I also suffer from severe nausea. From my experience I can say that keeping limes or lemons at the house and sucking on a slice can really be helpful if you don't mind sour. For when you're out of the house keeping ginger lollipops or candy in your purse is a good idea too.
I had always been nauseous, since I was a little kid but after my surgeries for the Chiari it was non-stop and horrible. Nights were terrible because it was so bad I could not sleep. Like you I would go to bed and that first hour I would escape and then I would wake up, maybe roll over or move, I don't really know but it was not usually more than a couple hours after I went to bed. Then almost instantly the nausea would build to a point that I could not even lay there or go back to sleep and I was out of bed most of the night and miserable. They did all the GI tests and no one had even a guess, the nausea was worse than all the surgeries and I had a lot of them! Luckily I had an apt. with someone scheduled for POTS and it was diagnosed as hyperadrenic POTS, the guess at this point is that the adrenaline issues make me stomach sick. So when I wake up and the adrenaline dumps I am wide awake and sick. I take propranolol now and it helps. I can't say that it took it all away but I sleep again and can function. When life gets crazy I usually have more issues but it is not at all like before. What I really need is to find and go to a good autoimmune center, this is where I think my nausea comes from. Just one more idea to think about. Who knows what really does it but if you can find something to help than maybe you can sleep and function better again. -Zygy
I can certainly offer you my sympathy and compassion. Like you, my main issue is nausea, and it really affects my day to day life. Try to find something that you can drink to settle your stomach (lemon or lime Italian soda from Whole Foods works for me). I also found these soft natural ginger chews that can be helpful. I also carry an airline illness bag in my purse at all times to avoid unexpected vomiting. I hope you can find something that relieves this for you.
Hi..,..many of us with both Chiari and EDS do tend to have GI issues even if they did not show on the current test you have had,...it still could be part of your issue....
EDS also tends to cause us to over produce histamines....which can cause nausea.,...and the GI issues...which maybe too early for it to be found.....
Ask about seeing an ENT to rule this out.