Poem I wrote recently

[trippmusic]

Hey Guys,

It's been awhile since I've been on, but I recently wrote a poem about how Chiari has affected my life and my sweet hubby thought I should share it with y'all. I've had a rough couple of weeks as far as pain and insomnia (probably goes w/out saying given the time, lol) and some of my symptoms getting worse. I know there are good days to come, but lately it's been bad days and worse days rather than good days and bad.

Anyway, I hope you enjoy the poem. Feel free to share it with others if you think it may help them to better understand Chiari and how it affects the day to day things. Here it is:

Why Me, Chiari?

Why me, Chiari? It’s just not fair this load I must bear.     My life has changed, I’m living scared. Dizzy, off-balance, forgetful, confused; I struggle to find the words I should use. I’m weak, I’m exhausted, I’m in constant pain.
It hurts when I laugh, it hurts when I sneeze. It hurts when I cry…don’t touch my neck please. Turning my head, looking up, looking down; increases my pain, knocks me to the ground.
“What’s wrong?” people ask, “You look just fine. Are you sure it’s not all in your mind?” Chiari Malformation, my brain’s crowding down. At last an answer’s been found. I’m not crazy or lazy, I’m sick can’t you see? Just writing this is killing me…even AFTER my surgery!
Dishes or laundry? Play with the kids, go to church? Two things in one day? No way that will work. I have to make choices, decisions you see. Is it worth all the pain and the agony?
There must be a reason, there just HAS to be! So I’ll give it to God, let Him carry me through. And the lessons I learn, I’ll share them with you.

Written by: Penny Tripp

[selmaS]

I figured u just might...and it just had the flow that should be with music.....


I will look forward to hearing more  : )

"selma"

[trippmusic]

Thank you all for the kind words :) And Selma, I might just do that, I do sing and have lots of friends who write music. I'll keep you posted.

[trdofbeingtrd]

It is a work of art, specifically because you were able to portray your feelings, pain, sadness, and your suffering through words. Which is what art (poetry in your case) is all about.

[selmaS]

Hi Penny thanks for sharing...I could just hear this set to music....and since that is ur userID...I thought that might be the next step?????


<3
"selma"

[chiarilmt]

This is a great poem.  Thank you for sharing this with us.