I had a CSF leak yrs ago after I had my DD....and mine sealed up but I was flat for everything except to go to the bathroom....I ate laying on my side....no fun....but u have to say down....I was down for 5 days.....
Good luck to u <3
Thanks, SelmaS! No, they thought the best thing would be to let the leak heal on its own with bed rest. I had an MRI earlier this week that showed there was still fluid, but the amount of fluid had decreased. I had a bovine dura patch. thanks for all these suggestions! I'm going to start some research!
Hi and welcome back....so sorry u r having such a bad time......
The leak could be causing u to feel like that...what have they done to stop the leak? A blood patch?....
Another issue could be cerebral ptosis....have they done a MRI since u had a leak and an infection? What type of dura patch did u have?
And lastly did they rule out Ehlers-Danlos? Some have it pre op, but find out post op...it can be the reason for a leak and even an infection, plus with a lamenectomy it can also cause cerviocranial instability to worsen....so, u feel worse.
So it really depends on what is going on....and how they treat it.