getting sick from electomagnetic waves,  caused from lab tops, cell phones, microwaves, WIFi cell phone towers,some people have minor symptoms some people have heart issues and seizures ...so it is serious. I think when you  go away on vacation to a place away from all this stuff you will find out if that is the cause.Maybe camping in the wood take tick repellent with you :) and see if you feel better when your away. You cannot stay in a hotel because they all have wifi, If you like me camping if not your gig ...rent a nice  motor home and stay by the ocean side