Newly diagnosed

[Yayyee]

Hi everyone

I was recently diagnosed (1 month)with CM after having a MRI to see what was causing my golfers elbow!!! I know but a true story.
I have a 10 mm descent and a shed load of symptoms with it. I had always thought that all but 1 symptom were due to other issues ie, I have 80% low tone deafness in left ear, so the constant falling over, balance issues, tinnitus in right ear and so on we're linked..... Oh how wrong was I.
My symptoms are balance issues, vertigo, tinnitus, cough headaches, numbness in right arm and hand, swallowing issues, double vision, sleep deprivation, right side of neck movement impaired, neck and back pain and a few others.
I have just had another MRI done on the whole brain and all the spine as the first MRI showed that the lower right side of my skull had no fluid due to the compression. I'm wondering if they have found a sprinx as when being moved on the bed  while doing the spine the movements went from around long movements to I would say no more than 2-3 inches. It almost felt like they wanted to get the top of the c6/7 with the thoracic.im now waiting for another appt where I will have a ns there also as I know I will be having decompression surgery.

[selmaS]

  If you had gone to the Drs sooner you may not have found one that could figure it out...I went to Drs since I was 17 with my headaches and was not DX'd until I was 48.....

First of all MRI's were not around for diagnostic purposes.....then, and now that they are more routinely used, it does not mean that ALL Drs know about Chiari and the related conditions...like ehlers-danlos which can affect the recovery.

It is a slow process with the medical community learning about this condition and how it is intertwined with others and how they can affect the outcome of surgery.

DX can be a long bumpy road as it can be finding the right Dr.....you seem to be lucky in that you found a Dr to DX and is aware of the condition.
  

[Yayyee]

Hi there
Yes I did have a cine MRI.
I'm lucky as I have private health care in England and my neurologist specialises in CM.
I wish I had gone to the doctors earlier as the 1 symptom that' I couldn't put anything to was the cough headaches and I have suffered with them for over 15 years..