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Chiari - Suggestions / Next Steps
Hello,
Here's my back story:
I"m a 33 female, and in August I went to my family doctor for a yearly physical as suggested by my chiro. When I got an adjustment i would become short of breath, and get hot flashes and dizzy. My family doctor thought I had MS, and sent me to an NS. Along with sending me to urologist for incontinence. My NS said I did not have MS and do try PT , and see him two months. Well Two months past and PT did not help. I had a follow up appointment with my family doctor last week. In our meeting I told her that my pelvic floor specialist believes I have Chiara. So on Monday they did an MRI and today they came back saying everything is normal.
headaches
pain in bottom of skull, top of neck, some times it feel like my head wants to burst
nausea
dizzy with vertigo
slurred speech or messing up sentences when talking, reversing words
forgetfulness
tingles in feet and arms ( even when walking)
pains in legs
tightness in chest, specially when taking a deep breathe. I easily get short winded, even in talking at times.
Any suggestions on what I should do next?
Here's my back story:
I"m a 33 female, and in August I went to my family doctor for a yearly physical as suggested by my chiro. When I got an adjustment i would become short of breath, and get hot flashes and dizzy. My family doctor thought I had MS, and sent me to an NS. Along with sending me to urologist for incontinence. My NS said I did not have MS and do try PT , and see him two months. Well Two months past and PT did not help. I had a follow up appointment with my family doctor last week. In our meeting I told her that my pelvic floor specialist believes I have Chiara. So on Monday they did an MRI and today they came back saying everything is normal.
headaches
pain in bottom of skull, top of neck, some times it feel like my head wants to burst
nausea
dizzy with vertigo
slurred speech or messing up sentences when talking, reversing words
forgetfulness
tingles in feet and arms ( even when walking)
pains in legs
tightness in chest, specially when taking a deep breathe. I easily get short winded, even in talking at times.
Any suggestions on what I should do next?
My family doctor sent me to a urologist. We found out that my bladder was not empty,
I was not getting the sensation to go, and when I do.. its an urgent have to go now kinda felling, and that I have a high pelvic floor resting
tone. To help manage that I started to see the pelvic floor specialist. She
works in the same office as my urologist. 14 visit later, and i'm finally starting to contract. My muscle would not contract before. So this is a big win, small steps = big rewards!
I've not heard of CHOP before. I do get really bad pains in my right side by
my hip and lower, it does hurt alot and can stop you if you are walking or
curl over. I was told that i get this cause my muscles are shorten because I
cross my right leg over my left leg. So now I try not to cross my leg or cross at the ankles.
I hope that this helps.
I was not getting the sensation to go, and when I do.. its an urgent have to go now kinda felling, and that I have a high pelvic floor resting
tone. To help manage that I started to see the pelvic floor specialist. She
works in the same office as my urologist. 14 visit later, and i'm finally starting to contract. My muscle would not contract before. So this is a big win, small steps = big rewards!
I've not heard of CHOP before. I do get really bad pains in my right side by
my hip and lower, it does hurt alot and can stop you if you are walking or
curl over. I was told that i get this cause my muscles are shorten because I
cross my right leg over my left leg. So now I try not to cross my leg or cross at the ankles.
I hope that this helps.
What is the pelvic floor specialist called?
I have had sever spasms in that area, Very painful!; a friend who also had them called it CHOP: charlie horse of the privates.
I have had sever spasms in that area, Very painful!; a friend who also had them called it CHOP: charlie horse of the privates.
I hope to have answers soon. If my pelvic floor specialist hunch was right, I just might have to hug her... but not squeeze too tight.. I don't want to pee my pants! :)
I'm going to call Dr. Oro office tomorrow to see if I can send me scans to them to review.
Thanks you for your support. I appreciate it Until I found out about Chiari and found this site.. I felt like i was crazy with my list of issues.. Now i feel like im not the only one and that there is an answer
Thanks you for your support. I appreciate it Until I found out about Chiari and found this site.. I felt like i was crazy with my list of issues.. Now i feel like im not the only one and that there is an answer
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I am glad that u will go with a well known Dr....and I hope he is able to offer u some insight to how ur Chiari is affecting u.
U r never alone when u come here, bcuz we all know and understand wheat u r going thru bcuz we have all BTDT already...been made to feel crazy and we all know it is not us just as this is not a rare condition, Drs that r well informed on it are rare, not those with it,....lol...
Hang in there and do keep us posted on what u find out <3