I get a painful involuntary twitch/ spasm of my body right as I am initially falling asleep on most nights. I feels like a sharp stab starting in my mid back on the side opposite to which I am lying on. It is so intense, I jerk my whole body and It often wakes me up. I dont seem to get it if I am lying flat on my back for some reason. Stacey
Thanks for your comment,I forgot to mentiion i do have Hiatus Hernia too,but i have always called these symptoms GERD.
The cramps and involentary leg movements and the wlking problems i have had since i was a kid,but nothing was ever looked at and it was only in recent years ( 6 years ago ) that i went along to my GP about all of what was happening to me concerning chiari as i now know what is wrong with me and i had to have a row with him before i was refered to a consultant and before that i was told i was a hypocondriac by my GP who was a bit nasty towards me. I then had the MRI scan my GPs attitude towards me changed. And then nothing was ever explained to me, so i had to find out for myself on the internet what this chiari thing was and its symptoms was and only then did i know what to expect. Then i started to look into different websites to compare my symptoms with what other people were experiencing.Then i came across this website which i think has much more to offer in the way of help...Astra!
THANK YOU!!! I need all the help I can get!
Not really I was on 1/2 of a 25 mg had to cut it in half, now I am on 25mg...so u have more than me : o......
When u look for a ENDO....ask lots of questions and if they focus their practice on Diabetes...run and do not look back...they tend to only check TSH, hence y I fired my ENDOS........
http://www.medhelp.org/posts/Thyroid-Disorders/Whats-going-on-with-my-thyroid-/show/1173804
Check out the Thyroid forum here on MedHelp...that is where I get most of my info on Hashi's.
Oh and I am on 50mg of synthyroid...which I believe is a fairly low dose...
Astra- That is how my legs were as well before the surgery...the longer I walked the spastic and painful they got. That is one big change the surgery has done for me, I still have a limp and slight cramp but nothing like I was experiencing before.
Selma- That is what I thought..I was convinced I had Hasimotos a long time ago..I had all the symptoms and for a long time I thought that was what was causing everything. However, when I asked my doctor what would cause me to go hypo her response was "well after pregnancies it can just kind of give out". I would like to see an ENDO but they are always so nonchalant about it like I don't really need one. When I first went on the meds I did feel like I was going up and down, my heart would race and I'd be all jumpy...I actually went off the meds after I gave birth b/c of that. The did tests and said my levels were fine and then a couple months later they dropped again. So I guess I need to request to see an ENDO too...I really don't understand why they just can't do their job!!!