Hi Kerri...wow, no I have not heard of anyone else having this issue.....not saying some haven't I just am not aware or do not recall this....which shouldn't come as a surprise, but in all honesty, I am not aware of anyone else that has dealt with this.Please keep us posted and I am sending prayers and healing MoJo for you.
I guess I’m stranger than I thought. Going for an MRV tomorrow morning to assess the clot and surrounding areas. Called NS and they basically told me they don’t treat clots....
I read about the risk factors and the only one I have to my knowledge is a long-standing CSF leak causing intracranial hypotension. Apparently this particular clot isn’t very common at all...
I’ll keep you posted once I have more details. Thank you Selma