Hi my name is Lorin I am 19. I was born premature, My mom was hit by a drunk driver when she was pregnant with me. I was 2lbs. 14oz the doctors told my parents I would die or I wouldnt live to a certain age or I would never walk but Im perfectly healthy and about to be 20. I had to be in a lot of therapys mostly physical. Im not sure how many surgeries or if any Ive had because I was just a baby. The doctors told my parents to put me in gymnastics to help it go away. I was in gymnastics and I was a cheer leader but I stopped when I was 12. I had a son at 18 and he is 1 hes perfectly healthy but I wasnt sure if having him caused some things or not. Ive always felt fine but now sometimes I cant run because my ankle will give out. So I usually never try to run. My legs will hurt and I have to be under a blanket (heat) to make them feel better. My fingers tingle sometimes and hurt. Whats weird is if someone was to hit my hand, Ill be like ok whatever but other times its painful. The pain is usually in my legs. My back hurts a lot mostly lower back but sometimes upper. Im not sure if what Im experiencing is CP or not. If you have any answers please let me know.. i have not went to a doctor and asked what's going on.
Hi, I'm now 45 with dystonic cp, I have 3 children who are very loving and well rounded individuals , my oldest is 18, then 16 and youngest is 12, to be honest when I was in my twenties I was in pain but you just get on with it and my children knew no different until they got older, then I explained my condition and they seem to take it in there stride, it's now with my 12 year old I am getting problems because of the pain and my energy levels are an all time low it's hard taking her out to parks, zoos ect but we get by. My point is having co does not mean you can't raise a family, if that's want you want go for it, if you need to talk that's fine too.
I'm 53, and I'm sad to say that even though I was promised my cp would not get worse, it has. I have more spasticity than I've had in years. Because of frequent falls, I must use a cane. We are living longer than earlier generations, so Doctors have little to offer. My gp just shrugged and said I'll be aging faster. My physical doctor suggested more warm pool therapy, heat, and magnesium foot soaks. My neurologist suggests I do my coding from home. My pt says I need to lie on my side every 30 minutes to relieve my c curve scoliosis. I feel 700 years old
I live with mild cp. I am 44. I am so old I have never had the opportunity to get Botox, lol My muscles are really tight. I have gained ALOT of weight due to it being hard to exercise. The weight is hard on me over all. Wondering if Botox would help loosen my muscles and help me exercise. Anyone have thoughts?
I am 37 have had mild cp all my life it only effects my right side.
When I was younger it seemed to effect me more I used to wear calipers to help me walk. I try not to let it stop me doing everyday things and have managed to adapt, but over the past few years my fingers and feel like they are turning to stone and hard to move, I have also been getting twitches witch can last for hours in my arm and leg. Don't know if try there is anything I can do to stop it, if anyone can help would be greatful as it can keep me awake most of the night .