Hi...have u had any other Chiari specialists give u a a 2nd opinion...I encourage everyone to get more then one opinion so u can compare.
A NS that specializes in Chiari does their own research on the condition as well as related condition.
I am glad to hear ur DD is being checked for sleep apnea, but also rule out tethered cord, ICP, ehlers-danlos, as they can affect how she feels and heals.
Please keep us posted
"selma"
Happy to hear that at least you are getting answer's for your DD. I also agree with Selma. I suggest also that you get a 2nd oppion, so you conpare who you are more comfortable with. Wish you the best on the journey. We know how hard it can be.