Ok......So How Big is yours? (giggle)

[danicafontaine]

Im trying to get a handle on the cerebellar tonsil thing.  If youd like a good laugh here's my first reaction:

"Ok, so take my tonsils out...." lol.  I have since been educating myself, and would like to get a feel for how outrageous or how insignificant my issue will be perceived when I finally do manage to get an appointment with Neurology....

My cerebellar tonsils are 9mm below the craniocervical junction.  How big are yours?

[AJ29349]

Mine are at 8mm.  No surgery yet, but plenty of symptoms.  Going to Maryland this month!

[Givenstrength]

Denverluv... I don't think I've ever mentioned any whooshing before but what about it? Watch out for what?

Reason I'm asking... Is bc almost every single night when I lay down I hear a whooshing sound in my ears, almost sounds like it goes along with my heartbeat? I also have it after exercising (which I have nit exercised in a long time) and then I have even had it happen during day out of the blue!

I have actually worried bout this problem before... What is it, why does it do it?

[denverluv]

Givenstrength- HEY!!!!! Weren't you the one saying you were having the whooshing? Be careful! Mine was at 15mm - you are more - - please be careful with yourself!

burdzmom - me - too- I was actually dx when I was 9 - no symptoms- then I started having symptoms, first time they measured at 11mm, then 6mos later at 15- and I got sick fast too and the whole time before I knew it was dropping I just thought I was making my symptoms up in my head - thinking - i am just having symptoms because i know what I have now - but no, I was getting sicker and blowing myself off! LOL LOL LOL

[burdzmom]

mine was 10 nearly 11 at surgery date.
six months prior they were at 5mm......i guess the aggresssive dropping is what made me so sick so fast.

[Alicia696]

Hi, mine measured 5mm. With the way I feel you'd think it was worse. But they say size4 doesnt matter it's the symptoms you feel.

Alicia

[dkdean]

6mm...then 6 or 7 depending on how you measure...currently 8-9mm--but again--it's all in how they measure...and most good chiari NS's will go on symptoms and flow.  But, it still does surprise me that something so 'tiny' can cause such huge problems!!!!!!!