Chiari - Suggestions / Next Steps

[Bobbigirl1]

Hello,

Here's my back story:
I"m a 33 female, and in August I went to my family doctor for a yearly physical as suggested by my chiro. When I got an adjustment  i would become short of breath, and get hot flashes and dizzy.  My family doctor thought I had MS, and sent me to an NS.  Along with sending me to urologist for incontinence.  My NS said I did not have MS and do try PT , and see him two months. Well Two months past and PT did not help.  I had a follow up appointment with my family doctor last week.  In our meeting I told her that my pelvic floor specialist believes I have Chiara.  So on Monday they did an MRI and today they came back saying everything is normal.

headaches
pain in bottom of skull, top of neck, some times it feel like my head wants to burst
nausea
dizzy with vertigo
slurred speech or messing up sentences when talking, reversing words
forgetfulness
tingles in feet and arms ( even when walking)
pains in legs
tightness in chest, specially when taking a deep breathe. I easily get short winded, even in talking at times.

Any suggestions on what I should do next?

[selmaS]

  No, I left that job right when that happened....my DD was very small age 5 and she will be 28 next week...so, it was a long time ago..lol...

Well breathing issues can be Chiari too, many of us do have issues with breathing so much so that we r encouraged to have sleep studies done for sleep apnea....

[Bobbigirl1]

awe.. thats horrible. I'm sorry you had to deal with that. I hope you are no longer in that environment.

I don't think i had an exposure to stuff.  The breathing problems started when  I started to have other issues like incontinance.

[selmaS]

  Yrs ago I was dx'd with restrictive lung disease and had a puffer too....kind of odd now that u mention ur issue, but I did have an over exposure to pesticides at work.....my boss was an idiot and caused it....and I had no way to fight that  one ugh,....

[Bobbigirl1]

I'm nervous about the shots.
I've told my doc and NS that i don't always get headaches when I have the pain in the base of my skull. Its about a 75% of the time.

Today was a tough day. My head  is getting tingley, its mainly on the middle  right side on the back of the head, and I since I now have Asthma ( that's what my doctor thinks and gave me a puffer for it) I had an asthma attack after walking up a flight of stairs at work.   Its embarrassing as this happened in a meeting

[selmaS]

  Shots in the neck are not always a good idea as they can hit ur herniation.,... unless it is being done by ur NS or someone well informed about Chiari and what u have going on.....JMHO

[Bobbigirl1]

My family doctor called me today and recommended that I get a shot in my neck and to see a pain doctor.
Any one ever have the them?  

I've called my NS, waiting for him to call me back.