Aa
Heat intolerance, fatique, no energy
Hello, I had not been diagnosed yet. I saw some doctors but they don't know why I have those symptoms. Basic blood work came back negative. I have a huge heat intolerance, with temp over 71 F, can not take warm bath, can not eat anything warm,I have hard time to concentrate and communicate, abdominal pain, pain in left leg and hip. Soon as the heat will hit me my face and fingers will be like on fire. I am having the same symptoms with emotional stress. When i have stressful situation immediately my face is like on fire, I am having very dry heat in my face(it is coming from inside me, my breath is hot) and color of my face is deadly white. I think that something is happening with blood float at that moment, almost like blood is not coming to my face. The same time my fingers will get very swollen, fluffy, red and hot (I think the blood from face goes to fingers). When this happen - immediately I have pressure in my head (feel like something cracked in head), I get very fatigue and tired, have no energy. I have to lay down. I can not eat or drink anything warm, If I have only one sip of anything warm I get big sharp pain in my stomach/esophagus all my body will shake, huge heat in face and fingers, extremely fatigue, totally drained, sick, I have to lay down. I am not eating warm food for 8 years, I can not be outside in summer time, I can not cook (heat from stove makes me sick, even steam from warm plate would make me sick). Can anybody help me, please?
Hmmm
If I were you I would talk to your GY and have her write a one page summary (if she will) stating what you just said about the Herpes issues.
I would call back and use you clinic number and explain English is not your first language and see if someone in GY is an Internist, I would tell them you are nervous.
I would make sure they understand you are seeing the GY because you need a second opinion about how to treat your Herpes. Remember you do NOT want to overload the GY dept. with information.
Using the clinic number I would make a neurologist appointment.
First may I ask what your native language is?
I am thinking about how to approach this so you get an appointment.
If I were you I would talk to your GY and have her write a one page summary (if she will) stating what you just said about the Herpes issues.
I would call back and use you clinic number and explain English is not your first language and see if someone in GY is an Internist, I would tell them you are nervous.
I would make sure they understand you are seeing the GY because you need a second opinion about how to treat your Herpes. Remember you do NOT want to overload the GY dept. with information.
Using the clinic number I would make a neurologist appointment.
First may I ask what your native language is?
I am thinking about how to approach this so you get an appointment.
Hi Kav31675, thank you for all your help again. I called them this afternoon. I am so scared... I am afraid that they will not believe me or something like that....I called GY, she did temporary registration and she gave me registration number. I told her about my huge pain in vulva and heat intolerance and that all this symptoms came after herpes infection. Also I have told her that I am looking for their help, because my doctors are not sure what to do with my condition. She said that she is not sure if they can help me with the heat, that maybe I need to see different doctor. Then she gave me a fax number and told me to fax them files from my doctors and some type of cover letter from my doctor. Then she said ones they will receive everything they will make decision if I am qualified for this visit or not. I am very nervous that they will not qualified me. I am not sure what they will see in my doctors notes because there is nothing showing in blood works or in any other type of tests what they had done.
I was so nervous when I talked to her about everything that I forgot to ask her about the internists....duh....
So do you think I should see my regular GY to get all the paperwork from her? Do you think I need send them paperwork from neurologist as well?
Oh dear, I just hope they can help me.
The other day I found some doctor in Boston area who is GY with vulvovaginal specialty http://www.power-surge.com/transcripts/stewart.htm Let's me know what do you think about this doctor.
You know, I am realizing now how stupid I am that I never went to see different GY. I am very easy going, I have a lot patience, I am not complainer and I am very good listener. For 12 years I have seen the same doctor but she has no idea why I have those very painful open cuts in my vulva and she have never send me for some more research. Every time I told her how much heat intolerance I have she would say it is menopause, don't worry about it. And when I told her how much sick I feel almost every day, I don't think she believed me.They don't listen, do they?If you don't have some type of sickness what they deal with on daily basic, they have no idea what to do with you and so then they blame your head on everything........ or anxiety !
I was researching some hotels and such already, but it would be great if you will give me your advice on this ones again.
I am very thankful, I hope you are feeling good.
Sincerely best regards Js.
I was so nervous when I talked to her about everything that I forgot to ask her about the internists....duh....
So do you think I should see my regular GY to get all the paperwork from her? Do you think I need send them paperwork from neurologist as well?
Oh dear, I just hope they can help me.
