POST OP COMPLICATIONS ~~~~~POLL

Question

Hi All we all know some have a rougher time post op then do others...and we are trying to see if a pattern emerges...

So for those that have had surgery and some set backs we ask you complete the following poll.

Thanks in advance 
and do post a comment if more info will be helpful as u can only select one choice from the list below.

1- developed a CSF leak
2-developed ICP
3-developed a pseudomeningocele
4-DX'd with EDS post op
5-required several surgeries
6-still having problems after multiple surgeries

Use the poll below to select the line that closely fits ur situation.

selmaS · Answer

ne one else to add to this b4 our new topic for May?

selmaS · Answer

ICP= intracranial hypertension

 EDS= Ehlers-Danlos Syndrome

 CSF = cerebral spinal fluid

 Have they ruled out related conditions for u?

Wyssa · Answer

I'm not sure if mine really fits. I had a CSF leak and staph bacterial meningitis. They had to sew me back up, and I had to have several spinal taps. I ended up having a lot of complications and symptoms after my surgery. I may be getting another surgery. I don't really know what all the acronyms are, so I just put 1 on the poll. :)

frankie_rush · Answer

I had none of the above mine was a little different. Cause my syrinx was so big it caused me to loose control of my body. So basically I learned to do everything again. They said it could happen but a small chance. Everything is better now and wouldn't changed anything.

selmaS · Answer

Thanks Molly and zygy for ur imput......

soccero · Answer

E) all of the above :(

zygy2 · Answer

Had my first surgery and found my first pseudomengocele, had a second surgery to repair the leak and things went crazy requiring a third emergency surgery ten days later.  I was still leaking with a pseudomengocele and they had used a synthetic patch to begin with.  My NS attempted to use an LP shunt to lower the pressure to hope the leak would stop without doing a 4th head surgery.  I started to have multiple surgeries pertaining to the LP shunt and about this time is when they diagnosed me with EDS which explains why everything just seemed to be going wrong.  Months later I still had a pseudomeningocele which meant another head surgery and I also had the shunt removed when all was said and done!  It was a 3+ year process with lots of weird problems and lots of frustration.  

They diagnosed chemical meningitis, I had multiple lumbar punctures,diagnosed with EDS, Diagnosed with POTS,  I had crazy medication reactions and allergic reactions, I had my spinal fluid drill small holes in my cerebellum causing crazy things like the worst vertigo experience EVER... felt like being catapulted into the grand canyon in the dark backwards.. it was the most horrid thing!  I also had a hearing issue when the cerebellum was being damaged, I could hear socks on my floors and spoons in bowls as if there were loudspeakers in the room!  I had a lot go wrong and it was a very long process but I made it to the other side of things and I now have a patch that was harvested from my own body and life is improving!  -zygy

selmaS · Answer

Those with EDS tend to reject foreign matter such as a dura patch that is not made from our own skin, and could be y u had that issue, ....I did not think I had it from the description I read on EDS< but I do, so I strongly suggest with the post op issues u have had to get checked. JMHO

Niki2004 · Answer

They have never ruled out EDS, but I have no symptoms of it.

Niki2004 · Answer

So I will get into a little more detail. To be as helpful as possible :)

My initial surgery was a posterior fossa decompression. 

After my initial surgery I got VERY Sick. They soon discovered 
, that I had a CSF leak, all the fluid was collecting at the base of my neck. I also has Chemical meningitis, the doctor said this was due to blood entering my spinal fluid. The fluid was drained. 

For my second surgery the went in to repair the CSF. They used synthetic dura for the repair. Again I became very sick, after an MRI, they found out that my body was rejecting the synthetic patch and it became infected. 

My third surgery was to clean the CSF area, and remove the synthetic patch. They made a longer incision on top of my head to use a piece of my own pericranium to repair the CSF. 

All of these surgeries and procedures in the matter of 3 weeks. Including several spinal taps, MRI's and other small procedures.