CHIARI DRS LIST ~~~~CANADA

[selmaS]

Hi I wanted to get a list started for those of you in Canada...I am not sure if these drs r indeed chiari specialists, but found their names listed on another chiari site.Please RESEARCH all drs and do not take this list as a reference.
Let us know if u saw ne of these drs and what  thought.


CANADA

Dr. Rudolph Arts
Neurologist
Barrie, Ontario
(ph) 705.721.1060

Dr. Paul Muller
Chief of Neurosurgery
St. Michael's Hospital
Toronto, Ontario
(ph) 416.864.5590

Dr Hurlbert
Neurosurgeon
Foothills Hospital
Calgary, AB, Canada

Dr. Rutka
Neurosurgeon
Sick Children's Hospital
Toronto, Ontario

Dr. Ramesh Sahjpaul
Neurological Sciences
339 Windermere Road,
London, Ontario N6A 5A5
(ph) 519.663.3706
(fax) 519.663.3753

[missyorkie]

I am from Ontario.. having little luck and not much support so far on my husband.. any help is appreciated here.. the NS we are seeing is not interested in explaining much.

[selmaS]

  Hi as I mentioned in ur other thread, the names of these Drs are added as members have reported they have been to, treated by and liked the Dr....that is all the info I can offer since I am not from Canada and have not met this Dr.

I would advise u to research the Dr...best way..call the office, when u ask if they treat Chiari , syringomyelia, tethered cord, ehlers-danlos?....if they ask u to spell ne of it or repeatedly as u to repeat it, it may be that office does not handle these issues that much....or it could be a new office person, so do try and see what the Dr has to say...so educate urself so u can better identify a Dr well informed and experienced.


May I ask, did ur DH have a CSF leak with no known cause? and it developed into Chiari or is it congenital?

[missyorkie]

,Can you tell me more about Dr. Pokrupa.. My husband has him at this time after being told for over 4 years his leak was just a complex case.. I would appreciate any and all information.. It has been a very long 4 years for us.. He started with a leak, went to Chiari malformation and syringomyelia x 2.. these are so very dangerous. thanks so much
Anne

[dixiestevens]

My NS is in Calgary as well. I can't call these people specialists in Chiari, at least by my definition. I believe they can do the surgeries required, but in my opinion they don't now a lot about the condition itself other than how to fix it. I asked my surgeon a few questions and all she would tell me was there is no absolute cure and nothing you can take to make it better. Surgery is the best option if you have a blockage of fluid and that's about where we left it. I saw two surgeons for second opinions before I made my decision. That being said I consider her a competent surgeon and she will be operating on me in 6 - 8 weeks.
Dr Clare Gallagher
Foothills Hospital
Calgary, AB

[mrscmuzik]

Not sure if you will receive this , but how did your surgery go in Calgary , I'm in Regina

[selmaS]

To contact a member on an older thread send them a PM (private message) this should generate an e-mail notifying them someone is trying to contact them.

[*Stormy*]

Hello

I definitely still recommend Dr. Reid, he is an amazing person. Please feel free to PM me, I would be happy to share any info I have.  I will be here for 5 more days and then away for two weeks so if I don't answer right away that is why. I do know a few more people with Chiari in Victoria, believe it or not. It is very scary being diagnosed with this but I am hoping I can help you with that by answering questions you may have. I am now 31/2 years post op and though there are ups and downs, I am doing well:)

[carmenyvr]

Hi Stormy, my daughter was diagnosed with chiari year 2014, she had decompression surgery in Brasil, with a really amazing team, now we are looking for a doctor here Vancouver or Victoria, could you please help us, if you have his phone #, I would really appreciate it, also, is there any support group that you know here in the mainland or Victoria that we can join? thank you so much for your reply.

[selmaS]

Hi and welcome to the Chiari forum.

Stormy is not an active member at this time, if you want to contact them, send a PM (private message) an email should be sent to alert them someone is trying to make contact.

[Budgie7]

Hello, I also live in Victoria B.C., am wondering how you are doing & if you still recommend the surgeon you had .  I hope you are doing well.
I am newly diagnosed & am of course frightened by this.
Thank you so much.