The other day I found some doctor in Boston area who is GY with vulvovaginal specialty http://www.power-surge.com/transcripts/stewart.htm Let's me know what do you think about this doctor.
You know, I am realizing now how stupid I am that I never went to see different GY. I am very easy going, I have a lot patience, I am not complainer and I am very good listener. For 12 years I have seen the same doctor but she has no idea why I have those very painful open cuts in my vulva and she have never send me for some more research. Every time I told her how much heat intolerance I have she would say it is menopause, don't worry about it. And when I told her how much sick I feel almost every day, I don't think she believed me.They don't listen, do they?If you don't have some type of sickness what they deal with on daily basic, they have no idea what to do with you and so then they blame your head on everything........ or anxiety !
I was researching some hotels and such already, but it would be great if you will give me your advice on this ones again.
I am very thankful, I hope you are feeling good.
Sincerely best regards Js.
Sorry it took me a few days to see this, I missed it.
The Mayo will also know if your insurance is taken or how to best work things...
1. I think you need an internist on your team because you need a general doctor who specializes in looking at the body as a whole. They will also be the "driver" of your trip.
2. I would let them know when you call the GY that it will not be your only appointment and because at home they are having trouble pulling everything together you want to have the most through exam. (Here I don't have any answers as to what they will say, I have a very distant relative, so much that we did not know the other existed until I got sick and then my uncle mentioned that his uncles daughter had a daughter who he thought worked at the main Mayo clinic , I was so desperate I found her and introduced myself via Facebook and after she spoke with her mom WHO I do know to make sure I was not some crazy person she asked me who I needed to see and scheduled it...once scheduled my internist took over and made changes as he saw fit for the issues I had given them)
Sorry about that weird explanation but its the only way my mind would work
3. Sleep is a department that deals with issues with sleep and preforms various degrees of sleep studies. I saw both a neurologist and a critical care/ pulmonologist who are both also licensed as sleep specialists, from what I got most sleep specialists are also specialists in other fields.
4. I would look at my symptoms and decide what doctors I needed to see, my internist was in the cardiology department so while I did not have an appointment with a cardiologist, I saw one during the end of my Echo and another consulted with my internist who specializes in cardiology (From the doctors I saw there I don't think any of them had only one area of expertise.....My internist is one who works with patients that have cardio and other issues where a cardio. is more limiting....Does that make sense?
I would schedule at LEAST a neurologist what you are allowed to schedule depends on what symptoms and issues you share with them.
Example : I had not seen a endocrinologist and my GY here thought I should so I asked to be scheduled for one and the main internist there canceled it (I did not list anything to start with that would say I needed one though) once I was there it was added back on by another doctor when some of my blood work came back not normal.
Once you are there they are very good at getting you in and even encourage you to go to appointments early. While there you will see as what I was jokingly told was the hurry up and wait exercise plan and the starvation diet since you go go go and are already sick and food becomes unimportant.
Once you know you are going and scheduled I can give you Mayo tips not doctor related (like hotels and the shuttle that runs so you don't have to drive or stay in one of the connected hotels, where food is, what is rush time etc)
Good luck and if Mayo does not work then there is the Cleveland Clinic in Cleveland.
The Mayo will also know if your insurance is taken or how to best work things...
1. I think you need an internist on your team because you need a general doctor who specializes in looking at the body as a whole. They will also be the "driver" of your trip.
2. I would let them know when you call the GY that it will not be your only appointment and because at home they are having trouble pulling everything together you want to have the most through exam. (Here I don't have any answers as to what they will say, I have a very distant relative, so much that we did not know the other existed until I got sick and then my uncle mentioned that his uncles daughter had a daughter who he thought worked at the main Mayo clinic , I was so desperate I found her and introduced myself via Facebook and after she spoke with her mom WHO I do know to make sure I was not some crazy person she asked me who I needed to see and scheduled it...once scheduled my internist took over and made changes as he saw fit for the issues I had given them)
Sorry about that weird explanation but its the only way my mind would work
3. Sleep is a department that deals with issues with sleep and preforms various degrees of sleep studies. I saw both a neurologist and a critical care/ pulmonologist who are both also licensed as sleep specialists, from what I got most sleep specialists are also specialists in other fields.
4. I would look at my symptoms and decide what doctors I needed to see, my internist was in the cardiology department so while I did not have an appointment with a cardiologist, I saw one during the end of my Echo and another consulted with my internist who specializes in cardiology (From the doctors I saw there I don't think any of them had only one area of expertise.....My internist is one who works with patients that have cardio and other issues where a cardio. is more limiting....Does that make sense?
