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620923 tn?1452915648

Activities to avoid with Chiari...

I am posting this here as it seems not many utilize the Health Pages and I want this to be seen by ALL!!

The subject no one wants to hear about, but chiari and syringomyelia are life-altering conditions and you WILL have to face that and change some major things in your life. You will find people with these conditions who  continue to do some of these things, but they do so with the knowledge that it can severely alter their current condition for the worse. The following are just some of those No-No’s:

NO neck stressing activities, such as roller-coasters, 4-wheelers, skateboards, horseback riding, motorcycles, wave pools, backpacking, falling asleep in chairs, extended reading with head bent ect.. Anything that “jars” your head and/or spine is a definite no-no.

NO neck stressing sports, such as water skiing, snow skiing, snow boarding, sky diving, bungee jumping, diving, playing tennis, basketball, soccer, football ect (Just trying to cover all the basics – you get the idea.)

NO contact sports.

NO Chiropractor!- Especially at the neck for chiarians and for those with a syrinx, no deep tissue in the area of ur syrinx.(The chiro should be well versed on Both CM/SM)

NO straining which includes straining to reach something, or even straining during a bowel movement. Take a fiber supplement every day if you tend to get blocked up.

NO moving furniture or heavy objects around by pushing, pulling, lifting, or any other way. Pick up nothing heavier than a gallon of milk. I know – that sounds impossible, but keep that gallon of milk in the back of your mind.

NO moving around in the dark!

NO putting yourself into stressful situations or relationships. Try to relax, avoid noise and keep your neck muscles relaxed.

NO twisting your spine – try to keep a good posture with your spine lined up and straight.

NO bending over. lower yourself to the floor by bending your knees – not your back.

NO sudden spinal/neck movements.

NO using the hair wash sink at the hair salon.Instead ask for the special try that most hair salons have that are designed to accommodate people who are unable to bend their head/necks backward.

NO Lifting more than 15 lbs when strength training or backpacking.Heavy lifting is generally not recommended especially if you have a syrinx.

AVOID sleeping in a head down position.

Avoid cervical traction.

Avoid lumbar punctures, spinal taps or epidurals, unless it is a well informed chiari dr....if a LP is drawn too quick it can cause the tonsils to herniate even further.Done incorrectly, this can be very dangerous for a chiarian.

AVOID doing any kind of activity that causes you to bend your head backwards, such as: bending back to gargle, washing hair in the shower ect.

AVOID food with too much salt.Especially for woman during their premenstrual period.

DON'T participate in any physical activity that puts you in jeopardy of falling and or creating trauma of any kind.

DON’T try to keep commitments when you’re feeling badly. Listen to your body.

http://www.medhelp.org/health_pages/Neurological-Disorders/Activities-to-avoid-with-Chiari-and-Syringomyelia/show/986?cid=186
60 Responses
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Avatar universal
Can you get your tongue pierced w it?
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Avatar universal
AVOID food with too much salt.Especially for woman during their premenstrual period.

Can I ask why Salt? My sister has high blood pressure and high potassium, could high salt intake be related to this do you think?
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1 Comments
Absolutely it's poor diet. Stop eating out, read labels, avoid high salt foods as well as high potassium  foods. Shopping at a grocery store only buy from the outside isles, everything else that is processed is full of salt. There are salt substitutes, herbs, lemon juice, lots of options just takes a conscious effort,   good luck
Avatar universal
I have been diagnosed with chiari nalformation since 2012 and my symptoms were terrible, I had brain freeze, tingling crawling sensation and numbness, combing my hair and washing my face was a task and still is, I refuse surgery because they would have to remove the three top vertebrae to place a shunt.
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620923 tn?1452915648
COMMUNITY LEADER

  Listen  to your body....if it hurts..stop more often while doing an activity....

For me, I started to have a loss of upper body strength and it got more difficult to do certain things....

Keep a journal to help you see if there is a decrease in what you can lift b4 you have pain etc.....

We are all different in what they are able to do....and a list like above is a basic guide line...

Anything that causes us to strain will cause more pain.
Helpful - 0
15806082 tn?1443203014
If I list these things to my mom she'll  think I'm 'trying to get out of work' like I 'usually' do. And showing her the  post won't help, she doesn't trust the internet. What should I do to be the absolute safest while still participating  in some of the activities, for example, lifting things, vacuuming??
Helpful - 0
1 Comments
if you do whatever you want to do, it has to be with caution. I am one to go above the things not to do and just take it as far as i can go without hurting me too much. I made a booboo and did too much. That is a no no as well. Listening to your own body is the best thing we can do.
620923 tn?1452915648
COMMUNITY LEADER

  The above list was given by Chiari Drs and this is Pre surgery...some need to follow some of it post op too...as many of us have other conditions in addition to Chiari....and the best thing any of us can do is listen to our own bodies as to what it can handle with out a flare of symptoms.
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