Hello there! My name is Trisha, I'm 21 years old and got diagnosed with a chiari malformation when I was 16. It was really hard to deal with on a day to day basis, I had to quit dancing because of the dizziness, nausea, headaches and sometimes fainting. I have gotten used to living with it without any kind of treatment because I was told that it is not severe enough to have surgery. Since it is affecting my life daily, I feel that it is severe enough for me. Last night I experience (for the first time) urinary incopitince. It happened while I was feeling very dizzy and confused. I felt the headache coming on and was getting up to get some Advil. I had severe pain in the back of my head and while I was walking to the kitchen I felt my pants getting wet. I didn't even feel like I needed to go to the bathroom! I lost complete control over my bladder. Can this be from chiari? I need help! I just got married in October, my husband is so loving and supportive of me, and always helps in whatever way he can when I'm having my symptoms. But this was so embarrassing! He was so helpful but I don't want him or me to have to deal with this for the rest of my life! I went to a neurologist in Portland, OR and he said that my chiari isn't severe enough for surgery. He put me on some medication but it's side affects were awful, and barely helped with my symptoms anyways. Any advice?? Does anyone know of an actual chiari specialist in Oregon? Thanks in advance!