PRAYER THREAD~~~ KerricC1

[selmaS]

Hi all please wear your purple to gain awareness for Chiari and show support for our friend as they head in for surgery on Monday July 27th.

Sending Good Vibes ~~~~~ and prayers to them and all in  charge of their care.

and sending Healing MoJo for a smooth recovery.

[KerriC1]

Thank you very much for listening and advising me. It's so confusing when you have many things going on and not completely sure if it's to be expected of its a war I g sign of something else. Such a strange condition....

[selmaS]

  So you do have  leak.....hmmm.....well it is best to keep flat as much as possible...and as you mentioned hydrated.....

The pulsing and whooshing could be related to the leak.....as is the positional change from laying down to standing....try rolling to one side lay there a while, then slowly sit up....then slowly stand  ( I am sure you are not bounding out of bed) but go as slow as possible and see if it helps any....

[KerriC1]

I've been trying to note whether symptoms are positional, and I think it just fluctuates. I do notice a pulsing and whooshing headache when I change positions from laying to standing, but the numbness doesn't seem to get better or worse with positions. And as far as the meds go I have been tapering down in them to see if that's what's causing it but there doesn't seem to be a link there either. I know on my MRI that he ordered he did say there was a small leak but that it was normal and it happens to everyone right after surgery. So I just keep laying and hydrating and hope for the best

[selmaS]

  Hmmm yes that is puzzling....do you feel worse when upright or laying down?

Is there a difference?

Are you taking your meds according to a schedule?

[KerriC1]

I have t been doing much of anything to be honest. I haven't even been out of be house since I got home. Just some slow walking and adhering to the 2 hours up and thirty minutes lying down. This is what is puzzling me

[selmaS]

  Well it should not be worse....did you do anything activity wise that could have caused it?

I know for me, going places there were a lot of people or noise could trigger a major migraine....even florescent lights will still trigger symptoms for me....

Be aware of what you are doing lifting things more then 5 lbs can cause issues, bending, pulling, pushing..etc....