Cranio-cervical fusion ahhhhh

[billyz123]

Has anyone had this done? or can anyone direct me to more information about patient outcomes or patient blogs (besides this one poor girl with a billion other problems). I wasn't freaked out about it until recently because I know that it's pretty obvious that I need to have it done, but there seems to be at least a couple different ways that Neurosurgeons are doing this procedure. For example, I searched this forum for "fusion" and there was a post from 2009 about how this woman was going to get her decompression done at TCI and her fusion done with Dr. Henderson( i think) and that was the last post that person ever made. I mean it seems like, for the most part, the only people on the internet talking about our conditions are the ones who are currently suffering. Don't get me wrong, I love this and other forums sooo much and love everyone that's a part of them for being so open, honest, and full of love and compassion... but where are the people who have gone through it? Where are the patients who have actually had cranio-cervical fusion???

-thanks, I love you<3

[billyz123]

oh I found a post that describes it pretty well...
http://www.****.org/forum/topics/fusion?xg_source=activity
(Marisa - 3rd reply) she seems to be very happy with her outcome.

  I'm scheduled for early June but that depends on the support of my family... They don't support it yet but I think it's simply because they don't understand why it's necessary and they are just as scared as I am.  My wonderful psychiatrist is going to speak with Dr. Bolognese soon and I expect a lot of understanding to come from that :)
  I mean, if I can't find enough evidence that this is a worthwhile procedure, my only other thought is to get an aspen collar or whatever and wait while the research continues. After watching the recent CSF Gala video (http://vimeo.com/38516977) it seems like there is about to be a serious boom in Chiari treatment development... or is it just the expansion of Chiari Centers with the current treatments? I can't tell (so if anybody can clarify this, please do) but there's certainly a lot of funding going on.
  I welcome all thoughts and opinions on all of this!
  

[selmaS]

  Hi,,,I have a prayer thread up for today for a friend of mine Laurie that is having the fusion today ...she had TC release at TCI 3 yrs ago and Dr B told her she also need the fusion and put it off, the MVA she was in a month ago has made the issue progress to the point she was told this past Thurs  she had to have this surgery asap, and was scheduled for today.

Dr Henderson is doing this surgery.

    

[billyz123]

hi selmaS, I'll keep Laurie in my prayers today<3 Thank you for sharing and please keep me updated. Dr. Henderson is an amazing man... she is in good hands :)

[soccero]

hi! ive had two fusions by dr henderson. i felt so much better after the first one then i fell and broke a rod and had the fusion redone and am still struggling but i deff am pro fusion!
molly

[billyz123]

Does Dr. Henderson only do occipitalcervical-fusion? How did you fall and break a rod???

[soccero]

he does the fusion and the decompression i fell at the beach i was walking backwards with a towel and i fell and thats when it broke. goodluck!