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Duraplasty with NO patch
My daughter's surgery was performed by a highly recognized Chiari specialist. He's done hundreds of surgeries, lectures and publishes on the subject and even developed a special shunt valve used by surgeons at The Chiari Institute. The problem is that he went with an old method of opening the dura, then stitching the edges to the tissues in the back of the neck, creating a meningocele. It was supposed to gradually shrink and then be ok. It has not. We took my daughter to TCI for a second opinion where the surgeon, very diplomatically, told us that method was very outdated and that the cause of her continued symptoms is chemical meningitis due to the meningocele. I'm looking for anyone in this community who has had a surgery with no patch, and whether they got any better or switched to a new set of symptoms like my daughter has. The operation was done in 2010 in NJ.
COMMUNITY LEADER
No worries do keep us posted on ur search and I pray a member that may have had the procedure without a patch posts to this thread.
I'm in the process of lining up appointments with two other NS's before we decide who will perform the surgery. Of course insurance is always an issue. I was just hoping to hear from a patient who actually had the no patch surgery and see how they were feeling. Thanks for your reply.
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Hi, I am so sorry ur DD is dealing with these post op issues...as I know they can be very painful and frustrating to say the least to deal with.
I know that some NS's do this and many times it is in children....ur DD is older so not sure except that a NS can do these surgeries but they usually do not do research and keep up with the newer techniques....and why we suggest a true Chiari specialist...and that is a NS that only treats Chiari and related conditions, not sure if ur NS fits that description or not....
I had my surgery with TCI so I had a dura patch made from my own tissue, to help prevent rejection....
Has ur DD been scheduled to have the surgery re done?