It's been a while...

[bogey246]

I haven't posted in a year or so, I hope everyone is doing great. I'm 1 1/2 post op and have only minor symptoms and none that effect daily life. I had surgery at UAB Dr. Hadley. However, I followed up with a specialist Dr. Henderson in the DC area... Henderson has put me on low dose aspirin daily... Anyone else taking this and why? He never explained it just said it helped blood flow to brain... Thanks.!

[selmaS]

  Hyper mobility is EDS tho....??

Yeah, I do not get those twitched ne more tho, only b4 surgery and the first yr or so post op...but not lately....

I know with EDS, which is a connective tissue disorder the absorption of vitamins and minerals from natural sources as well as supplements....so I wonder....

I am sure if u have EDS or hyper mobility he would refer u to Dr Francamano....

[bogey246]

I don't know for sure if it's the cause or not. Honestly I don't remember if he said hyper or hypo mobility... He did refer me to a nutritionalist  to help with all of these levels.  One thing he said was he had a theory that some of the facial twitching that occurs with chiari could be tiny blood clots... I guess that makes sense to take aspirin to thin blood due to small vessels you mentioned earlier...

[bogey246]

Henderson ordered a spectra cell which is blood test that checks vitamin levels ... I have low vitamin e, selenium, asparagine and pantothenate... He said I do not have EDS but have a mild connective tissue disorder.

[selmaS]

  So glad to hear all is going well with u....I have heard rave reviews on Dr H from so many that have been to him, great to continue to hear more : )

May I ask which vitamins ur levels are low on? Vit D, B12?....

[bogey246]

Yes, regular work and exercise... I have low vitamin levels so he put me on a supplement daily. I still have a cycles of symptoms twitches, minor hearing issues I've noticed a lot is brought on by stress. I've just accepted it as a part of me! Henderson is great by the way he ordered a series of new MRI and test... Everything is good so far I have been blessed.

[selmaS]

  Hi and welcome back !!

I was told to start taking aspirin too, but it really bothers my stomach so I never did, I understand it is to thin the blood so it can travel better as we not only have a  smaller space in the cerebellum, but some of the veins are smaller too...and could be y ur Dr suggested this.

Glad to hear u r doing so well, may I ask what u do on a daily basis, are u back to a reg work schedule and active lifestyle?

U may continue to see and experience benefits for a while yet....I know I still noticed changes up and to this summer compared to last and I am 4.5 yrs post op....