Link to Video by Dr Francomano ~~~

[selmaS]

EDS is not just hypermobility....and  they even cover seizures...Headaches.....which can continue post op of a decompression surgery, so it is important to know what conditions you have....so many blame the surgery since they feel no better....but do not know what other related conditions they may have that could be contributing to the pain they experience...check out this link the video is only 30 mins give or take a few mins...worth the time.

  
http://www.youtube.com/watch?v=vesuF_8_KZs

[selmaS]

  I agree with you 100% that it should be ruled out b4 surgery....I truly feel this can affect how one feels and heals post op if they have this and it was not found b4 surgery......

Sending prayers that this Dr appointment gives you the confidence and peace in knowing you have the right Dr for your child.

[dozzy379]

I watched this. I think it gives great information (once you know what all the terms mean). It reinforces the importance of being screened for this PRIOR to any surgeries.

I am concerned that my son has this and possibly my daughter. My son's appt is Oct 14 and it can't come fast enough.

[selmaS]

  I hear you....it is something that takes full concentration or attention as it is a Dr speaking to other Drs.....

If you can get thru this one and want info on POTS let me know I found a great video on that as well.

Oh and there are some good ones on the EDS group.....Dr Diana Driscoll...she is great for all EDSers.http://www.medhelp.org/forums/show/417?camp=msc

[baccalynnwv]

I'm going to try and watch this, but it will probably have to wait until the weekend. I'm pretty interested in this. Unfortunately, I don't have time to watch vidoes until Saturday. Lol

[selmaS]

  Any feed back on this yet?? I would love to hear from some of you on what you thought of this presentation....