Brain Health Community
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even swelling of the meninges

Around the beginning of the year I started getting mild headaches like my neck was out of alignment. Two weeks ago the pain was so bad it woke me out of a deep sleep. I also had severe nausea and dizziness. When these new symptoms didn't go away after an hour or so I went to the ER. In the ER they originally thought it was a stroke but ruled that out. They did a CT scan that showed something abnormal but they weren't sure what it was so they then did a MRI. The MRI showed that the meninges were swollen. Now they thought it was meningitis so they did a spinal tap. My spinal fluid pressure was 23 and the fluid looked slightly cloudy. Those results all came back negative with the spinal fluid not showing any signs of infection. ER determined that it was an emergency so I was admitted. During my 10 day hospital stay the did another CT scan, MRI of the entire spinal column, every possible blood test and a repeat spinal tap. MRI showed that the swelling of the meninges was the same as the first MRI and even across the brain. All other tests came back normal or negative. By this point the Dr's have no idea what it could be or how to treat it. The last test that was done was a biopsy of the meninges. Surgeon said that visually the meninges were stuck to the skull but no visible signs of infection. We are currently waiting for the results of the biopsy. Neurologist is ready to say it's idiopathic and treat with steroids. I am not a fan of the side effects that steroids have and would like a diagnosis before I take the risk.
1 Responses
Avatar universal
Same symptoms awaiting spinal tap resultswhat is the likelyhood of lymfoma

There are no tumor cells detected so far

What was your diagnosis and how are you today?
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