are there any adults here with mild CP?

[mamiJ]

I was born with mild CP. The spacicity was in my legs and with the help of braces and therapy, I was able to walk "normal".

I am now 38. I have always had almost no muscle on the left side of my body. If I was very tired, sometimed I would get a little limp,but that's all.

Now, I have been having neuropathy, and most recently spacicity in arms and legs that becomes quite  painful.

Sometimes, I notice my fingers and toes sticking together.

What I'm wondering is do any other adults with mild CP have these symptoms?

The dr's have no idea what is causing my issues.

Thank you for reading

[binoor111]

if anybody knows the treatment of cp in adults in any traditional medicine ayruvedic medicine or homeopathy etc

[Tuckman]

Hi Hagecl,

My name is Steve and I am 34 with 'mild' CP. My left side is affected. Kudos to you for your efforts in helping your son as much as you have. My mother did the same for me. Like your son when I got to 16 years of age, I'd had enough of the physio grind. This has been ongoing since I was 4 years old.

For me, my decision was based upon doing my own maintenance. My family purchased a cable operated gym and I used that a heap. It was also based upon a lot of uncomfortable feelings. Memories of the grind since I was a child, some bullying at school and my friends starting to get interest in girls and I thought I had no chance of this. In short, I had a very negative self-concept of myself. I have pushed myself hard for 30 years and am only starting to deal with the emotions now. There are elements of inferiority and shame attached to having CP for me. Everything is harder having CP.

I used to say things like 'people have it worse' and this is true but it doesn't deal with my own emotions. It's just a shield.

In the end, having CP is a battle and your son is under physical strain. And physio is a process of enduring more pain to squeeze out the 'bad' (stiff) pain in the body. It's a rare person that looks forward to this process.

There might be some biological (hormones) and psychological components mixed with that. Your son has to have some hope his life will change for the better otherwise there is no incentive for him to change. His efforts need to have a purpose.  

[richard83]

im 32 and had mild cp and also epileptic seizures all my life and still do, had to wear a foot brace for my left foot and there was very little function of the left hand had surgery when i was 8 to straighten my left foot they took the tenden from the right side of my left foot and put it on left side of my left foot.i did phyiscal therepy for many yrs as child, ive gained movement in my left hand i still get spazmatic movement in my left side which to my therory from my experience with cp and also epilepsy that ur body is having a myoclonic seizure which only a couple nuerons misfire causing that spasm to the side of the cp ,i actually can control my left hand with my right using single finger movements  but i cant still turn my left hand palm up ive tried breaking my arm working out the muscles but nothing work its so aggervating but if ur having spasms i would seea nero and get a mri to make sure there isnt further problems. i loved reading these post there very inspirational and makes me want to further my search to some day to figure how to cure it or make it easier on those that have it .it really effects everyone including me

[munch3105]

hi I'm 27 years old with mild cerebral palsy with a muscle wastage disease called dystonia. my cp effects my right side, but more so my right leg. I was diagnosed at 9 years. For years my parents new something was wrong with me. I wasn't like other children at school. even I knew there was something not right.
as a teenager I was under a orthopedic surgeon at Birmingham children's hospital. He decided to start giving me botulinum toxin in injections I would have them yearly as a teenager, wearing a splint of a night.
When I turned 16 I was then transfered to Queen Elizabeth hospital to there rehabilitation centre. I was having botulinum injections more frequently due to spasm and pain. but my dystonia was playing a major part in this. Because the majority of muscles were getting weaker, so they wasn't working correctly. so my muscles which wasn't effected was working more.  the angle of my foot started to change.
In 2012 I was having botulinum injections more frequently, but it wasn't managing the pain.  I informed the rehabilitation centre and they stated it was normal for the leg to become resistant to the injections.  They gave me a muscle stimulator to try and help reduce the pain. didn't help.  was put on baclofen medication that helped with the pain, but didn't do much.
In December 2012 my foot and toes started curling to the left hand side and I couldn't get out of the position.
In 2013 it became worse I had to have my leg minuplated to be put back into a 90 degree angle and had severe plasters to help put my leg in the correct position. I was then fitted with a hard splint.
I was told my body had became immune to the botulinum injections.  
as a few months went on my calf muscle was shrinking more and more. the pain was getting worse and I couldn't get my splint on as my foot started to curl once again and toe walking. The rehabilitation centre wasn't doing much at all and I felt something needed to be done.  my physio who was from a different hospital suggested I went and seen an orthopaedic surgeon as physio wasn't doing much as the pain and spasm was chronic she couldn't do much with Me.
19th September 2014 I had a tendon tentomy where the surgeon cur my achilles tendon to release it to try and put it bk into the 90 degree angle. I was reviewed 2 weeks ago it wasn't successful so I've now got to have a tendon transfer.
I'm absolutely petrified I feel my condition is getting worse and I can't cope with the pain.  normally before 2012 I was able to get around normally.  now I can't walk correctly the pain is unbearable I'm on baclofen and morphine.  I was told when I was younger I would stay the same but I'm fearing the worse my mobility is dreadful. can anybody recommend anything to help me deal with the pain please. my email address is ***@**** I'm open to any suggestions. just worried I won't be able to walk eventually x

[ag1298]

I am 29 year old female with very mild spastic hemiparesis (really just my left leg). I only found out this past year that I actually had CP. I started googling stuff and kept coming across CP online and confronted my mother about it. She admitted I was diagnosed at age 2, but my parents chose not to tell me as they did not want me to feel different. I never received any legitimate therapy. My left foot is visibly smaller, and my left leg in general is smaller than my right w/ less muscle tone. I have always favored my right leg. I have limited flexibility in my left ankle. I dont think anyone really notices with the way I walk. I think I have trained myself to walk as normally as possible. Sometimes I do drag my left foot when I am tired and trip more often on that side. I have less grip strength on that side- I notice this when wearing flip flops, etc.- my shoe sometimes flies off. Over the last 5 years I have noticed an increase in hip pain. Mainly if I walk for a while on an uneven surface. I feel like this is probably related to CP. Does anyone know why this is? Is it tight muscles? Is this related to me aging? Is CP degenerative? I am concerned about things getting worse as I get older. I am trying to work out a lot and focus on building my strength in my legs, but sometimes I wonder how much I can really improve it. If anyone has any exercise tips I would appreciate it. I am very thanksful it is mild, but I also feel like I am pretty late in the game to make much improvement.

[lanmarie4]

Love this forum. I was diagnosed with spastic diplegia cerebral palsy when I was two. I had a walker, leg braces, some other things too. I am 26 now. I have read before that Cerebral Palsy doesn't get worse. I have trouble believing that. I work at a job which requires me to be on my feet all day. So every morning I wake up in pain in my legs. I now have arthritic knees. Sometimes my toes stick together. And I experience hip pains when I run. Seeing that people with cerebral palsy age earlier than regular people, I don't see how it is said that it doesn't get worse than this. I don't like hospitals so I never have seen a doctor about any of my pain.