Bad Scare today!

[Amarisnery]

Hi, everyone. I hope everyone is doing good.
Today I was sitting in my car and all of a sudden I started sweating profusely, got very dizzy, pale as a ghost, lft arm tingly, veins on my hands and wrist were huge, tight and hurting. I got up to walk around and I cldnt almost fell to the floor, then I started shaking(I looked like I was having a seizure)it lasted abt 20 minutes. Honestly, I feel like crap and now I have a huge headache and I'm super tired. Oh also I've been having terrible knee pains, sometimes I can barely get up frm bed and walk.
To my experts, do you think this a CSF obstruction? I think so. Please give me ur feedback.
Thanks again for this wonderful community, I know longer feel alone with this desease.

[selmaS]

  U will have to go to the NIH clinical trials and see where they are....if not in ur area they pay to fly u or transport u....so no worries there.

Here is the link and u can put in ur location and see what comes up I did a general one for Chiari -  https://clinicaltrials.gov/ct2/results?term=Chiari&Search=Search

[Elisaandbucky]

Hi. I hope this finds you feeling better from your ordeal. It really sounds like it could have been a seizure. My son has them, and I have come to recognize them. Definitely make record of the ordeal, what you remember feeling just before it started, and the length of duration and date. I hope some of your responses have comforted you some.

[Amarisnery]

Hi. And Thank you for your response. How do
I go about finding Clinical Trials in Chicago.
Thank you,
Ampy

[selmaS]

  Related conditions are Syringomyelia, tethered cord, sleep apnea, ICP, POTS, disk issues and Ehlers-Danlos.

As I said we all may have different symptoms, so I can not say yes what u experienced were all just from a CSF obstruction....but I can say I do feel it is all related to Chiari.

Have u looked into the Clinical trials? It does not matter if u have Insurance...and u will get a Chiari specialist.

[Amarisnery]

Thank you for your response. What relative conditions? I went to the internet and I read CSF Obstruction and some of my symptoms are there. I honestly thought I was gonna die today. I have nevef felt GUI way in my life. I can't go see the Dr. cause I have no Insurance & have no money. I'm applying for Illnois public aid. Once Illk l8

[selmaS]

  Hi....I am so sorry u had this very scary incident.....but there is no way to say for sure it is an obstruction....we all may experience it differently and mine was nothing like your experience...

Deff give ur Dr a call and let them know what happened...and see what testing they will do next....

U could have a few different things going on...have u been tested for related conditions yet?