History of PTC pain

[Emilymorgan]

I have been having headaches dizzness lightheaded when I stand up. Then my nose gushes blood everwhere 5- 10 min. I have a stiff neck and back pain, joint in sholders, hips, knees, and ankels. Back pain lower back and between the sholders. I was dianosed 11 years ago with pesuto tumor ceberi sorry most likely spelled wrong. I have had decompression of the optic nerves and I am legally blind. I have a lumbar shunt that have be revised or replaced 7 times and over 150 spinal taps in the last ten years tthings have been stable for over a year and lately i have not been felling well make an appointment with new Dr. but its not of a month if you can jive me any advice it would be great. Thank you

[rumpled]

Nose bleeds are separate, usually, from CSF issues and CSF is clear and colorless and accompanied by a killer headache.

I would still see an ENT about the nosebleeds.

I travel pretty far for my docs - it is a pain.

[Emilymorgan]

I am seeing a new Dr. because I work schedual has changed and my other Dr. is to far to travel. I am not sure what the problem is I have been trying to lay flat as much as I can to equalize the pressure in the brain and spinal cord and I am feeling better and have not had a nose bleed in a few days. which leads me to believe the the spinal pressure was to low. Thanks for your concern

[rumpled]

Are you sure you do not have an infection or something new has come up? Do you have a pcp or something that follows you regularly that you can see sooner than a month?

Why do you want to see a new doctor?

Have you been to an ENT  for sometimes dizzy issues come from ears as well as they could look at your nose?