Anyone head pressure comes and goes???

[seamatty]

Hello...I have chiari 1 and all chiari expert says I am not surgical. However I will go months with my head only hurting on occasion Somedays never and then bam...the pressure in the back of my head is horrific one day. This has happened to me 3 or 4 times in the last couple years. Anyone else have this. When I do get the 'bam' occipital head pressure it will last for a couple months and then subside some. Anyone else relate to that?

Seamatty

[mimosa7]

PSS.
He can tell my CSF is cut in half at the back... Based on a 1.5T MRI... Cine is not done here but there's def obstruction...

[mimosa7]

Hi Selma,

Thanks for all your input, I sort of got busy and forgot to log on... Exactly what you said about people on here, only around when scared, so we cannot really say how many had success with procedures to then go on and disappear...

I saw Dr. Tator at the Toronto Western Hospital, and he's amazing. Too bad he only consults, he retired from neurosurgery if I understood correctly.
This is his info for anyone reading this in the GTA area:

http://www.uhnresearch.ca/researchers/profile.php?lookup=5950

Having said that, my herniation is 12mm!!!! How I score 100% on the 1 hour neurological exam, I have no idea.

My newest flare up (first time ever) is itchy scalp but I can tell it's coming from the inside (irritation) or simply nerves... It's so annoying and makes me feel coo coo lol! Also my eye hurts if I look to the left... Like a pressure.  And I now feel a constant head pressure. I agree with the post above by cougar5 that it may be weather as we nearly had a tornado the other day up here. Global warming definitely isn't Chiari friendly, I can feel it lol.

I stopped counting little nerve lapses. As Dr. Tator confirmed, with different nerves being compressed, it's normal to experience different tingles and whatnot on different days, it's not in my head.

I am seeing a homeopath to control my anxiety over this whole matter and that seems to be helping, I think.  Or maybe mankind get used to everything they're dealt with time. Not sure.

My spinal MRI (which the Oakville Hospital neurologist advised me is unnecessary after saying my actual 12mm herniation is just a "few" mm and mild) is finally booked through Western for September and they're redoing my Head MRI on a better machine.

I am going back to grad school for a year so I need to buy time. I really do. I hope for no syrinx. Will keep you posted.

PS. Any updates on Dr. Jho's minimally invasive procedure?
PSS. Is talking in your sleep a symptom of Chiari (ever read that since you're so active online)? It's something that runs in the fam, but increased for me, maybe health anxiety only lol, so I'm trying to connect the dots...

I hope you're well Selma!

M.

[cougar05]

Where in Canada do you live and do you like your ns? I was referred to one Hamilton that had terrible reviews. The not something that I want to mess with so curious what your rating is of your Dr.

[cougar05]

i live in ontario too. i was just diagnosised with chiari 5mm.there are some doctors in toronto one being the chief of neurosurgery that are suppose to be fimilar with this condition if you are interested check out the doctors list on this website.i'm like you where nothing is showing in the brain but the pressure is there at certain times like during my period. if you have an info or need someone to talk to please write. since we both are dealing with similar doctors in ontario maybe we can help each other chart this course.

[dixiestevens]

I also have tremendous head pressure pains, I recently saw a ns in Canada and I am waiting to have a CINE MRI, she tells me I have symptoms of Chiari, but I also have some atypical symptoms.  She wants to make sure that surgery will give me relief. I have had an MRI that shows CM1, but the it's only 7mm, not that the amount matters in my opinion. My pains definitely come when I put any pressure on my body, coughing, laughing hard, bending over, even going to the bathroom some days is excrutiating. I hope you get some help soon, as I understand the pain you are experiencing.

[selmaS]

  Hi and welcome to the Chiari forum.

This is also a Syringomyelia forum as well....we have many members with a syrinx some with and some without Chiari.

Do u know if ur's is congenital or if it is injury related.....???

What have ur Drs suggested for pain relief?