Hi I had the droopy eye too, and lucky for me it was while I was at the drs office and the nurse saw it...I was experiencing facial numbness while it was happening....so it is a chiari thing for sure....she seemed to know all about it.
"selma"
I get temple pain ALL THE TIME!!! It's awful and makes it really hard to be able to stand wearing my glasses.. I get facial weakness too and I feel like it is bad enough that my face is sagging but when I look in the mirror if it is there, it's very subtle. As Chiari can compress cranial nerves, I definitely think that is what causes it. I have no gag reflex which is another sign of cranial nerve damage (I definitely had a gag reflex at one time).
*Stormy*
Thank you so much for your feedback. That makes me feel so much better. General drs and my neurologist now just want to blame it on my Bells. I was having this long before the Bells. My drs. have tunnel vision. They only see what they want to see. You have to live Chiari to truly understand. I tell people without getting dramatic, walk a mile in my shoes and then, and only then, can you truly understand what I'm going thru. I'm a very layed back, calm person. I take everything most of the time very casual, but this condition is far from casual. It's complex and scary. I'm so glad I found this forum and the wonderful members I share this with. Thanks again. XO trebmal2 (Christine)
I know, really you can only understand this if you have been through it yourself, which is why this forum is so great.
I can see after having Bells why this would complicate things for you...but I had a friend with Bells and that completely resolves over time, doesn't it? Did they even confirm it really was Bells, it could have been a really bad Chiari episode.
That's the problem...Drs seem to want to look anywhere but Chiari!!! Their evasion doesn't help us in the least!