32 year old with tectal glioma

[niklogan]

Hello all,
April 29, 2014 I was diagnosed with a grade 2 tectal glioma. Inoperable obviously due to location. I've seen 3 different neurologist, nuero surgeon & nuero oncologist. Each all have a different outlook on my situation. Research turns up very little data about adults with tectal gliomas. My question is what is the survival rate. I've yet to turn up one story of a person living for decades...

[rumpled]

I am glad I helped... I was not sure.

I am thrilled that your headaches are cut down! What a great increase in your quality of life!

I just have a couple of pituitary tumors and while doctors don't take them seriously at all, I have never been able to get life insurance... so I know the story well.

There is a site  where they do keep stats on survival. The cancer dot gov site has statistics - but I am not sure if they have your type tumor... I could not find it.

I hope you keep posting back.

[niklogan]

Wow thank you rumpled. You really have no idea how much I needed your words at this very moment. I have made the necessary changes, pretty much immediately after diagnosis. Exercise, quit smoking, ketegenic diet, visits to holistic doctor for natural healing, pray, meditation even went to the extremes and did a 3 month round of cannabis oil therapy. (Please no judging here, I've got 2 kids and am willing to try anything to be here for them). Somewhere in one of these treatments I managed to reduce my headaches by about 80%. I thought it would be a good idea to increase my life insurance and purchase a disability policy, well no matter how great I feel as I am doing, apparently the life insurance agencies have counted me out. I was told they would never allow me to purchase additional polices with this diagnosis. So that's what started my search to find out what are the survival odds for someone like me. All I can do is continue on this path and understand what will be...will be. Just enjoy everyday like its your last. Once again thank you rumpled.

[rumpled]

I am sorry to hear about your situation.

It is then confusing to get conflicting outlooks.

This is a patient forum... but I can only offer this - it depends on some concrete and nebulous things like your current health (like if you have no other health issues, if this is your only battle), your diet, your your habits, your outlook and support.

If you currently are a, say, an older diabetic smoker who drinks heavily and does not have a good social system, then perhaps you will go faster than a younger athletic nonsmoker with lots of friends who is a happy person with a great diet. DNA and all sorts of others things play in too.

So, what you can control, if you can and want to... you can influence it! I had a uncle with a very survivable cancer but he chose to drink and smoke and he passed very quickly. You cannot control the tumor... but I named mine (mine is benign though but disabled me), and try to make the best out of what the fates have dealt me.

I know this does not help... but it is the best I can offer... I hope you post back and let us know how you are doing! And feel free to come around to give or get support!