I would schedule at LEAST a neurologist what you are allowed to schedule depends on what symptoms and issues you share with them.
Example : I had not seen a endocrinologist and my GY here thought I should so I asked to be scheduled for one and the main internist there canceled it (I did not list anything to start with that would say I needed one though) once I was there it was added back on by another doctor when some of my blood work came back not normal.
Once you are there they are very good at getting you in and even encourage you to go to appointments early. While there you will see as what I was jokingly told was the hurry up and wait exercise plan and the starvation diet since you go go go and are already sick and food becomes unimportant.
Once you know you are going and scheduled I can give you Mayo tips not doctor related (like hotels and the shuttle that runs so you don't have to drive or stay in one of the connected hotels, where food is, what is rush time etc)
Good luck and if Mayo does not work then there is the Cleveland Clinic in Cleveland.
First to Heiferly coment...I understand now. She is absolutely right, your post is such a great advice, it should be edited at some major place where it would be helpful to so many other people....
Now - I will be making some phone calls tomorrow. I will call to insurance company also to find out how much they would cover the cost.
Questions:
1. why it is so important to make an appointment with internist?
2.Ones I will make my first app (GY) should I let them know that I will be making more appointments, or that I need to be seen by different doctors?
3.What "sleep" is? I did not know something like this exist
4.should I make app with neurologist & cardiologist?
You don't know how much I appreciate your help! Thank you again.
Best regards! Js
Now - I will be making some phone calls tomorrow. I will call to insurance company also to find out how much they would cover the cost.
Questions:
1. why it is so important to make an appointment with internist?
2.Ones I will make my first app (GY) should I let them know that I will be making more appointments, or that I need to be seen by different doctors?
3.What "sleep" is? I did not know something like this exist
4.should I make app with neurologist & cardiologist?
You don't know how much I appreciate your help! Thank you again.
Best regards! Js
I am not Heiferly but I thin she wants to use my post as a starting place for advice to get help at one of the major places. Your specific information would be removed.
The first thing I would do is call the Mayo Clinic in Rochester Minnesota and talk to the person making appointments in the Ob/GYn department.
I looked and here is the link for them specifically.
http://www.mayoclinic.org/obstetrics-gynecology-rst/
On that page it has a link for make an appointment and call and do it.
Remember to call and ask along with gynecology you want to find out if they have internists in this departments. If it were me I would request an appointment with the internist AND the gynecologist.
Remember to be brief and tell them you have Herpes and it is causing you issues that they doctors you are seeing can't get a handle on.
If they do not have an internist then if the Gyno. thinks you need one they will schedule you.
After you have a appointment and patient number start making other appointments in other departments
Gastro (when you call that department directly you tell them why you want to be seen)
Sleep
anything you can think of
The Gyn. can and will change your schedule add subtract.
Start with looking at that link and making a call.
Id look over the whole site and I can help you along the way but you need a starting place.
Before you call think about it and write very brief reasons you want to see the doctor, what symptoms make your life BAD, boil it down so they do not get overwhelmed, they will make time for you to tell them everything once you are there.
So first look over link and let us know what happens, if you do call and need help and I dont see the post message me.
Good luck!
The first thing I would do is call the Mayo Clinic in Rochester Minnesota and talk to the person making appointments in the Ob/GYn department.
I looked and here is the link for them specifically.
http://www.mayoclinic.org/obstetrics-gynecology-rst/
On that page it has a link for make an appointment and call and do it.
Remember to call and ask along with gynecology you want to find out if they have internists in this departments. If it were me I would request an appointment with the internist AND the gynecologist.
Remember to be brief and tell them you have Herpes and it is causing you issues that they doctors you are seeing can't get a handle on.
If they do not have an internist then if the Gyno. thinks you need one they will schedule you.
After you have a appointment and patient number start making other appointments in other departments
Gastro (when you call that department directly you tell them why you want to be seen)
Sleep
anything you can think of
The Gyn. can and will change your schedule add subtract.
Start with looking at that link and making a call.
Id look over the whole site and I can help you along the way but you need a starting place.
Before you call think about it and write very brief reasons you want to see the doctor, what symptoms make your life BAD, boil it down so they do not get overwhelmed, they will make time for you to tell them everything once you are there.
So first look over link and let us know what happens, if you do call and need help and I dont see the post message me.
Good luck!
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