Do I have symptoms of Chiari malformation?

[jerrydub]

Hi Everybody, this question is for SERIOUS people. I wanted to just say that I'm glad I came upon this forum..Please, I know this post it a little long, but If you can take time to read this post, I would greatly appreciate it.  I think I may have Chiari Malformation symptoms. I'll list what happened and my symptoms..so here goes,  One day..I was sitting on my friends trunk on his car..he was already sitting in the car.and being a prankster, he turned on the engine and drove away at about..15-20 miles per hour..My body fell off the car and the back of my head was the first to greet the concrete.  I was laying on the floor and immeditley sat up and then I fainted for about 8 seconds. Head started to hurt for about 1-2 days.  About 1-2 years after my head trauma accident, everytime i turn my head left to right..I hear this fizzing/pop rock/sandpaper like noise in the same place I had my concussion. Also, the fizzing noise can be heard sometimes when I dont turn left to right, and it would last about 5-8 seconds. Overtime, I have also had headaches (not normal), but like a keen/ sharp headache in the very same spot.  I also get a numbness/(EX. sitting on ur leg too long) in my face,body, and hands somtimes.  This terrifys me as I dont evenn know what this can be.  I have had CT scans, MRI scans, and MRA scans for what I thought to be a brain anuerysm, but nothing showed up on the scans.. Now that I came upon this site..I'm afraid I share alot of same symptoms here. Do you think I have Chiari?

Thanks...

[selmaS]

well, it all depends on what is really going on....if u have PTC and the CSF keeps on building that is not good, it can put pressure on ur optic nerves as well as continue to cause HA's, balance issues, even vomiting, there is a large range of symptoms u may have to deal with....if u have a syrinx that is left untreated and it continues to grow it can cause perm nerve damage.

U really need to find a chiari dr to review ur MRI's to see what is going on......not being a dr, I really can not say....but, this is a life altering condition and no one can say who will or will no get worse or when.

"selma"

[jerrydub]

Hmm..my father found the doctor..anyways. do you know whats the worst that can happen if I dont get it treated?

[selmaS]

Hi....I would deff try to find a dr that will read ur MRI and give u an indication as to what is going on.

Keep a journal of ur symptoms, if u have ne changes, call ur PCP asap to see if u can get in to have a medical file of the complaint and the symptom....plus, ur PCP can rx did testing, like MRI's.

I would also see what chiari drs might be in ur area...and a chiari dr also treats hydrocepalous...many of these issues r inter-related.

Which dr gave u the chiari dx?

"selma"

[jerrydub]

I forgot to add..I also told him that I have symptoms of feeling numbness or..thousand needles tingling feeling in my face and arms.

[jerrydub]

Yes, he is a Chiari "expert".

Hmm..I do remember when I told him that it sounds like soda..fizzing or bubbling..and also said it sounds like sand rubbing against each other..and I remember that he wrote in his computer "clicking" sound.  I just looked at mayo clinic for tinnitus and it says possible sounds may include "clicking," I'm dumbfounded...

Also..the appointment only lasted around 5 minutes.

He didn't say why he felt I was fine..All he did was look at the MRI for literally like a minute..and he said I see no problems you're fine.  I remember what I was told about the "clicking" sound was that many doctors dont know what this sound is, and that he didn't know.  Then I asked him if it was because of Cerebral fluid blockage...and he said no...he seemed somewhat annoyed and impatient when I asked the question again about csf and the sound, as I was very worried..ya know...

Sigh...I am really depresseed as doctors and I cant even figure out this problem.. My blood pressure is about 150 lateley, probably because I have been worrying and stressing

Also, what are the risks of leaving this untreated?  I'm really giving up hope bcause I cant find the root of the problem, and neither can these NS.  Should I just ignore this fizzing sound and headaches and just continue to live life...?  Or do you think I should see another Chiari doctor somewhere else thats renown?  

By the way, would a hydrocephalus NS help me better than a Chiari NS for this "clicking" sound and headache?

sorry for the long post, you're the only person I talk to about this...

[selmaS]

I have no idea y this dr is not able to help u...u have a chiari dx...correct?.....

And u have symptoms including this fizzing sound...which could be tinnitus...I have it, I also get ringing too...but mostly it is a fizzing or fuzzing sound and it is constant...it had left  for a while after surgery but came back with some meds I am on...and as I do more it seems to increase....

Did this dr say y he felt u were fine....and may I ask what u were told b4?

"selma"