are there any adults here with mild CP?

[mamiJ]

I was born with mild CP. The spacicity was in my legs and with the help of braces and therapy, I was able to walk "normal".

I am now 38. I have always had almost no muscle on the left side of my body. If I was very tired, sometimed I would get a little limp,but that's all.

Now, I have been having neuropathy, and most recently spacicity in arms and legs that becomes quite  painful.

Sometimes, I notice my fingers and toes sticking together.

What I'm wondering is do any other adults with mild CP have these symptoms?

The dr's have no idea what is causing my issues.

Thank you for reading

[sunshine904975]

I am 33 and reading all of these comments has made me feel not so alone. I have mild spastic diplega and have the tendon surgery at 7 yrs old. I have notice the same things. I had a test done n four that I have dystonia which is common in c.p. I had Botox injections in my legs and was put on gabapentin and that has made life way more tolerable . I use to go to the courage center but my neurologist has help so much I will be for ever greatful to him. I hope this helps. And thanks for posting things u r going through, it has made me feel like I'm not alone and what I'm going through is real

[sunshine904975]

P.s.  after having the Botox I can now spread my toes apart

[sunshine904975]

I know a little of what u r going through. I use a scooter on occasion n I love that's its there when I need it. It has allowed me to do things with my 9 n 5 year old. I didn't want to have one lol n I joke all the time about being 33 in a 90 year old body. I have spastic diplega and the hard Wood floors make my legs hurt more often, faster, and for longer periods of time more so in winter. Carpet isn't in the cards for us and we moved to a one level home to help. I just found this site today and I'm glad.

[glorybe17]

Hi, I was diagnosed at the age of 9 with mild cp.  Lived in a remote area. did not receive any treatment.  Affects my right side, limp has been the only
symptom along with hip being higher on that side.  

So little info is available regarding aging with cp, but I can tell you that it is now being called post impairment syndrome by the medical community.  Similar to someone who had polio as a child then begins to develop premature onset of muscle weakness , etc. which is recognized as post polio syndrome.

I suddenly starting falling at age 50 and needed a cane to keep my balance. Forced to quit my job as I could not tolerate sitting all day.  Extreme back pain, body out of alignment, muscles are very stiff on right side.  This has affected so much of my life.  In chronic pain for a good 15 years now, lots of physical therapy, etc.  My older brother and sister have none of these problems with aging........there definitely is a difference in our lives as they have the minor aches and pains that are common with age, but no comparison to my physical condition.

[glorybe17]

I can only say that when I read that it takes 3 to 5 x the energy for those of us with cp to do daily living tasks as someone who does not have cp, it made me realize that is why I never seemed to have as much energy as my friends.

[klvee]

I'm 50-something with mild cp affecting the right side. Like you, my family pushed me to do things when I was younger and "keep up" with them. I was told if I just tried harder "it" would go away. Didn't find out what "it" was until I was in my early 30's and felt like a rock had been lifted off of my shoulders just to know what was wrong with me... and that I couldn't make it go away! That's when I started to accept it. I did find like some others that regular exercise is a huge help.

As a parent it's been more frustrating that I couldn't  participate in physical activities as much as I would have liked while my son was growing up. A little scary sometimes  knowing that, for example,  I couldn't get to him quick if he rode his tricycle too far ahead and go himself in danger. But he's a teenager now and he's been a blessing. He understands that I can't do things normally, but as he says, "he's got my back". My husband has very supportive, too.

I just keep telling myself that it could be a lot worse. It's wonderful having a forum... thanks, all!